NHS Digital Data Release Register - reformatted
Institute For Fiscal Studies projects
- MR1404 - Research on Health and Ageing using English Longitudinal Study of Ageing (ELSA) data linked to NHS Digital data
- Work on Healthcare at the Institute for Fiscal Studies
29 data files in total were disseminated unsafely (information about files used safely is missing for TRE/"system access" projects).
MR1404 - Research on Health and Ageing using English Longitudinal Study of Ageing (ELSA) data linked to NHS Digital data — DARS-NIC-32854-Y8P8B
Type of data: information not disclosed for TRE projects
Opt outs honoured: Anonymised - ICO Code Compliant, Identifiable (Does not include the flow of confidential data)
Legal basis: Health and Social Care Act 2012 s261(1) and s261(2)(b)(ii), Health and Social Care Act 2012 s261(2)(b)(ii), Health and Social Care Act 2012 - s261 - 'Other dissemination of information'
Purposes: No (Research)
Sensitive: Non-Sensitive, and Sensitive
When:DSA runs 2019-02-22 — 2022-02-21
Access method: One-Off
Data-controller type: INSTITUTE FOR FISCAL STUDIES, NATIONAL CENTRE FOR SOCIAL RESEARCH
Sublicensing allowed: No
- Hospital Episode Statistics Accident and Emergency
- Hospital Episode Statistics Admitted Patient Care
- Hospital Episode Statistics Critical Care
- Hospital Episode Statistics Outpatients
- MRIS - Cause of Death Report
- MRIS - Cohort Event Notification Report
- MRIS - Flagging Current Status Report
- MRIS - Members and Postings Report
- Hospital Episode Statistics Accident and Emergency (HES A and E)
- Hospital Episode Statistics Admitted Patient Care (HES APC)
- Hospital Episode Statistics Critical Care (HES Critical Care)
- Hospital Episode Statistics Outpatients (HES OP)
The English Longitudinal Study of Ageing (ELSA) is a well-established, on-going, multi-disciplinary cohort study involving a collaboration between University College London (UCL), the Institute for Fiscal Studies (IFS), the University of Manchester (UoM), and NatCen Social Research (NatCen).
Since its inception in 2002 it has provided valuable insights into a range of social, health and economic issues. Traditionally, data have been collected biennially face-to-face via interview and clinical examination. While this approach has been very useful and will continue, linkage of study members in ELSA to routinely-collected data offers not only additional rich, complementary information about their health which cannot be gathered using these methods (e.g., valid data on diagnosis and prognosis of common chronic diseases such as cancer and depression) but, crucially, data which come at no burden to the study members. Participants are invited to re-consent every 2 years when study members are re-interviewed.
The Institute for Fiscal Studies (IFS) require linked pseudonymised Hospital Episode Statistics (Admitted Patient Care, Outpatient, and Accident & Emergency), Cancer registration data and ONS Mortality as part of their research obligations as part of the ELSA research group. This agreement will permit NatCen (under NIC-311182-N0L1Y subject to an active DSA and supporting purpose) to share linked pseudonymised HES, ONS Mortality and Cancers in order for IFS (under this agreement) to carry out their obligations.
The requested data will be used for a programme of research on health and ageing in England. This is a long-standing and on-going programme of work which aims to improve understanding of the ageing process, and how the use of health care affects this ageing process and the evolution of health over the lifecycle.
Linking NHS Digital data with ELSA will allow IFS to combine detailed information on health outcomes; the use of hospital services; the quality of health care and the identification of trends in health that will impact on future demands for health care with wider characteristics of the elderly population. The proposed linkage of ELSA to administrative health data will provide novel data for research on ageing in England. Existing studies on ageing, and in particular the use of health and social care services of individuals as they age, has been restricted by extremely limited data on the use of these services. Studies on the evolution of health at older ages using administrative health records has also been limited by a lack of information on the socio-economic and wider health characteristics of individual. Linking the data together therefore provides a rich dataset which enables research in this crucial policy area.
The work will be carried out by researchers at the IFS and is funded by the Economic and Social Research Centre (ESRC) and the Health Foundation. ESRC funding is provided through the ESRC Centre for Microeconomic Analysis of Public Policy (CPP) 2015-2020, which aims to improve existing data sources through the linkage of survey data with high quality administrative data. The Health Foundation funding is provided through the Improving the allocative efficiency of health and social care spending on older people in England grant, running from 2015-2019.
Below are the projects that will take place as part of this programme of work:
(1) To understand the extent to which variation exists in the use of NHS hospital services among the older population that is not explained by differences in need? IFS will examine variation in the use and cost of hospital care across the socio-economic gradient, differences in cognitive abilities, and across geographic areas.
(2) To examine how the pattern of hospital care use changes in the final year(s) of life, and to examine whether it is proximity to death, as opposed to age, that determines healthcare utilisation (controlling for other characteristics captured in the ELSA data)
(3) To understand the extent to which individuals can substitute between different types of social care and hospital care? For example, IFS will examine whether reduced availability of publicly funded social care (as a result of cuts to local authority spending) has resulted in an increased use of NHS hospitals.
(4) To compare the risk of survival following the onset of different health conditions across demographic and socioeconomic groups within the older population in England, and between similar groups in England and the US (US data will be obtained separately). IFS will use the information on cause of death from ONS mortality statistics to find out who has had an onset of a condition prior to their death, so that we can work out the probability of survival among those who experience (eg) a heart attack. We have missing survey information on those who die before they are able to report a new onset, and the cause of death information allows us to fill in the gap.
The requested data would be used solely for research purposes, in line with the research aims stated above.
The data was only received in Summer 2018, and as of yet no work has been published. As a result, this work has not yet yielded any of the expected benefits. It is expected that publications and dissemination of results will be produced from Autumn 2019 onwards, with benefits to follow after this.
The twin pressures of a rapidly ageing population and a prolonged period of public spending austerity will produce unprecedented pressures on NHS services over the coming years. The English population aged 65 and over is expected to grow by more than 20% over the next decade Meanwhile, the NHS is experiencing a period of funding freezes, with annual UK health funding increasing by 1.2% between 2010-11 and 2014-15 (compared to an average increase of 5.6% in the preceding fifteen years). Understanding how to meet these additional demands with fewer resources is therefore a key challenge for health policymakers and practioners. The importance of this challenge is reflected in the recent policy and practice debate (e.g. the Better Care Fund), and the size of the challenge has been well documented by the Dilnot Commission and initiatives such as the Quality Innovation Productivity Prevention (QIPP) programme.
A data linkage between HES, Cancer Registration data and ONS mortality data with ELSA would provide an important contribution to this debate. The linkage would provide detailed information on the characteristics of individuals who use health and social care services. This would allow a detailed analysis of who uses these services, and to identify any spillovers in the use of health and social care (e.g. do cuts in social care spending have negative impacts on NHS services). In particular, the ability to follow the same individuals over an extended period of time will provide information on how needs for (and use of) health and social care have changed over across cohorts. This will contribute directly to a an important debate over the size of additional pressures on services as a result of an ageing population (e.g. does healthy ageing lead to increased health spending?).
Existing IFS work with unlinked HES data (separate to this agreement) has been used to inform policy makers including Monitor, NHS England, the Department of Health, the Cabinet Office and representatives from PCTs of which academic work helps to understand the impacts of former policy and guides improvements to the existing health and social care system. In particular, the Department of Health notes that they have no doubt that the linkage of the Hospital Episode Statistic with survey data from the English Longitudinal Study of Ageing will be a valuable source of information in understanding the variation of health care use across individual with similar medical needs but different characteristics.
Specific projects that will make use of the linked data will have a range of direct benefits to health and social care over the coming years, including:
(1) Understanding how population health care needs are likely to change is important for both national policy makers and local commissioners, particularly given tighter NHS budgets. The Department of Health has already shown interest in this work, part of which (using unlinked HES data) IFS presented to the Department in June 2015. This work was further discussed with representatives from the Department and NHS England in February 2016. The aim is that the findings will also feed into initiatives such as the Better Care Fund and help to achieve efficiency savings set out by the QIPP initiative and NHS Englands Five Year Forward View. As noted above, this research is supported by the Department of Health (see the attached letter), who acknowledged its vital importance and provided supporting evidence for IFS funding applications to the Health Foundation. Representatives from the NHS England Strategy Group have also indicated to IFS the importance of such work in informing future policy when meeting to discuss the work. These findings are expected to have long-lasting benefits, which would be accrued during the project and in the years following the completion and publication of the work.
(2) Work on healthcare inequities will provide evidence of the extent to which the use of NHS health care varies across individual characteristics, and help to identify where particular groups receive higher levels of spending than can easily be accounted for by differences in medical need. This will provide two benefits to the health and social care system. First, these results can be used to inform policy makers on the future allocation of funds to CCGs. This will help to better direct funds to areas with higher health needs in future. Second, it will help commissioners and practitioners to target more treatment to individuals who previously have not received sufficient care. These benefits will be accrued in the years following dissemination of the findings.
(3) Work on spillovers between different types of social and health care will provide new evidence on the extent to which individuals use a different mix of informal, and state- and privately-funded formal social care, and its interactions with use of NHS hospital care. This will significantly enhance understanding of the relationship between the use of social and hospital care, and identify spillover effects of changes to social care funding on hospital use. This work will deliver significant benefits to the health and social care system, by providing key evidence on the impacts for NHS spending as a result to cuts to social care funding. This is particularly important to policymakers given the raft of recent policies to better combine health and social care funding (e.g. Better Care Fund). Benefits will accrue following the completion of the project. IFS researchers presented preliminary results from this work programme using unlinked ELSA data at the Department of Health in June 2016. An update of the work has been requested, and IFS researchers have been invited back to present at the Department again once results using the linked ELSA-HES data are available.
The analysis will be used to produce a range of outputs.
Three types of written output are expected:
(i) working papers, published as part of the IFS working paper series, which is available on the IFS website and read by all those who use the website including government departments and academics. The first working paper would be expected to be published in Autumn 2019, with others to follow subsequently over the next few years.
(ii) peer-reviewed journal article submitted to peer-reviewed economics and social science journals. For example, outputs will be submitted to the Economic Journal, an international peer-reviewed economics journal with an impact factor of 2.587 and over 900,000 article downloads in 2014. The principal audience for this type of output is economics academics who will read and cite the paper. The initial paper will be submitted in Autumn 2019 upon completion of a working paper (see (i)). Publication in economic journals typically take between 1-3 years after initial submission to be published, so we would expect publications to fit this time frame.
(iii) non-technical research summaries which will be press-released and target policy makers, such as the Department of Health and NHS England. These summaries would be published at the same time as working papers and/or peer-reviewed articles are published (from Autumn 2019 onwards). We would aim to disseminate results directly to policymakers as soon as possible, starting in Summer 2019 as our results emerge. Subsequent discussions would follow.
Other outputs will include presentations at academic conferences and presentations to policy makers. Academic presentations will take place at general economics conferences (e.g. European Economists Association Annual Conference) and more specialist health economics conferences (e.g. UK Health Economists Study Group meetings), and will focus on receiving comments from other economists on how to improve the analysis. Presentations with policymakers will focus on disseminating results, and helping to inform the government departments who are involved in planning and delivering NHS care to elderly individuals.
All outputs will only report large sample aggregate statistics and regression outputs, and small numbers will be suppressed in line with the HES analysis guide. No individual or episode level data will ever be published.
As specified, ELSA consist of NatCen, IFS, UCL, and UoM working in collaboration with NatCen being the lead collaborator. NatCen are the holders of the ELSA cohort and thus only NatCen hold the identifiable data in association with this cohort. IFS, UCL, and UoM only have access to a pseudonymised version of the ELSA data with only the pseudonymised study ID as a form of identifier. For the purpose of this agreement IFS will obtain pseudonymised data from NatCen directly. The data shared by NatCen contains both ELSA data (pseudonymised) and data provided by NHS Digital under NIC-311182-N0L1Y (also pseudonymised). The NHS Digital data shared will be restricted to the fields and identifiability specified in this agreement.
NatCen will send NHS Digital NHS Number, Postcode, Date of Birth, Gender and study ID for a cohort of approximately 15,000 participants and this is linked to the HES, cancer and mortality data requested in NIC-311182-N0L1Y only before flowing to NatCen. All identifiers will be stripped (or converted to pseudonymised format) before NatCen onwardly shares with IFS under this agreement. The shared data will be restricted to the fields and pseudonymised as specified in this agreement and in that of NatCens agreement under NIC-311182-N0L1Y.
The data received from NHS Digital will be converted by NatCen into a pseudonymised format before onward sharing to IFS by removing identifying data. Date and Birth, Date of Death, Date of Inquest, and Date of Registration will be converted to MM/YYYY format. Cancer registration number will be downgraded to the first 6 digits. Only pseudonymised data will be shared with IFS and IFS may only receive, process and retain the data with an active NHS Digital Data Sharing Agreement in place.
All organisations party to this agreement must comply with the Data Sharing Framework Contract requirements, including those regarding the use (and purposes of that use) by Personnel (as defined within the Data Sharing Framework Contract ie: employees, agents and contractors of the Data Recipient who may have access to that data).
No data will be shared with 3rd parties.
Persons accessing the data are direct employees of IFS or contracted to IFS, and who are named ELSA collaborators. IFS terms and conditions will be adjured to.
The Data will only be used for the purposes described in this agreement.
IFS do not require identifiable data nor will they attempt to re-identify this data. The data will not be linked to any other dataset.
IFS require data from 1997/98 to the current day (or as far back as each product allows) in order to provide the longest time series possible over which IFS can track the hospital use of ELSA respondents. This is for two principal reasons. First, this will provide the longest history of NHS service use for individuals. IFS are interested in the use of services by individuals both in a given period of time and over the lifecycle. Using a long time series therefore allows IFS to more accurately proxy lifetime use of NHS services. Second, using more years of data will maximise sample size. This is crucial in boosting the statistical power of the research, helping to accurately identify and estimate effects. As a result, these data requirements are essential in allowing IFS to carry out their proposed research.
When turning the supplied data to outputs IFS will be using record level data to do the following:
(1) Produce hospital utilization measures
(2) Create a mortality indicator as a patient outcome measure
(3) Create indicators of cause of death
(4) Use (1), (2) and (3) to run regressions, correlations and produce descriptive statistics to study the relationship between these measures, and better understand the ageing process.
(5) Create indicators of hospital admissions at the local authority level
(6) Match the data with local authority level measures of public spending on social care using data from the Chartered Institute of Public Finance Accountants (CIPFA)
(7) Run regressions of hospital utilization (recorded in ELSA) on self reported data on social care receipt (recorded in ELSA)
Work on Healthcare at the Institute for Fiscal Studies — DARS-NIC-17824-V9F2B
Type of data: information not disclosed for TRE projects
Opt outs honoured: Y, No - data flow is not identifiable, Anonymised - ICO Code Compliant, No (Does not include the flow of confidential data)
Legal basis: Approved researcher accreditation under section 39(4)(i) and 39(5) of the Statistical Registration Service Act 2007 , Health and Social Care Act 2012, Health and Social Care Act 2012 – s261(1) and s261(2)(b)(ii), Health and Social Care Act 2012 s261(1) and s261(2)(b)(ii), Health and Social Care Act 2012 - s261 - 'Other dissemination of information', Health and Social Care Act 2012 s261(2)(b)(ii)
Purposes: No (Research)
Sensitive: Sensitive, and Non Sensitive, and Non-Sensitive
When:DSA runs 2019-12-01 — 2020-11-30 2017.06 — 2020.01.
Access method: One-Off
Data-controller type: INSTITUTE FOR FISCAL STUDIES
Sublicensing allowed: No
- Office for National Statistics Mortality Data (linkable to HES)
- Hospital Episode Statistics Accident and Emergency
- Hospital Episode Statistics Outpatients
- Hospital Episode Statistics Admitted Patient Care
- Patient Reported Outcome Measures
- HES:Civil Registration (Deaths) bridge
- Civil Registration - Deaths
- Civil Registration (Deaths) - Secondary Care Cut
- Civil Registrations of Death - Secondary Care Cut
- Hospital Episode Statistics Accident and Emergency (HES A and E)
- Hospital Episode Statistics Admitted Patient Care (HES APC)
- Hospital Episode Statistics Outpatients (HES OP)
- Patient Reported Outcome Measures (PROMs)
The Institute of Fiscal Studies (IFS) conducts independent research into the effects of economics on health and the health system with the aim to better inform policy makers, practitioners and the general public
IFS have a number of research projects being conducted at once. This document numbers and describes each project aim, processing, outputs and benefits individually.
(1) To understand whether and how patients exercise choice when there is no entry of private providers: the case of maternity. The aim is to address three questions: (i), are patients able to make a choice when there is very limited spare capacity in the system? (ii), if patients are able to exercise choice, what types of patients are able and willing to exert choice? (iii) do women use experience from their earlier maternities when making decisions about where and when to give birth to subsequent children?
(2) To produce a model of choice that can be used to simulate and evaluate potential future policies. The focus will be on how potential policies affect where different types of patient (by age, location, or area level deprivation) are treated.
(3) Comparing health care expenditure, activity and outcomes in the US and England, using the specific case study of percutaneous coronary intervention (PCI) treatment for acute myocardial infarction (AMI) patients aged 65 and over.
(4) The objectives of this project are (i) to understand the impact of the introduction and expansion of the role of independent sector providers on demand for NHS-funded joint replacements and (ii) to assess how this impact varies across England, and the area level deprivation.
(5) The objectives of this project are (i) to produce profiles of public-funded medical expenditure in England over the life cycle (and examine how this evolves over time), (ii) examine correlations in the concentration of medical spending over time (i.e. how much does spending on healthcare in a given year determine the amount of healthcare received in the future), and (iii) examine the share of medical spending attributed to patients in the last year of life.
(6) To investigate how the demand for, and quality of NHS services have changed in areas where population has experienced rapid changes. In particular, IFS will examine whether areas with a high number or concentration of residents who are foreign born experience greater demand for two types of NHS services: (i) Accident and Emergency care and (ii) maternity services.
(7) To estimate the health effects of Sure Start, a large national programme to improve early childhood development and integrate health, education, childcare, social care, and other support services to better serve families. The HES data will be used to: (i) investigate whether access to Sure Start services between birth and age 4 reduced all-cause and cause-specific hospitalisations and outpatient visits; (ii) understand the rollout of the Sure Start programme. This project can be completed with existing data.
(8) To estimate the frequency of drug-related hospital admissions, focusing on cannabis-related hospital admissions, as well as admissions related to other drugs and alcohol, by region (especially TV region equivalents) and period (yearly and monthly), and in relation to demographic characteristics (such as age group and gender). These figures will then be compared to region and period specific estimates of the market size for cannabis, based on other data sources (especially sales data for tobacco-related products). This project can be completed with existing data.
(9) To examine the variation in 30-day mortality rates of patient who are treated for AMI or stroke across different consultants and different hospitals. The focus will be to quantify the extent to which different consultants determine the probability of survival for patients, after taking into account the different characteristics of patients treated by different consultants, and the facilities available to consultants in each NHS hospital. This project requires the pconsult variable. IFS currently hold this variable for 2010/11 onwards, which came as part of the standard extract. This variable is required from 2003/04 to 2009/10.
From May 2017
(10) IFS request linked HES-ONS mortality data to examine the impacts of the national four-hour waiting time target in NHS accident and emergency (A&E) departments. In particular IFS will examine three questions:
a. Does the four-hour waiting time target change the probability of inpatient admission from A&E (e.g. are admission decisions distorted by the presence of the target)?
b. What are the consequences for patient outcomes of changes in admission decisions?
c. What are the consequences for the amount of resources used by hospitals due to changes in admission decisions?
(11) To examine the effect of the policy shift towards choice and competition on the performance of UK acute hospital trusts. In particular the focus is on industry dynamics - which hospital trusts gained from choice and competition and which lost, and what impact did this have on the service and quality of care for their users and local populations.
(12) The objective of this project is to estimate the effect of the UNICEF Baby Friendly Initiative on children’s health and health care use. The UNICEF Baby Friendly Initiative is a worldwide program that promotes breastfeeding through improving breastfeeding support services in hospitals and community services (i.e. health visiting teams). Improving breastfeeding might have effects on health and health care consumption. Although some benefits of breastfeeding are well recognised, the evidence on some other benefits is weaker. IFS will study whether the implementation of The UNICEF Baby Friendly Initiative in either a hospital or community service is associated with improvements in child and maternal health, as well as health care use.
(13) The objective of this project is to understand whether hospitals that are more research intensive take up treatment innovations sooner, and whether this is translated in better health outcomes for patients and/or reduced costs for providers to achieve a given patient outcome.
(14) The aim of this project to quantify the benefits of breastfeeding on children's health and cognitive development. Children born at weekends (or just before) might be less likely to be breastfed due to poorer breastfeeding support at the weekend. The project aims to use the variation in day of birth to set out the returns (in terms of patient health) to being breastfed.
(15) The overall objective of the project is to evaluate how emergency admissions affect hospital production and patient outcomes in trauma and orthopaedic departments. There are three sub-objectives: (i) quantify how changes in emergency admissions have affected NHS hospitals across a range of outcomes including readmissions, cancellations of elective surgery, and length of stay; (ii) compare how the relationship between emergency admissions and these outcomes has changed in response to past NHS policies including Payment by Results, Referral To Treatment targets and NHS Choices; and (iii) assess how future policies relating to ambulance referral patterns and hospital closures may impact the relationship between emergency admissions and these outcomes.
Previous and ongoing IFS work with data provided by NHS Digital has formed the basis of discussions with a wide range of policymakers (e.g. Department of Health, NHS England, NHS Improvement, Cabinet Office, representatives from PCTs and CCGs, Royal Colleges etc) within the health and social care system. As previously noted by the DHSC, in a letter to accompany our application, our work and subsequent discussions help to build knowledge about specific policies or broader policy areas. The evidence produced by the work can then feed into policy decisions in future. Particular benefits include: - Two research reports related to project 2 were published in 2012 (‘Choosing the place of care’) and in 2013 (‘Public pay and private provision’) respectively, and widely disseminated among relevant policymakers. This included discussions with Monitor, DH, NHS England and the Cabinet Office Economics Team. The results were also presented at the Nuffield Trust’s Competition for Care conference in May 2013, alongside speakers and delegates from the Competition and Cooperation Panel, Monitor, NHS England, and the NHS Confederation. These findings provided evidence of the growth of the private sector that was discussed by this set of policymakers as part of their policy making process - Results from project 3 have been presented to the DHSC on three separate occasions (June 2016, October 2018, March 2019), with updates on the work (or newly requested extensions) requested by DHSC each time. These presentations have been requested by DHSC as part of their evidence gathering on how demand for NHS care is changing (and how it is likely to change in the future). In particular, the March 2019 presentation was requested by the Social Care analysis team as part of their preparations for the 2019 Spending Review. The research will therefore potentially influence the future provision of health and social care in England through increasing the evidence based used by DHSC in their decision making processes.. - In September 2017, IFS hosted an event attended by a range of policymakers entitled "NHS services in the face of increasing demand - what does it mean for patients?". This included presentations on a range of projects (7,10 and ii in this application). The event was attended by a wide array of representatives from the Department of Health and Arms Length Bodies (ALBs), the Cabinet Office, health think tanks, several Royal Colleges, charities and patient representatives, and helped to build awareness of the findings of the research among these groups. - In May 2018, IFS (joint with the Health Foundation) published a comprehensive report on NHS and social care funding. This included analysis using HES to examine how NHS activity had evolved over the past 20 years (under project 3 in this application), and how this related to changes in NHS funding over time. The report had 757 print and digital mentions, and 775 broadcast mentions (including BBC 6 and 10 o clock news, BBC national and local radio, Sky News, ITV etc). In the 7 days after launch, the report had 343 downloads. This report has been influential in the wider debate over NHS funding, widely discussed by MPs of various departments and helping to stimulate public debate over how to fund the NHS, and it was disseminated widely within the Department of Health and NHS England immediately prior to the government announcement of a five-year settlement for NHS funding in June 2018. - The work on the impact of the 4-hour target on patient care in NHS A&E departments (project 7) has been widely disseminated among NHS Improvement, the main policymaker responsible for implementing and maintaining the target in NHS hospitals. During the design of the work, IFS discussed the project with the NHS Improvement Emergency Care Improvement Programme to maximise the usefulness of the work. The results of the work have been subsequently discussed with the ECIP team and presented to the NHS-I Economics team in detail. The work shows that the 4-hour target has meaningful impacts for the standard of care provided to patients at a time when hospitals are struggling to meet the target, and is expected to yield further benefits by providing evidence of the impact of the target in future discussions over the future of the policy (e.g. a consultation on the 4-hour target has been publicly mooted in recent months).
The existing work using HES data has been used to inform policy maker Monitor, NHS England, the Department of Health, the Cabinet Office and representatives from PCTs. As noted by the Department of Health, academic work helps to understand the impacts of former policy and how to improve the existing health and social care system. Examples of previous outputs, and the steps IFS have taken to disseminate the findings to policymakers, include:
•The research report “Choosing the place of care” was published in 2012. A summary presentation has since had 9,505 views online. After the report was published, representatives from Monitor, the Department of Health, and NHS England met to discuss the policy implications of these findings. In the months that followed, economists from the cabinet later requested a meeting to ask for advice on NHS competition.
•The research report “Public pay and private provision” was published in 2013. The accompanying presentation has now been viewed 16,342 times online. The results were presented at the Nuffield Trust’s Competition for Care conference in May 2013, which also included speakers from the Competition and Cooperation Panel, Monitor, NHS England and the NHS Confederation. The audience included both national policy makers and local commissioners. The results have also been presented to a meeting of Conservative Health at the House of Commons in July 2013.
•‘Policing Cannabis and drug related hospital admissions: Evidence from administrative records’, an article in the Journal of Public Economics (released April 2014). The Journal of Public Economics is a highly respected peer-reviewed economic journal. The article has 7 citations thus far.
• IFS have invited representatives from the Department of Health, NHS England, and Monitor to two workshops on academic findings on health care in 2013 and 2015, which they have chosen to attend. This indicates that academic work in general, and this work specifically, is valuable to them. Following the 2015 conference, IFS were invited to present the results to the Department of Health, further indicating the importance of this research. Following discussions with DH delegates, IFS are planning to modify their research (distinguishing between spending on elective and emergency care), as it was suggested that this could be useful to the Department during the upcoming spending review.
Future projects will have a range of direct benefits to health and social care over the coming years:
(1) Results from this project will improve the understanding of how and why patients make choices, and more specifically, how women respond to the quality of maternity care. This will benefit the health and social care system in two ways. First, it will assist policy makers in deciding how effective patient choice is in promoting competition between hospitals and therefore driving up standards. Second, it will inform Acute Trusts about how women make choices about where to give birth, and the potential financial consequences for Trusts who lose patients as a result of providing poor quality care. The interim findings of the project (along with those relating to project 6) were shared and discussed with representatives from the Royal College of Midwives in July 2016, and the North East London Sustainability and Transformation Planning Team in December 2016, and will inform NELST going forward on staffing decisions in the fact of increased patient demand. These benefits will be realised over the next 3 years
(2) The model of hospital choice can be used to model how patients respond to potential policies, such as the reorganization of hospital services, or hospital mergers. The focus on equity is in line with NHS England principles of promoting equality and equity in provision, and the objectives of the Department of Health (see attached letter). IFS will liaise with the Department of Health to understand how the model could be more useful to them. Again, these benefits will accrue over the next three years.
(3) The government has previously used cross-country comparisons to assess the effectiveness of the health care system. The results will aid such comparisons. The results will also provide information that can be used to evaluate the implementation of NICE guidance with respect to the treatment of heart attack patients between 2008 and 2010, which recommended the use of Percutaneous Coronary Intervention for certain patients.
(4) Policies of the previous two parliaments have increased the role of the private sector in delivering NHS funded care, yet there is very little evidence on the impact of these providers on the impact for NHS funded care. This research will help inform policy makers of the potential effects on patient demand, health care supply, the financial implications for NHS providers, and the equity of provision if the role of these providers is expanded in the future. These issues are of importance to the Department of Health, Monitor, the Cabinet Office and NHS England. Thus far, this has been demonstrated by both the Cabinet Office and NHS England requesting updates to this work, indicating that this work has the potential to feed into policy-making in the short to medium term. A working paper version of this research was warmly received by a number of representatives from Monitor, including the Economics Director, Cooperation and Competition at Monitor, when presented in September 2013.
(5) Understanding how population health care needs are likely to change is important for both national policy makers and local commissioners, particularly given tighter NHS budgets. The Department of Health has already shown interest in this work, part of which IFS have been invited to present to the Department in June. The aim is that the findings will also feed into initiatives such as the Better Care Fund and help to achieve efficiency savings set out by the QIPP initiative and NHS England’s Five Year Forward View. This research is supported by the Department of Health, who acknowledged its vital importance and provided supporting evidence for IFS funding applications to the Health Foundation. Representatives from the NHS England Strategy Group have also indicated to IFS the importance of such work in informing future policy when meeting to discuss the work.
(6) Changes in the volume and composition of the population have important implications for the quantity and type of health services demanded by patients. This work will show how rapid population change can affect demand for services, and therefore help CCGs and Acute Trusts plan for the future. This could be in terms of how to organise primary and secondary care services or how to determine future staffing levels. The focus on A&E services should be particularly useful, given the difficulties experienced by A&E departments this past winter. These benefits will accrue over the next 3 years. IFS have already discussed findings with the North East London Sustainability and Transformation Planning Team. These discussions (also relating to project 1) helped NELST to internally review their provision of maternity care (underway in December 2016) following large increases in the number of mothers seeking care at their hospitals.
(7) The analysis of Sure Start will provide a detailed and thorough cost-benefit analysis of the programme. Sure Start was funded at £1.8 billion in 2010-11 and accounted for a third of government expenditure on early years programmes. Funding per eligible child fluctuated over time but averaged about £6,500 per year. This reflects a considerable government investment in early years interventions, and it is important to understand whether this intervention provided value for money by improving subsequent outcomes.
One of the major rationales for Sure Start is the evidence from other countries that early intervention is more cost-effective than treatment for poor child health. There has been a renewed focus on early intervention in the UK; for example, a 2012 report by the Chief Medical Officer (CMO) called urgently for more investment in early years to prevent poor outcomes later in life. Similarly, the NHS Five-Year Forward View (2014) called for a ‘radical upgrade in prevention.’ The government has made explicit plans to deliver part of this early intervention through Sure Start; for example, the 2009 child health strategy ‘Healthy lives, brighter futures’ envisages a strengthened role for Children's Centres in improving children's health and supporting parents from pregnancy onwards.
Poor child health generates substantial costs for children, their families and the Health and Social Care System . Research by Action for Children and the New Economics Foundation suggests that, over a 20-year period, preventable health and social outcomes faced by children and young people will cost £4 trillion (‘Backing the Future’, 2009). Even the short-term costs imposed are considerable; for example, the short-term hospital costs of severe unintentional injuries to children are estimated at up to £87 million per year (CMO’s Annual Report 2012, Chapter 3, p. 8). Potential long-run costs could be in excess of £2 billion (ibid). Using HES to understand whether Sure Start is an effective way to reduce the rate of these hospitalisations is a concrete example of how IFS hope to add value to the health and social care system. Understanding the role of community based health services is vital in designing new models of care that both deliver better value to the patient and their families, and help the NHS to continue to deliver high quality care with constrained resources.
Given the potential importance of this work to the health and social care system, IFS are strongly committed to reaching out to policymakers to disseminate the findings. To do so, IFS will produce written work targeted at policymakers, including a non-technical report describing their methodology and their findings. This will be freely available on the Institute for Fiscal Studies website. IFS will also provide support in communicating the results, including through a press release; a brief observation note highlighting key findings; and a launch event which will be open to policymakers and the media. This will take place in early 2017 (the end of the project and release of the report).
In addition, IFS plan to reach out directly to key policymakers within the health and social care system. IFS will approach strategists at NHS England and Monitor to discuss the results of their cost-benefit analysis of early intervention. This will give them rigorously-researched information on the effectiveness of early interventions, which they can use to inform and support future strategies. IFS also plan to communicate with health policy organisations, such as the King’s Fund.
In addition, this work will have wider impacts beyond the health and social care system. IFS are already working closely with policymakers within the Department for Education as well as practitioners from the early childhood development field. IFS have the strong support of this advisory group in maximising their policy impact, including their assistance in disseminating the results widely through their networks.
Finally, IFS have existing links with politicians from the all-party parliamentary group 1001 Critical Days and the Foundation Years Information and Research group. These groups have already expressed interest in the results. Once the report is published in March 2017, IFS will meet with them to discuss the results and the policy implications of their findings. The findings will inform the recommendations of these groups and will provide a stronger evidence base for early intervention in the UK and ensure value for money is delivered.
(8) Quantifying the market size for cannabis is important given vigorous policy debates about how to intervene in this market. A body of evidence across disciplines has established significant private and social costs associated with the market for cannabis. Private costs borne by users include longer-term impacts on health from prolonged and heavy use [Fergusson and Horwood 1997, Hall and Degenhardt 2009, Marshall et al. 2011], as well as a potentially increased propensity to use other illicit substances [van Ours 2003, Kelly and Rasul 2014]. The social costs of the cannabis market arising through the health systems are substantial. For example, Public Health England estimates that drug misuse costs the NHS in England £488m annually (Public Health England 2013). Better understanding of the market size of cannabis can therefore bring measurable benefits to health and social care. The statistics based on the HES allow to compare cannabis market size estimates (by TV region equivalent and time period) based on sales data from tobacco-related products to hospital admissions for related diagnoses, and will assist policy makers by providing better understanding of how these measures are related. In particular, better understanding of the market size for cannabis can inform policy makers in the area of health and social care by providing important information about the size of the cannabis market, including as input into cost-benefit analysis (CBA).
NHS Health Scotland has made extensive use of alcohol sales data to monitor and evaluate Scotland’s alcohol strategy (NHS Health Scotland 2016), and concluded that sales data can contribute to ensuring that “consumption or related harm is spotted early”, and identified as an area for future research the relationship between “consumption [of alcohol] and harm within Scotland and the rest of the UK” (NHS Health Scotland 2016). The proposed project provides evidence on such a question in the context of drug use, and will assist policy-makers by providing insight into whether such an approach could be used for illicit substances such as cannabis, and develops a new method for doing so.
IFS will write a policy-focused summary of the results aimed at a practitioner’s audience and the general public, using widely read dissemination websites such as “VoxEU” (http://voxeu.org/content/topics/health-economics) or “The Conversation” (http://theconversation.com/uk/health). For example, previous policy-relevant research summaries by the researchers on VoxEU have been accessed more than 20,000 times. Links with a prominent professor (University of Essex), who has worked and advised widely on topics related to health and risky behaviours, will also help to disseminate findings to a policy-maker audience. IFS will distribute the findings to their links and contacts in the NHS. The research paper will be available freely on their website.
These benefits will accrue of the next three years as the paper is prepared, as well as subsequently when the results are available in the publication.
NHS Health Scotland (2016): “Monitoring and Evaluating Scotland’s Alcohol Strategy,” Final Annual Report, March 2016.
Public Health England (2013): “Alcohol and drugs prevention, treatment and recovery: why invest?,” PHE publications gateway number: 2013-190.
(9) Consultants play a crucial role in the delivery of NHS healthcare. However, little is understood about the extent to which patient outcomes depend on the individual consultant who is responsible for their care. This project will provide evidence on the distribution of consultant effects. IFS will meet with NHS England and the Department of Health to discuss the results of their analysis and how the model could be used to guide policy to benefit the health and social care system. The model be used for policy experiments such as “what is the impact of patient survival rates if the 5% of worst performing consultants were replaced by median-performance consultants?”. DH, NHS England or Acute Trusts may use this as a basis for deciding whether some consultants require more training, additional support from the Acute Trust, or should be moved to other positions.
Similar work has been carried out in the past in the United States and these models have been widely adopted by State hospital boards to evaluate provider performance, with positive implications for patient outcomes. By 2006, 47 states used similar models to produce publicly available ‘report cards’ for hospitals. Economic evaluations of the adoption of these hospital performance measures have indicated substantial improvements in the quality of care received by patients at previously poorly-performing providers. For example, researchers found a reduction of a third in the mortality rate of patients undergoing coronary artery bypass graft surgery in New York State between 1991 and 1997 in hospitals which had received a ‘high-mortality’ flag in the previous year (Cutler, Huckman and Landrum, 2004). Similarly, surgeon-specific report cards in Pennsylvania led to significant improvements in risk-adjusted mortality rates in the following years (Kolstad, 2013).
IFS researchers have also met with a number of policymakers to discuss a number of projects covered by this agreement. In December 2016, they met with representatives from the Competition and Markets Authority (Chief Economist) to discuss findings from projects 3,4 and 9. These discussions will inform CMA analysis relating to hospital mergers (on the consequences for technology, hospital competition and the NHS workforce). In May 2017, IFS researchers met with representatives of Public Health England (Chief Economist) to discuss work on projects 3, 4 and 5. IFS researchers also met with representatives from the Department of Health in May 2017 (Chief Economist) to discuss IFS work on health care (specifically projects 1,4,6 and 9). These discussions will help to inform future PHE and DH internal analysis on provision of NHS health care, and IFS will provide further updates to these policy makers when the results are finalised.
(10) This analysis will improve knowledge of how the four-hour target influences patient treatments and outcomes. This will enable policymakers (in particular, NHS Improvement and the Department of Health) to evaluate whether they want to continue to enforce this target, and to choose which target level they wish to implement, by clearly setting out whether the potential benefits of a stricter policy target (through reduced waiting times) are outweighed by increased distortions to treatment decisions (through excessive or insufficient admissions) and/or unfavourable patient outcomes. This is particularly important given the recent announcement (July 2016) that 53 trusts are temporarily exempt from the target.
The planned work has already been discussed with NHS Improvement’s Emergency Care Improvement team. IFS will hold further discussions with NHS Improvement to ensure that the findings are presented in a way that enables practical implementation. Benefits to commissioning (and eventually to patient care), will therefore be achieved through increasing NHS Improvement’s knowledge of the effects of the target on patient health and hospital decision-making.
(11) The 2000s saw a radical shift in policy which mandated choice for patients. This choice was enabled by changing the method of paying hospitals to activity based funding (HRGs) and encouraging the entry of private providers into the provision of services, particularly elective care for joint replacement and cataract surgery. In addition, the policy was accompanied by a large increase in the NHS budget.
The short terms impacts of these policies have been evaluated (the primarily focus has been on the period 2003-2009). But this radical change has had dynamic consequences. In addition, the financial landscape has altered to one of fiscal austerity for the NHS. IFS are now in a position to evaluate (a) whether the beneficial initial effects that were seen have had longer lasting effects and (b) the impact of running this policy in a period of fiscal austerity compared to one of fiscal generosity.
Establishing at system level whether the policy continues to bring benefits is extremely important for the design of future changes to the NHS and social care system. Essentially IFS need to know whether this policy has been able to maintain its initial gains or whether the policy can only deliver gains when there is spare capacity. This is very important at a macro-system level. Radical change is expensive and the burden is borne by the tax payer. IFS need to be able to establish whether this type of radical change has net costs for the healthcare system as a whole.
The knowledge produced by this work would enable national commissioners and policymakers to improve commissioning by better understanding the various impacts of wide-spread choice and competition policy.
(12) The NICE Clinical Guideline on Routine Postnatal Care (CG37) recommends that “All healthcare providers (hospitals and community) should implement an externally evaluated structured programme that encourages breastfeeding, using the Baby Friendly Initiative (BFI) as a minimum standard.” However, the following “Further research to evaluate the effectiveness of BFI compared to another programme, or to standard care, should be carried out.” Moreover, in a recent report commissioned by UNICEF (Renfrew et al 2012), it is clear that the strength of the evidence on the effect of breastfeeding on some health outcomes is still weak (mother: Ovarian cancer and Type 2 diabetes, child: Asthma, diabetes, leukaemia, coeliac disease, cardiovascular disease, and sepsis in the child.)
The study will provide evidence on the health benefits of breastfeeding (what diseases will decreases if breastfeeding rates improve). This knowledge will benefit commissioners because it will provide them with evidence that they can use to decide whether improving breastfeeding support services (such as BFI) will improve health and reduce future health care costs. It will also benefit NICE which has called for more research on the effectiveness of the breastfeeding support services in its guidelines. Health care providers, clinicians, as well as UNICEF will also benefit because they will learn whether the BFI initiative is effective or whether improvements are necessary.
IFS will disseminate their research through press releases, a IFS observation (non-technical document), seminars, and a peer reviewed journal article that is read by clinicians. IFS are in direct contact with UNICEF and will communicate directly the findings to them. UNICEF are in direct contact with UK health care providers, and changes to the delivery of natal care can be delivered through this channel. IFS will communicate the findings to NICE to improve the evidence base on the benefits of breastfeeding when they next update their guideline on routine post-natal care.
(13) Research spending in the UK on health is around £8 billion annually, with £3.3bn of that being publicly funded research carried out in the university and not-for-profit sectors. However, very little is known about the productivity of this investment, and what are the determinants of innovation take-up. In response to this, the Economic and Social Research Council (ESRC) joined forces with the National Institute of Health and issued a funding call to fill this gap. The network was awarded to the IFS in the UK and the NBER in the US
(http://gtr.rcuk.ac.uk/projects?ref=ES/M008673/1) in October 2014. The research specified here will allow responding to this need identified by the ESRC by studying the take-up of medical innovations.
The study will provide evidence on whether less research intensive hospitals are slower at adopting medical innovations, and the cost in terms of worse health outcomes that it causes. This will provide evidence to the Department of Health and NHS England on the benefits of recommending and adopting new technologies. This will enable national policymakers and commissioners to encourage practioners to quickly adopt new treatments, improving patient health and reducing health inequalities. This knowledge will be communicated to policymakers through the existing network of IFS contacts within these organisations, and through press-released non-technical reports.
IFS will also improve the knowledge base for commissioners of medical research (such as the Medical Research Council and Economic and Social Research Council), which will aid them to fund high-value research. IFS will communicate directly with contacts at the ESRC (as part of the network funding this research and wider existing contacts).
(14) This work will increase knowledge of the effects of breastfeeding on child health, particularly for low socio-economic status patients. This knowledge will enable national commissioners (particularly NICE) to make clearer recommendations for breastfeeding practices. This will benefit the system by improving child health and cognitive development, and potentially reducing future healthcare and education costs. IFS will communicate this knowledge to commissioners and practitioners through press-releasing the research findings, and seeking meetings with contacts at NICE.
Project (12) informs policy makers about the benefits of the UNICEF Baby Friendly Initiative, whilst project (14) informs policy makers about the benefits of breastfeeding.
Moreover, project (12) informs on the benefits measured using re-admission, A&E visits, and presentation of certain medical conditions; whilst project (14) informs on the benefits measured using children¹s cognitive development as well as health measures which are independent of health care use (anthropometric measures).
(15) The aim is to inform and influence policy making relating to emergency admissions in England in a way that improves patient care. By demonstrating how emergency admissions can negatively affect patient care, and evaluating the role of past and future policies on this, the research will enable policymakers (e.g. Department of Health, NHS Improvement) to consider options that mitigate the effects of emergency admissions on patient care. This would provide knowledge and evidence that speaks directly to immediate policy concerns about shortages of capacity in the NHS and progress has already begun in engaging policymakers on this issue (see existing outputs in the "outputs" section, purpose 15).
Cutler, D, R. Huckman and M. Landrum. (2004). The role of information in medical markets: An analysis of publicly reported outcomes in cardiac surgery.American Economic Review 94 (2): 342-346
Fergusson, D.M. and l.J. Horwood (1997) “Early Onset of Cannabis Use and Psycho-social Adjustment in Young Adults,” Addiction 92: 279-96.
Hall, W and l. Degenhardt (2009) “Adverse Health Effects of Non-medical Cannabis Use,” Lancet 374: 1383-91.
Kelly, E. and I. Rasul (2014) “Policing Cannabis and Drug Related Hospital Admissions: Evidence from Administrative Records,” Journal of Public Economics 112: 89-114.
Kolstad, J., (2013). Information and Quality When Motivation is Intrinsic: Evidence from Surgeon Report Cards, American Economic Review 2013, 103(7): 2875–2910
Marshall, K.S., l. Gowing and R. Ali (2011) “Pharmacotherapies for Cannabis Withdrawal,” Cochrane Database for Systematic Reviews 1: CD008940.
National Institute of Clinical Excellent. Routine Postnatal Care of Women and Their Babies. NICE Clinical Guideline 37. July 2006.
Renfrew MJ, Pokhrel S, Quigley M, et al. Preventing Disease and Saving Resources: The Potential Contribution of Increasing Breastfeeding Rates in the UK. London, UK: UNICEF UK2012.
Van Ours, J. (2003) “Is Cannabis a Stepping-stone for Cocaine?,” Journal of Health Economics 22: 539-54.
(1) There will be three written outputs: (i) an IFS working paper produced in the next year, which will be available on the IFS website and read by all those who use the website including government departments and academics; (ii) an academic economics journal article submitted to the Economic Journal. The Economic Journal is an international peer-reviewed Economics journal with an impact factor of 2.587 and over 900,000 article downloads in 2014. The principal audience is economics academics who will read and cite the paper; (iii) a non-technical research summary which will receive a press-release and target policy makers from the Department of Health, Monitor, NHS England and the CQC in the next year. Other outputs will include presentations at academic conferences such as the European Economists Association (EEA) Conference, which will focus on receiving comments from economists on how to improve the analysis, and presentations to policy makers involved in the planning and delivery of NHS care. Staffing constraints have meant that progress was slower than anticipated. However, the work has been discussed with the Royal College of Midwives and the North East London Sustainability and Transformation Planning Team. The results will be presented at a one-day event in September aimed at policy-makers. Written outputs are expected to follow in late 2017 and 2018.
(2) The outputs for this project are similar to those for project (1). The aims are to produce written outputs that are widely cited in the academic literature and encourage more academic work on the NHS, and non-technical summaries that will provide information for policy makers that would otherwise be unavailable or very costly for the Department of Health or Monitor to acquire. As this project is more complex, IFS expect outputs in the next 1-3 years. The model IFS produce will have the capacity to model potential policy scenarios. IFS will interact with the Department of Health to ascertain whether there are any policy scenarios they would like IFS to model to maximize the value to the Health and Social Care system. IFS has presented the work at the Royal Economic Society and European Economic Association conferences, and discussed finding with the Competition and Markets Authority. A working paper is complete. This will be published in June 2017, when the paper will be submitted to a journal.
(3) There will be two sets of outputs from this work. It was intended that the first set of work would relate to PCI use in England and the US, comparing same day and delayed PCI rates, and volumes per facility. However, this work has been on hold due to data delays in the US. The second set of work will examine the impact of the roll out of PCI centres in England on patient outcomes. Outputs will include submission to a economics journal, such as the Journal of Health Economics, and an IFS briefing note and press release. These are still on track to be delivered in the second half of 2017. Given the direct policy-relevance of this analysis, IFS will contact Department of Health, NHS England, and NICE in order to present and discuss the findings, to ensure that they are aware of the results and to check the validity of any assumptions that have been made.
(4) Some of these outputs from this project, including several conference presentations, a policy presentation and a non-technical policy summary, have already been produced under the previous license agreement. Previous conference presentations included a workshop attended by representatives from the Department of Health, Monitor, the Nuffield Trust, the Office for Health Economics, and the Kings Fund, and economics academic conferences including the Royal Economic Society conference. IFS submitted an article to the Journal of Public Economics, the leading academic publication on public economics (including health economics) in early 2017. IFS are currently waiting for a decision from the editor.
(5) The principal outputs are (i) a working paper, which was published under the IFS working paper series (see project 1) in August 2015 (https://www.ifs.org.uk/uploads/publications/wps/WP201521.pdf), (ii) an academic conference presentation in March 2015, (iii) a peer-reviewed journal article in the economics journal Fiscal Studies, which was published as part of a special issue of Fiscal Studies on cross-country comparisons of health spending across the lifecycle in November 2016 (http://onlinelibrary.wiley.com/doi/10.1111/j.1475-5890.2016.12101/full), and a non-technical, policy summary (https://www.ifs.org.uk/publications/8737). IFS will present the results in dissemination events with policymakers, funded by the Economic Social and Research Council in September 2017. Fiscal Studies is a peer-reviewed economics general with all articles explicitly aimed at bridging the gap between academic research and policy, with a reputation for publishing timely high-quality articles that are easily accessible to policymakers. A workshop to discuss preliminary findings took place in March 2015. This workshop was attended by representatives from the Department of Health, who subsequently invited IFS to present the findings at the Department. IFS have spoken to the OECD about this work, who believes it could help inform their highly influential work on cross-country comparisons of health systems. The ESRC event will be exclusively focused on policymakers, with invites to representatives of DH, Monitor and PCTs, along with members of influential health policy research groups such as the Kings Fund and Nuffield Trust. IFS expect outputs from this project in 2017.
(6) The principal outputs will be (i) academic conference presentation at the European Economists Association (EEA) Annual Conference in August 2015, the Royal Economic Society (RES) Annual Conference in March 2016, the Intertnational Institute for Public Finance (IIPF) in August 2016, and the European Association of Labour Economists (EALE) Annual Conference in September 2016, (ii) a working paper, published under the IFS working paper series, , and (iii) the submission of a peer-reviewed journal article to the Economic Journal. The benefits of these outputs are discussed above. Output (i) has already been realised. The EEA, RES, IIPF and EALE Conferences are attended by the leading economists in Europe and the USA, and in light of comments received at the conferences, the work on this project has been extended. As a result, the original target date for the publication of the working paper and journal submission was pushed back from Spring 2016 to Summer 2017. IFS have produced a non-technical policy summary for policymakers. This has been sent to the Health Foundation for comments, and will be sent to representatives of Department of Health, Monitor and NHS England in the next few months.
(7) In the first year of the project, the main outputs will be an interim report submitted to the funder: due in July 2016 on the impact analysis of the determinants of the rollout of Sure Start. The initial project planned specified that in the second year (2017), IFS would have three main outputs: (1) the final report, to be submitted to the Nuffield Foundation in February 2017; (2) an IFS working paper (see above), and (3) a related academic paper. The timeline of this project has been pushed back a year after delays in receiving essential non-HES data for the wider project (an application for local area level Health Survey for England data was submitted to NatCen and the Health and Social Care Information Centre in 2015, and is ongoing). Outputs (1), (2) and (3) are now expected in 2018. Both report and paper will be available on the IFS website. The academic paper will be targeted to a top economic journal, such as the Economic Journal (see above). The findings of the report will be disseminated by press release and an IFS policy observation (on the IFS website) in order to reach target audiences in the media and general public. A launch event will be organised at IFS, where the results will be presented and academics will be invited (experts in early years policy) and policy makers (MPs working on early years policy of the All Party Parliamentary Group) to discuss their implications. Finally, IFS will present the findings at major economics conferences (such as the Royal Economic Society, RES), to gain comments from other academics working in the same field before submission to a top-tier peer-reviewed economic journal.
(8) IFS expect written output within the next 1-3 years. This will take the following form: an academic economics journal article submitted to the American Economic Journal: Economic Policy (AEJ-EP) or the Economic Journal (EJ). Both of these journals are leading international peer-reviewed Economics journals. The principal audience is economics academics who will read and cite the paper. Other outputs will include presentations at academic conferences and seminar presentations, which will focus on receiving comments from economists on how to improve the analysis.
(9) The project is expected to produce a range of outputs, including ((i) multiple academic conference presentations to general economics (e.g. the Annual Royal Economics Society conference) and health economics audiences (e.g. the annual meeting of the UK Health Economists Study Group); (ii) an IFS working paper (see above); (iii) the submission of a journal article to a leading peer-review economics journal, such as the Review of Economic Studies (Impact Factor: 4.038) or the Journal of Health Economics (IF: 2.579); (iv) a non-technical policy summary, which will be press released and sent to contacts at the Department of Health and NHS England. The Health Economists Study Group is a work-in-progress conference attended by the leading health economists in England, and representatives from NHS England, the Department of Health and leading health policy organisations such as the Health Foundation and the Kings Fund. Their comments will give the researchers the chance to improve the analysis and focus the findings in the most informative way for policy. Output (i) has been realised in 2016 and 2017, with a number of presentations at leading UK universities (UCL, King’s College London, Oxford) and a conference presentation at the International Institute for Public Finance (IIPF) Annual Conference planned in August 2017. Outputs (ii) – (iv) have been delayed while in discussion with NHS Digital about access to workforce data. IFS aim to produce these outputs in 2018.
In the first year, the main outputs will be presentations and discussions with the Department of Health and NHS England to check the validity of the assumptions underlying the model that IFS estimate, and to identify where the model could provide information and simulations that are useful to policy-makers. As the estimation of the model is reasonably complex, written outputs are expected over the next 1-3 years. These will take three forms: (i) an IFS working paper, which will be available on the IFS website and read by all those who use the website including government departments and academics; (ii) an academic economics journal article submitted to the Economic Journal. The Economic Journal is an international peer-reviewed Economics journal with an impact factor of 2.587 and over 900,000 article downloads in 2014. The principal audience is economics academics who will read and cite the paper; (iii) a non-technical research summary which will receive a press-release and target policy makers from the Department of Health, Monitor, NHS England and the CQC in the next year. Other outputs will include presentations at academic conferences such as the European Economists Association (EEA) Conference, which will focus on receiving comments from economists on how to improve the analysis, and presentations to policy makers involved in the planning and delivery of NHS care.
From May 2017
(10) The analysis will be used to produce a range of outputs.Three types of written output are expected: (i) a working paper, published as part of the IFS working paper series, (ii) a peer-reviewed journal article submitted to a leading peer-reviewed economics journal; (iii) a non-technical research summary which will be press-released, and shared directly with NHS Improvement and the Department of Health. This work has already been discussed with economists at NHS Improvement who are also working on projects to examine the quality of care in A&E departments. Other outputs will include presentations at academic conferences and to government departments.
IFS would aim to produce a working paper and a policy report by December 2017. Articles in economics journals typically take 2-3 years from the start of the work to publication in a peer-reviewed journal. IFS would therefore expect an article to be published in 2018 or 2019.
(11) The expected outputs are similar to (1), with the publication of a working paper, submission to a peer-reviewed health/economics journal, and a non-technical summary aimed at policymakers.
(12) There will be three written outputs: (i) an IFS working paper produced in the next year, which will be available on the IFS website and read by all those who use the website including government departments and academics; (ii) an academic economics journal article submitted to an internationally recognized peer reviewed economics journal; (iii) a non-technical research summary which will receive a press release and target policy makers from UNICEF, Department of Health, Monitor, NHS England and the CQC. Other outputs will include presentations at academic conferences and presentations to policy makers involved in the planning and delivery of NHS care.
(13) There will be three types of written outputs: (i) a working paper, (ii) a submission to a peer-reviewed economics journal and (iii) a non-technical report to disseminate findings to interested policymakers and funders of national research, particularly the Medical Research Council and the Economic and Social Research Council. Outputs (i) and (iii) will be produced in 2017. Publication in a peer-reviewed journal will occur in 2018 or 2019 (due to long publishing times). IFS will also present the results to the ESRC-National Institute of Health (US) funded network on the value of Medical Research. This network meets twice a year in either the UK or the US and includes economists and medical professionals interested in the field of medical innovation.
(14) There will be three written outputs: an IFS working paper (this will update a previous version that did not include HES data), (ii) a resubmission to a leading economics journal (a previous version, without HES data, was submitted in September 2015. IFS have been invited to resubmit a new version), and (iii) a non-technical report discussing the results of the work in order to benefit policymakers, and other entities interested in breastfeeding, such as UNICEF and the National Childbirth Trust.
(15) This research project, which was previously under another data agreement, has already produced a number of outputs. This has included presentations at the Royal Economic Society, University of Manchester, University College London and Northwestern University, as well as a series of discussions with NHS Improvement and a range of NHS employees (managers, physiotherapists and nurses). These existing outputs relate to sub-objective (i), and the work will now be extended to sub-objectives (ii) and (iii). Planned outputs include a draft research paper for circulation in September 2017 and further presentations that are currently being scheduled between May 2017 and January 2018 (at various conferences, universities and at NHS Improvement). Following this the research will be published as a working paper (available via the IFS website) and submitted for publication to an academic economics journal in late-2018.
All outputs will be in aggregate and comply with the HES Analysis guide for small number suppression.
Only substantive employees of IFS will have access to the data and only for the purposes described in this document.
All outputs will be aggregated with small numbers suppressed in line with the HES analysis guide.
All processing of ONS data will be in accordance with standard ONS Terms and Conditions.
All projects are underwritten by the ESRC Centre for Public Policy at the IFS. In addition, there are some additional funding streams.
1,2 and 4 are covered by ESRC through the principle researchers ‘Future Leaders’ grant
3 and 13 are funded by an ESRC funded grant on Health Network
7 is funded by the Nuffield Foundation
IFS confirm that none of the funders exert any influence over the projects and outputs.
No data (other than aggregated data and small numbers suppressed) will flow outside the UK. This is particularly in relation to projects 3 and 13, but also applies to all the other projects described
The IFS will not attempt, nor have a requirement to re-identify individuals in the data supplied by NHS Digital
Processing activities for each project:
(1) Part 1 will model changes in the probability that a woman gives birth in her nearest maternity hospital) over the past decade. IFS will assess whether women with certain characteristics (older, or from different types of areas) are more likely to bypass their nearest hospital, or whether patients travel further for maternity care at a teaching hospital. Part 2 will focus on patients who have at least two HES maternity records, and examine whether care offered during the birth of the first child affects the mother’s choice of hospital for subsequent births. There are a range of factors that could affect both the ease of childbirth and where a mother decides to give birth to subsequent children that are unrelated to the care she received, for example, her age. IFS will therefore isolate random variations in treatment, which could be used to identify the impact of health care provision. Possible examples include whether the mother gives birth at a weekend or public holiday, the number of other babies born at the same hospital on the same day. The data will be used to create a sample of women who gave birth in NHS hospitals. The pseudonymised ID will be used to identify whether, where and when these women give birth again. The data will then be used to estimate statistical models to assess which factors around the time of the first birth affected the subsequent patterns that are identified. All work is conducted using the statistical software package Stata.
The HES data may be linked to aggregated geographical data relating patient or hospital. Examples include the number of women of childbearing or number of hospitals within the local area. These data do not contain any additional information about the individuals themselves. Any additional data would be added to the statistical model.
An example of a publicly available geographical data to be linked would be ONS population statistics (http://www.ons.gov.uk/ons/publications/re-reference-tables.html?edition=tcm%3A77-315018). HES data may be linked to aggregated data at the level of the hospital (for example, whether the hospital has an alongside maternity unit) or the geographical area of the patient/hospital (For example the number of hospitals within the local area). Again, these data do not contain any additional information about the individuals themselves. Any additional data would be added to the statistical model. IFS would like add extra characteristics of the hospitals, as these characteristics might affect the hospital choice of mothers.
(2) Episode level data on NHS funded elective hip replacements will be used to estimate a statistical model of hospital choice. The model will be extended to take into account observed and unobserved sources of patient heterogeneity (differences in preferences).
As it is expected that clinical need will be a crucial input into individual patient decision making, the HES and PROMS datasets will be linked. This linkage will enable the production of a model that takes patient need into account and therefore provide more accurate analysis and predictions. PROMs data are also required over this period in order to understand how the clinical benefits following joint replacement surgery has changed over time, particularly in light of the independent sector reforms. This is essential for an analysis which estimates the implications for population health following the huge increases in the volume of joint replacements observed in the ten years prior (i.e. IFS can examine whether the clinical benefit for patients has increased or decreased as a result of greater availability of hip and knee replacements. This will help to analyse whether the independent sector reforms have increased the welfare of NHS patients).
(3) IFS will calculate the percentage of patients receiving a PCI within 1 day and within 30 days of a first admission for an AMI, and compare these rates to those in the United States. IFS will also calculate these rates by region and PCT/CCG. These data will not contain rates based on fewer than 50 patients to ensure that the data are not disclosive. It will be necessary to calculate rates back to 2000 to understand whether the countries have been converging or diverging overtime as the treatment became more widespread in the early 2000s. IFS require the most recent data as the preferred journal requires data from the past 5 years to be included. As England had a large expansion in 24/7 PCI centres after 2008 following The National Infarct Angioplasty Project (NIAP), IFS have collected the months and years that each centre opened. IFS will document the resulting changes in PCI rates, and use these changes to understand how PCI and the NIAP proposals have affected patient outcomes, such as 30 day in hospital mortality and readmissions for subsequent AMI. This analysis will allow IFS to understand both the effectiveness of the NIAP proposals in England, and to understand the extent to which this roll-out explains the falling AMI mortality differences between the United States and England. IFS will not publish any statistics using HES that link to particular hospitals, or samples of patients fewer than 20.
(4) IFS will model the relationship between the total number of NHS funded elective hip replacements in a middle super output area in a given year, and the introduction of Independent Sector Providers. IFS will compare the same area over time, and compare across areas by distance to the nearest independent sector provider offering hip replacements, relative to the nearest Acute Trust providing hip replacements. Data will be combined with publicly available area level and GP practice characteristics, in order to examine variation in outcomes or behaviour, or to control for potentially confounding factors at the area level. Publicly available area level data includes measures of population size and levels of deprivation. These variables are used in area-level regressions as control variables. This includes population data (available from the Office for National Statistics and local deprivation scores made available for public use by the Department for Communities and Local Government). IFS require data back until at least 2000, as the policy to increase and formalise the role of the Independent Sector began in 2003, and the ability to study a comparison group is essential to accurately identify the impact of the policy.
(5) IFS will examine the age profile of English hospital spending across the period between 1997/98 and 2013/14. Using the Health Resource Group (HRG) variable in the inpatient HES dataset, IFS can allocate costs for all inpatient activities to different age groups. Using publically available data on the English population, the average spending per individuals of a given age can be derived. IFS will then examine how this develops over time, providing evidence on whether average spending for individuals of a given age has changed over time (i.e. is the average spend for a 70 year old male in 1997/98 different to a 70 year old male in 2013/14).
The pseudonymised HES indicator will be used to track the use of hospital care for a random sample of individuals in each year of the data. This will allow an estimate of total healthcare expenditure for individuals over the entire period, providing a measure of “lifetime medical spending” for older individuals. It also allows IFS to examine the correlation between health spending in one year and another (i.e. does health spending in one year predict health spending in the next, or five years later etc).
Individuals who die in hospital are recorded in HES (through the discharge method variable). For individuals who die in hospital, IFS can examine the amount (and cost) of hospital care received in the final year(s) of life. In this way, IFS can estimate the amount and the share of hospital expenditures that are incurred in the final year of life. These estimates can then be compared to the findings of other researchers who are conducting a comparable analysis on similar data in other countries such as the USA and other European countries (Note: IFS will not combine the data with these other researchers, but only examine regression coefficients and the findings of this research).
IFS require data back to 1997/98 to provide the longest time series possible over which you can track individuals using the HES identifier. This will (i) provide the largest history for individuals (and therefore acts as the best proxy for lifetime use of the service) and (ii) provides a significant period of time over which to examine how the distribution of spending across ages has developed (i.e. IFS can examine whether the average 70 year old in 2013/14 uses more healthcare than a 70 year old in 1997/98).
(6) IFS will model the impact of rapid immigration on the demand for accident and emergency services by comparing the change in (i) inpatient admittances for ambulatory care sensitive (ACS) conditions and (ii) visits to A+E, across local authorities with different changes in the concentration of foreign born residents (population data at the local authority level is sourced from the publicly available UK Labour Force Survey). Admittances for ACS conditions are derived from OPCS-4 codes. A similar exercise will be conducted with admittances for maternity patients, comparing the number of birth episodes recorded by inpatient HES across these regions. IFS will then also examine the number of 30 day readmissions for newborn children across these areas, using the pseudonymised HES identifier, to examine whether the quality of maternity care has deteriorated in an observable way in areas where the population has rapidly grown. This will provide evidence on whether NHS trusts adapts quickly to changes in the size and the characteristics of the population which they treat. HES A&E data is required for the most recent period of time in order to understand the use of the service during a period which has witnessed significant changes in the size, and composition, of the English population. This provides sufficient variation in the data to attempt to estimate causal impacts of population change on demand for, and quality of, A&E services.
(7) The same personnel who currently process data for projects involving all HES records will create a dataset that contains only admissions for individuals under the age of 30. The dataset will be placed in a separate secure area for the project team to use, so that they are able to access only the data needed for the project.
To investigate the relationship between Sure Start and hospital admissions, IFS will merge information on the location of Sure Start Centres into HES using LSOA identifiers. IFS will then test whether cohorts exposed to Sure Start (both overall and accounting for intensity of exposure) are less likely to experience hospitalisations and outpatient visits (all-cause and cause-specific) and A&E admissions (from 2007-08 onwards). The two sets of treatment and control groups will be compared: those who lived at ages 0-4 (i) in areas that implemented Sure Start earlier vs. later and (ii) in areas that experienced larger vs. smaller expansions of Sure Start.
To understand the roll out of Sure Start, IFS will examine the determinants of the timing (the year of opening of the first Sure Start Centre in a given Local Authority (LA)) and the intensity (the number of Sure Start Centres in a given LA per year) of the rollout. This will include pre-programme levels and trends in hospitalisations and outpatient visits (all-causes and cause-specific) among the determinants.
(8) The same team who currently process data for projects involving all HES records will create a dataset that contains only drug related admissions.
Episode level data on hospital admissions will be used to compute the frequency of drug-related hospital admissions. This will focus on cannabis related hospital admissions as well as other drug-related and alcohol-related admissions, and will be computed by time period (monthly and yearly) and region (especially TV region equivalents, the regional level at which the tobacco sales data are available) , and in relation to demographic characteristics (such as age group and gender). The output of the analysis will be aggregate data (by region, time period, and for demographic groups), with small numbers suppressed in line with HES analysis guide. This will then be compared with the incidence of cannabis-related hospital admissions to estimates of cannabis market size, which are constructed from other data sources (especially sales data for tobacco-related products). Overall, this will allow IFS to compare market-size estimates to admission based estimates of heavy drug consumption for cannabis, as well as other drugs and alcohol, and to test the relationship between these variables across regions and over time. As the sample sizes are likely to be small, IFS will ensure that only aggregate numbers are reported and any small numbers are suppressed.
(9) IFS will use episode level data to compare 30-day in-hospital mortality rates of patients treated by different consultants following admission to an NHS hospital for an AMI or stroke. Admittances for AMI and stroke are derived from ICD-10 diagnosis codes contained in HES. Consultants are assigned to patients in HES using the anonymised consultant ID (variable ‘pconsult’). Patients who die in hospital are recorded in inpatient HES (through the discharge method variable). Anonymised patient IDs will be used to examine whether patients who are discharged but then readmitted during the 30 day period following the initial admission die in a subsequent hospital spell.
The analysis requires the construction of detailed control variables to account for differences in the underlying health of patients treated by different consultants and hospitals. Failing to account for these differences will lead to inaccurate estimates of the effects that each consultant has on patient outcomes. Detailed measures of health conditions and past hospital use are therefore essential for this analysis. IFS will derive a range of clinical indicators using the ICD-10 diagnosis codes in HES, and use these to create the Charlson Index to capture patient morbidity. Using data from 1997/98 – 2014/15, IFS will use the anonymised patient identifier to track patient inpatient admissions and outpatient attendances over time in order to construct detailed histories of patient hospital use. Using the Health Resource Group (HRG) variable in the inpatient HES dataset, IFS can allocate costs for each of these activities to summarise past hospital use. IFS will also create a variable for each year which indicates whether a patient has been treated for a heart attack or stroke in a previous year. Previous research has shown that a major determinant in survival following a heart attack is the amount of time that elapses between onset and treatment, and the distance that patients need to travel to reach a hospital for treatment. This will be addressed by examining the distance between the Lower Super Output Area of patient residence and the hospital in which they are treatment. In addition, for the period 2007/08 – 2014/15, IFS will use the Accident and Emergency data to examine whether the onset occurred at home (variable ‘aeincloctype’) and the time that elapsed between arrival at hospital and admission (variable ‘tretdur’).
In order to separately estimate the impact of consultants from the hospitals in which they work, the analysis needs to control for differences in the types of patients treated by different hospitals. It also requires the observation of consultants working in different hospitals over time. IFS will address the first point by combining publicly available aggregated geographical data relating to the socio-economic status and population health to summarise the characteristics of the patient population served by each hospital. Inpatient HES data will also be used to create other indicators of patient health and quality of local primary care (e.g. the admission rates for ACS conditions in the local area), and the quality of other care provided in the hospital (e.g. hospital level readmission rates for elective hip replacements). In addition, for the period 2007/08 – 2014/15, Accident and Emergency data can be used to separately analyse the outcomes for patients who arrived at the hospital in an ambulance (contained in variable ‘aearrivalmode’). This would allow analysis on a subset of patients for which it is certain that patient did not choose the hospital in which they were treated, and therefore rules out matching of (otherwise unobservably sicker) patients to hospitals which could potentially bias results.
The second point is addressed by following consultants across hospitals over time, through the use of anonymised consultant team variable (‘pconsult’). This allows a comparison of patient outcomes when treated by the same consultant but in a different setting.
IFS require inpatient and outpatient data back to 1997/98 for two reasons. First, the analysis relies on consultants moving across hospitals over time. Using the longest available period of data will capture substantially more movement in staff across hospitals, and will maximise the sample of patients whose outcomes can be studied. This will increase the precision of the estimates. Second, the panel element of the data will be used to construct detailed histories of hospital use for patients. This will improve the accuracy of the analysis by controlling for a broad range of factors in the underlying health of patients. IFS requires A&E data back to 2007/08 to supplement the analysis of inpatient and outpatient data. Using the full period of available data will maximise the number of patients for which full information on care received from arrival at hospital to discharge is available. Information on the use of an ambulance will provide a subset of patients who IFS can reasonably assume have no choice over the hospital they attend. IFS will the conduct the analysis for the period between 2007/08 and 2014/15 both with and without use of the additional information of the method of transport to examine whether patients who do not use ambulances selectively sort into particular hospitals. The analysis can then be extended to earlier years (prior to A&E data availability) with a better understanding of whether patient sorting between hospitals occurs.
The analysis on the role of independent sector providers within the NHS requires inpatient HES data up to 2013-14. When examining the impact of these reforms, it is essential to understand whether the trends seen between 2000-1 and 2010-11 continue between 2010-11 and 2013-14. This is a period of time in which (i) NHS funding was relatively restrained and (ii) the wider economy was recovering from a large recession in the preceding years. As a result, to evaluate the impact of the reform on patient health and the quality of NHS services provided, it is crucial to examine the longer term impacts of the reforms. For the work on heart attack treatment, IFS intend to submit this work to the Journal of the American Medical Association, which has a strong preference for work that covers the past 5 years.
Importantly, in all cases the ability to conduct research on the most recent years of data is crucial for the analysis to be both timely and relevant. This maximises the impact of this research on feeding into current policy debates such as the extent to which private providers are used within the NHS, and how the NHS has responded to the challenges posed by a growing and ageing population.
All outputs from each project will contain only aggregate outputs with small numbers suppressed. IFS report aggregate summary statistics (i.e. total number of women giving birth in NHS hospitals in 2010/11) and regression coefficients from large-sample regressions. No record level data will be shared with third parties.
Episode level data on NHS funded elective hip replacements will be used to estimate a statistical model of hospital choice. The model will be extended to take into account observed and unobserved sources of patient heterogeneity (differences in preferences).
(10) IFS will use the A&E HES data from 2010/11 - 2015/16 (at record level) only to study whether the probability of inpatient admission changes for patients who are admitted during a period close to the four-hour waiting limit. This will be achieved by computing the counterfactual probability of admission in the absence of the target. IFS will calculate this counterfactual by estimating a polynomial regression (regressing admission on the period of admission) for all patients who are feasibly not affected by the target (e.g. all patients admitted/discharged from A&E between 0 – 180 minutes, and after 240 minutes). IFS will use data on patient characteristics and investigations/symptoms contained in the A&E data, along with diagnosis codes for admitted patients (in their APC HES records) to examine how the characteristics of patients vary with time.
APC HES records will be used to examine how treatment intensity varies across patients who are admitted at different points of time. For example, IFS will examine whether length of stay for inpatients admitted after a shorter period of time in the A&E department are different from those who are admitted after waiting for longer. IFS will also examine how the probability of readmission to hospital varies across these individuals.
IFS will use the linked HES-ONS mortality data (at patient record level) to examine whether the probability of death varies across individuals who are admitted or discharged after different waiting times. In-hospital mortality could be recovered from unlinked HES. However, out-of-hospital mortality may also change as a result of the policy. The inclusion of the ONS mortality data would therefore allow all-location mortality outcomes to be examined. IFS will also examine the underlying cause of death, to investigate whether cause of death is the same as the major diagnoses when patients recently visited hospital.
(11) IFS will construct trust level measures of quality of care for different services at annual level between 2000 and 2014. These measures of service quality will be related to changes in admissions for these services. IFS will examine changes over a long period to allow them to follow dynamic effects of the policy shift towards competition and choice. IFS will focus on specific services which have been examined previously in international and national studies, and include treatment for the following conditions: Acute Myocardial Infarction (AMI), heart failure, pneumonia, and hip and knee replacements. For each condition, IFS will create site and trust level measures of outcome quality (risk adjusted 30-day survival rates and risk-adjusted 30-day readmission rates), and condition-specific measures of process of care which capture the hospital’s conformance with established clinical guidelines for care (e.g. for AMI this includes the administering of aspirin, ACE inhibitors, smoking cessation advice, beta blockers, and angioplasty).
Patient data at the record-level will be required to (a) construct risk adjustors and (b) to allow separate analysis of the data by local-area deprivation status (measured by IMD), in order to examine whether patients of lower Socio-economic status (SES) gained less or were harmed by these policies. This is an important component of the analysis and hence the need for HES record level data.
IFS will also match nationally published data on quality and processes of care from other sources at the trust level. These sources include data from MINAP (for treatment of AMI and heart attack patients); the health care regulator; published trust level PROMS data (for joint replacements); staff satisfaction (from the annual staff satisfaction survey) and patient satisfaction. These data will not allow IFS to examine within trust across patient SES type differences as they are aggregate data at trust level.
(12) Data on UNICEF Baby Friendly hospitals (including the date in which the status was acquired) will be obtained from UNICEF. The data will be merged with individual-level records for babies from inpatient HES, using the site code (procode5) to identify hospitals. IFS will estimate multivariate regressions of health outcomes and care use (re-admission, A&E visits, presentation of certain conditions) to examine whether hospitals that are compliant with the UNICEF Baby Friendly Initiative deliver better patient outcomes. The use of hospital fixed effects will allow IFS to control for endogenous placement of the UNICEF initiative (e.g. better or worse hospitals are systemically enrolled in the initiative). Publicly available information on the socio-economic status of the population at the local area level (e.g. the ONS created Index of Multiple Deprivation at the Middle Layer Super Output Area) will be merged with the hospital data to capture differences in patient characteristics across areas. HES records will also be merged with data IFS have collected on the community service providers that comply with the UNICEF Baby Friendly Initiative, using the postcode of the community service and the postcode of the General Practitioner of the patient. IFS will then conduct the same type of analysis previously outlined at the hospital level for community services.
(13) IFS will use publicly available bibliographic sources (e.g. PubMed, Web of Science, academic journal websites) to calculate the number of publications authored each year by staff employed by each NHS trust. This will be merged with hospital-level inpatient and outpatient HES data and A&E records to identify key medical treatment innovations in the period between 1997 and 2015. IFS will use this to estimate whether the health outcomes (e.g. mortality, readmission, A&E visits) of patients who are treated for conditions associated with these medical innovations improved more rapidly over time in research-intensive hospitals (as measured by the number of topic-specific publications)
(14) IFS will calculate the 30-day hospital readmission and in hospital mortality rate for children born on each day of the week, using inpatient HES data from September 2000 to August 2001. IFS will then uses these figures to compare readmission and in hospital mortality rates for children born Friday - Sunday, to children born Monday - Thursday. Only aggregate figures will be published (by day of the week), ensuring that large sample sizes are used in all cases. This will be used to supplement existing work on this project which makes use of the Millennium Cohort Study, 2005 Infant Feeding Survey, and 2007 Maternity Users Survey (note, IFS will not link individual level HES records to individual records in any of these survey (Millennium Cohort Study, 2005 Infant Feeding Survey , 2007 Maternity Users Survey).
(15) The project will use inpatient data for the years 1997 to 2010 and A&E data for the years 2007 to 2010. Data will be extracted for trauma and orthopaedic departments, identified using consultant specialty information. Sub-objectives (i) and (ii) will involve building statistical regression models that compare the number of emergency admissions at each hospital with patient outcomes at that hospital. Sub-objective (ii) will assess how this statistical relationship has changed over different time periods and hospitals, for example before and after the introduction of Payment by Results in 2004. Sub-objective (iii) will involve linking the inpatient and A&E data to establish which patients at trauma and orthopaedic departments arrived by ambulance. Statistical models will then be used to evaluate how the number of emergency admissions, and the associated impact on patient outcomes, would change if ambulances were to assign patients to hospitals differently or if certain A&E departments were to close.
This application covers data from 1997/98 to 2016/16. It is important to have data that covers this period for three key reasons. First, a number of the research aims are to investigate the impact associated with different policy changes that have taken place during this period. In each case, IFS need data from before and after the policy change. For example, project (4) studies the impact of introducing private providers into the NHS market for elective care, which took place as part of a set of reforms throughout the 2000s. Having data from before, during and after this period is essential in understanding the changes that took place as a result of these reforms. Second, data from 1997/98 to 2016/17 will provide the longest time series possible. This will allows IFS to better understand trends in NHS activity over time (e.g. in project (5) this allows IFS to examine how NHS activity has developed across birth cohorts, and in project (11) to examine whether the impact of competition has changed over this period. Finally, using data from multiple years helps to maximise sample size. This is crucial in boosting the statistical power of the research, helping to accurately identify and estimate effects. As a result, these data requirements are essential in allowing IFS to carry out the proposed research.