NHS Digital Data Release Register - reformatted

This is a readable version of NHS Digital's Data Release Registers since April 2016 - the "complete" list of where NHS Digital sends data on hospital patients after being paid a processing fee, and whether that release respected opt outs or not. To make that choice for you and your family, medConfidential has details on how.

A small number of other data uses in COVID-19 is available from NHS Digital, in addition to an incomplete spreadsheet from NHS England withholding most data uses.

This page is updated roughly monthly when NHS Digital publish more data. This page doesn't currently include anything from the cancer registry, whose release register is incomplete and wrong (e.g. when NDRS says 'You can find out more about these research projects here' many organisations simply weren't listed).

Did they respect the opt out (or sell your data anyway)?

For the last month we know about (2022/05), NHSD chose to respect optouts in 51% of 887 data releases.
Was the National Data Opt Out respected:

  • 440: No - "Does not include the flow of confidential data"
  • 193: Statutory exemption to flow confidential data without consent
  • 89: Yes
  • 57: Section 251 NHS Act 2006
  • 51: Mixture of confidential data flow(s) with consent and "non-confidential" data flow(s)
  • 46: Consent (Reasonable Expectation)
  • 11: Mixture of confidential data flow(s) with support under section 251 NHS Act 2006 and non-confidential data flow(s)

Some organisations that breached the rules:

Organisations with projects that fully ignored opt outs since 2018:

244 organisations since 2018.


Organisations with projects that (partially or fully) honoured opt outs:

279 organisations (56 possibly dangerously if outside the TRE).

Projects above are ordered by volumes of data they receive (longer projects or more data appear higher).

CSU/CCGs

These are grouped in the release register, but audited (and fail) independently

  • NHS Liverpool CCG
  • NHS Wakefield CCG
  • NHS Gloucestershire CCG
  • NHS Calderdale CCG
  • NHS East Riding Of Yorkshire CCG
  • NHS Bedfordshire Ccg
  • NHS Buckinghamshire CCG
  • NHS East Lancashire CCG
  • NHS Heywood, Middleton And Rochdale CCG
  • NHS Birmingham And Solihull CCG
  • NHS Leeds CCG
  • NHS East Berkshire CCG
  • NHS Derby And Derbyshire CCG
  • NHS Fareham And Gosport Ccg
  • NHS Sunderland CCG
  • NHS Bolton CCG
  • NHS Berkshire West CCG
  • NHS Brighton And Hove CCG
  • NHS Milton Keynes Ccg
  • NHS Bristol, North Somerset And South Gloucestershire CCG
  • NHS South Tyneside CCG
  • NHS Greater Preston CCG
  • NHS Fylde And Wyre CCG
  • NHS Manchester CCG
  • NHS South Warwickshire Ccg
  • NHS Kernow CCG
  • NHS Southport And Formby CCG
  • NHS Telford And Wrekin Ccg
  • NHS Barking And Dagenham Ccg
  • NHS Coventry And Rugby Ccg
  • NHS Sandwell And West Birmingham Ccg
  • NHS Sheffield CCG
  • NHS Oxfordshire CCG
  • NHS Devon CCG
  • NHS North East Lincolnshire CCG
  • NHS Doncaster CCG
  • NHS Blackpool CCG
  • NHS Tameside And Glossop CCG
  • NHS Blackburn With Darwen CCG
  • NHS Guildford And Waverley Ccg
  • NHS Chorley And South Ribble CCG
  • NHS East Leicestershire And Rutland CCG
  • NHS Rotherham CCG
  • NHS Somerset CCG
  • NHS Halton CCG
  • NHS Stockport CCG
  • NHS East And North Hertfordshire CCG
  • NHS Dudley Ccg
  • NHS North Cumbria CCG
  • NHS Northumberland CCG
  • NHS West Lancashire CCG
  • NHS Wolverhampton Ccg
  • NHS North Lincolnshire CCG
  • NHS Trafford CCG
  • NHS Eastern Cheshire Ccg
  • NHS Herts Valleys CCG
  • NHS Luton Ccg
  • NHS Bassetlaw CCG
  • NHS Hull CCG
  • NHS Dorset CCG
  • NHS Morecambe Bay CCG
  • NHS Basildon And Brentwood CCG
  • NHS Barnsley CCG
  • NHS Newcastle Gateshead CCG
  • NHS North Tyneside CCG
  • NHS Walsall Ccg
  • NHS Vale Of York CCG
  • NHS Brent Ccg
  • NHS Warrington CCG
  • NHS Ipswich And East Suffolk CCG
  • NHS East Surrey Ccg
  • NHS North Kirklees Ccg
  • NHS Airedale, Wharfedale And Craven Ccg
  • NHS Surrey Heath Ccg
  • NHS North East Hampshire And Farnham Ccg
  • NHS West Essex CCG
  • NHS Hambleton, Richmondshire And Whitby Ccg
  • NHS South Sefton CCG
  • NHS Swindon Ccg
  • NHS St Helens CCG
  • NHS Bury CCG
  • NHS Knowsley CCG
  • NHS Cambridgeshire And Peterborough CCG
  • NHS Greater Huddersfield Ccg
  • NHS West Norfolk Ccg
  • NHS Lincolnshire East Ccg
  • NHS Bexley Ccg
  • NHS Midlands And Lancashire Commissioning Support Unit
  • NHS North Durham Ccg
  • NHS Scarborough And Ryedale Ccg
  • NHS Ashford Ccg
  • NHS Cheshire CCG
  • NHS Corby Ccg
  • NHS Barnet Ccg
  • NHS South Kent Coast Ccg
  • NHS Croydon Ccg
  • NHS Darlington Ccg
  • NHS Islington Ccg
  • NHS Dartford, Gravesham And Swanley Ccg
  • NHS Rushcliffe Ccg
  • NHS Thanet Ccg
  • NHS Durham Dales, Easington and Sedgefield CCG
  • NHS Canterbury And Coastal Ccg
  • NHS Bath And North East Somerset Ccg
  • NHS West Kent Ccg
  • NHS Harrogate And Rural District Ccg
  • NHS Portsmouth CCG
  • NHS West Hampshire Ccg
  • NHS Swale Ccg
  • NHS South Eastern Hampshire Ccg
  • NHS North Hampshire Ccg
  • NHS Erewash Ccg
  • NHS Bradford District And Craven CCG
  • NHS Haringey Ccg
  • NHS Vale Royal Ccg
  • NHS Herefordshire Ccg
  • NHS Hardwick Ccg
  • NHS South Worcestershire Ccg
  • NHS Medway Ccg
  • NHS Shropshire Ccg
  • NHS Redditch And Bromsgrove Ccg
  • NHS Crawley Ccg
  • NHS Wyre Forest Ccg
  • NHS Hartlepool And Stockton-on-tees Ccg
  • NHS Herefordshire And Worcestershire CCG
  • NHS North Yorkshire CCG
  • NHS Surrey Heartlands CCG
  • NHS South Tees Ccg
  • NHS Tees Valley CCG
  • NHS Northamptonshire CCG
  • NHS Kent And Medway CCG
  • NHS South East London CCG
  • NHS County Durham CCG
  • NHS North Central London CCG
  • NHS South West London CCG
  • NHS Bath And North East Somerset, Swindon And Wiltshire CCG
  • NHS Enfield Ccg
  • NHS East Staffordshire CCG
  • NHS Norfolk And Waveney CCG
  • NHS Lincolnshire CCG
  • NHS Salford CCG
  • NHS Hampshire, Southampton And Isle Of Wight CCG
  • NHS South Cheshire Ccg
  • NHS North Derbyshire Ccg
  • NHS Southern Derbyshire Ccg
  • NHS Oldham CCG
  • NHS Leicester City CCG
  • NHS Arden And Greater East Midlands Commissioning Support Unit
  • NHS Wigan Borough CCG
  • NHS Wirral CCG
  • NHS Southampton Ccg
  • NHS Nottingham And Nottinghamshire CCG
  • NHS Southwark Ccg
  • NHS Greenwich Ccg
  • NHS Lincolnshire West Ccg
  • NHS South West Lincolnshire Ccg
  • NHS South Norfolk Ccg
  • NHS North Norfolk Ccg
  • NHS Bradford Districts Ccg
  • NHS Bradford City Ccg
  • NHS North And East London Commissioning Support Unit
  • NHS West Cheshire Ccg
  • NHS Stafford And Surrounds CCG
  • NHS Wiltshire Ccg
  • NHS Stoke On Trent CCG
  • NHS Redbridge Ccg
  • NHS South Lincolnshire Ccg
  • NHS Norwich Ccg
  • NHS Cannock Chase CCG
  • NHS North Staffordshire CCG
  • NHS Warwickshire North Ccg
  • NHS Bedfordshire, Luton And Milton Keynes CCG
  • NHS West Sussex CCG
  • NHS North East Essex CCG
  • NHS Waltham Forest Ccg
  • NHS Richmond Ccg
  • NHS Lewisham Ccg
  • NHS Black Country And West Birmingham CCG
  • NHS Kingston Ccg
  • NHS Bromley Ccg
  • NHS Harrow Ccg
  • NHS Surrey Downs Ccg
  • NHS Havering Ccg
  • NHS Great Yarmouth And Waveney Ccg
  • NHS South East Staffordshire And Seisdon Peninsula CCG
  • NHS West Leicestershire CCG
  • NHS Newark And Sherwood Ccg
  • NHS Mansfield And Ashfield Ccg
  • NHS Nottingham North And East Ccg
  • NHS Nene Ccg
  • NHS Frimley CCG
  • NHS Thurrock CCG
  • NHS Northern, Eastern and Western Devon CCG
  • NHS Nottingham West Ccg
  • NHS Lambeth Ccg
  • NHS Nottingham City Ccg
  • NHS North Of England Commissioning Support Unit
  • NHS Kirklees CCG
  • NHS West Suffolk CCG
  • NHS Hambleton, Richmond and Whitby CCG
  • NHS Mid Essex CCG
  • NHS Southend CCG
  • NHS Ealing Ccg
  • NHS Horsham And Mid Sussex Ccg
  • NHS Shropshire, Telford And Wrekin CCG
  • NHS Coventry And Warwickshire CCG
  • NHS North West London CCG
  • NHS West London Ccg
  • NHS Hammersmith And Fulham Ccg
  • NHS Hounslow Ccg
  • NHS Hillingdon Ccg
  • NHS Central London (westminster) Ccg
  • NHS Eastbourne, Hailsham & Seaford Ccg
  • NHS Isle Of Wight Ccg
  • NHS Tower Hamlets Ccg
  • NHS North East London CCG
  • NHS Hastings And Rother Ccg
  • NHS Wandsworth Ccg
  • NHS Merton Ccg
  • NHS High Weald Lewes Havens Ccg
  • NHS Leeds South And East Ccg
  • NHS South Devon And Torbay Ccg
  • NHS Camden Ccg
  • NHS Sutton Ccg
  • NHS Slough Ccg
  • NHS Coastal West Sussex Ccg
  • NHS North West Surrey Ccg
  • NHS Castle Point And Rochford CCG
  • NHS Chiltern Ccg
  • NHS Newham Ccg
  • NHS South Reading Ccg
  • NHS Windsor Ascot And Maidenhead Ccg
  • NHS Herts Valley Ccg
  • NHS Leeds West Ccg
  • NHS Leeds North Ccg
  • NHS Bracknell And Ascot Ccg
  • NHS Castlepoint And Rochford Ccg
  • NHS Cumbria Ccg
  • NHS Southampton City CCG
  • NHS North And West Reading Ccg
  • NHS Wokingham Ccg
  • NHS Central Manchester Ccg
  • NHS Central Midlands Commissioning Support Unit
  • NHS Bristol Ccg
  • NHS Northern Eastern Western Devon Ccg
  • NHS Aylesbury Ccg
  • NHS Newbury And District Ccg
  • NHS City & Hackney Ccg
  • NHS Cambridge And Peterborough Ccg
  • NHS Solihull Ccg
  • NHS North Somerset Ccg
  • NHS South Gloucestershire Ccg
  • NHS South Manchester Ccg
  • NHS City and Hackney CCG
  • NHS North Manchester Ccg
  • NHS Birmingham South And Central Ccg
  • NHS South, Central and West Commissioning Support Unit
  • NHS Durham Dales, Easington & Sedgefield Ccg
  • NHS Lancashire North Ccg
  • NHS South East Staffs And Seisdon Peninsular Ccg
  • NHS Birmingham Cross City Ccg
  • NHS Eastbourne, Hailsham and Seaford CCG
  • NHS East Sussex CCG
  • NHS Aylesbury Vale Ccg
  • NHS Birmingham Crosscity Ccg
  • Csus, Ccgs
  • NHS Windsor, Ascot And Maidenhead Ccg
  • NHS Bracknell And Ascot Ccg
  • NHS Newbury And District Ccg
  • NHS Fylde & Wyre Ccg
  • NHS Central London CCG
  • Central Southern Commissioning Support Unit
  • NHS South Commissioning Support Unit