NHS Digital Data Release Register - reformatted
This is a readable version of NHS Digital's Data Release Registers since April 2016 - the "complete" list of where NHS Digital sends data on hospital patients after being paid a processing fee, and whether that release respected opt outs or not. To make that choice for you and your family, medConfidential has details on how.
A small number of other data uses in COVID-19 is available from NHS Digital, in addition to an incomplete spreadsheet from NHS England withholding most data uses.
This page is updated roughly monthly when NHS Digital publish more data. This page doesn't currently include anything from the cancer registry, whose release register is incomplete and wrong (e.g. when NDRS says 'You can find out more about these research projects here' many organisations simply weren't listed).
Did they respect the opt out (or sell your data anyway)?
For the last month we know about (2022/04), NHSD chose to respect optouts in 53% of 809 data releases.
Was the National Data Opt Out respected:
- 387: No - "Does not include the flow of confidential data"
- 169: Yes
- 168: Statutory exemption to flow confidential data without consent
- 71: Consent (Reasonable Expectation)
- 11: Mixture of confidential data flow(s) with support under section 251 NHS Act 2006 and "non-confidential" data flow(s)
- 3: Section 251 NHS Act 2006
Some organisations that breached the rules:
- Imperial College multiple breaches, remains high risk as dangers persist.
- University College London (UCL) [Opt outs honoured: No, SMLS reported a DPA serious incident; breached contract — audit report]
- Methods Analytics Ltd [Opt outs honoured: No, breached contract — audit report]
- Harvey Walsh Ltd [Opt outs honoured: No, unreported DPA breaches; breached contract — audit report]
- Wakefield Council [Opt outs honoured: No, breached contract (access/storage breaches) — audit report]
- London Borough Of Enfield [Opt outs honoured: No, unreported DPA serious incident — audit report]
- Health IQ Ltd [Opt outs honoured: No, breached contract — audit report]
- University of Nottingham [Opt outs honoured: partially, breached contract (and anonymisation code) — audit report]
- Device Access UK Ltd [Opt outs honoured: No, breached contract with "high risk" — audit report]
- Gateshead Metropolitan Borough Council [Opt outs honoured: No, breached contract (retained 'deleted' data) — audit report]
- Rod Gibson Associates Ltd [Opt outs honoured: No, breached contract (used DropBox) — audit report]
Organisations with projects that fully ignored opt outs since 2018:
242 organisations since 2018.
- Monitor
- Methods Analytics Ltd
- NHS England (quarry House)
- National Audit Office
- The Health Foundation
- Harvey Walsh Ltd
- Wilmington Healthcare
- Carnall Farrar Limited
- Chks Limited
- Department Of Health And Social Care
- Health Data Research Uk
- Optum Health Solutions Uk Limited
- Health Iq Ltd
- London Borough Of Enfield
- Derby City Council
- I5 Health
- Kpmg Llp
- London Borough of Newham Council
- London Borough Of Hackney
- Durham County Council
- Oxfordshire County Council
- Ernst And Young Llp
- Lightfoot Solutions Uk Ltd
- Walsall Metropolitan Borough Council
- Device Access Uk Ltd
- Dr. Foster Limited
- Compufile Systems Limited
- National Institute For Health And Care Excellence (nice)
- London Borough of Tower Hamlets Council
- Westminster City Council
- Gateshead Metropolitan Borough Council
- NHS National Services Scotland
- Rand Europe
- The Newcastle Upon Tyne Hospitals NHS Foundation Trust
- Medeanalytics International Limited
- Oliver Wyman
- Regional Drug & Therapeutic Centre
- University Hospitals Of Derby And Burton NHS Foundation Trust
- NHS Improvement
- I5 Health Limited
- Kingston Hospital NHS Foundation Trust
- London School Of Economics And Political Science (lse)
- Northumberland, Tyne And Wear NHS Foundation Trust
- Cumbria, Northumberland, Tyne And Wear NHS Foundation Trust
- Southend-on-sea Borough Council (unitary)
- Hartlepool Borough Council
- Hull City Council
- Redcar And Cleveland Borough Council
- Meditrends Ltd
- Gateshead Council
- Birmingham Women's And Children's NHS Foundation Trust
- Telstra Health Uk Limited
- Crab Clinical Informatics
- Harrow Council
- Ignite Data Limited
- Telford and Wrekin Council (Unitary)
- NHS Central Register Scotland
- Health Innovation Network - South London
- London Borough Of Tower Hamlets
- Bradford Metropolitan District Council
- Calderdale Council
- Astrazeneca Uk Limited
- Cegedim Rx Ltd
- Private Healthcare Information Network (phin)
- Royal Liverpool And Broadgreen University Hospitals NHS Trust
- Nottingham City Council (unitary)
- The King's Fund
- Civil Eyes Research Ltd
- London Borough Of Hillingdon
- Swansea University
- Telford And Wrekin Council
- Nhis
- Bangor University
- London Borough Of Croydon
- La-ser Europe Ltd
- City Of Westminster
- Rm Partners
- University Of Hull
- Oxford University Hospitals NHS Trust
- NHS Birmingham and Solihull Clinical Commissioning Group
- Novavax, Inc.
- Bolton Metropolitan Borough Council
- The Royal Marsden NHS Foundation Trust
- London Borough Of Newham Council
- Royal Brompton And Harefield NHS Trust
- Brighton & Hove City Council
- Leeds Teaching Hospitals NHS Trust
- Kent County Council
- North Tyneside Council
- Non-specialist Acute Trusts In England
- London Borough Of Newham
- 3m United Kingdom Plc
- London Borough Of Harrow
- Redcar & Cleveland Council (unitary)
- London Borough Of Wandsworth
- Cambridge Centre For Health Services Research
- Islington Council
- Wiltshire Council
- University Of Exeter
- NHS England Direct Commissioning
- NHS England
- Oliver Wyman Ltd
- London Borough Of Haringey
- British Society Of Gastroenterology
- University Of Essex
- REGIONAL DRUG & THERAPEUTIC CENTRE
- NHS England
- Barts And The London School Of Medicine And Dentistry
- Mckinsey & Company
- Rand Europe Community Interest Company
- Plymouth City Council
- Grail Bio Uk Ltd
- Capita
- Uk Haemophilia Centre Doctors' Organisation
- Department For Transport
- Northamptonshire County Council
- Iqvia Technology Services Ltd.
- Gstt @ Royal Brompton Hospital
- University Hospitals Coventry And Warwickshire NHS Trust
- Market And Opinion Research International Limited
- The Dudley Group NHS Foundation Trust
- Imperial College London Business School
- Western General Hospital
- University Of Oxford, Department Of Paediatrics
- Competition & Markets Authority
- Pharmerit International
- Royal National Orthopaedic Hospital NHS Trust
- St James University Hospital NHS Trust
- Keele University
- Stoke-on-trent City Council
- University Of Hertfordshire
- Cheshire East Borough Council
- Kent And Medway Cancer Alliance
- NHS England Midlands And East
- Neil Wilson Associates Llp
- NHS England North (cumbria And North East)
- Stoke on Trent City Council
- Powys Teaching Lhb
- Renal Registry
- Thames Valley Cancer Alliance
- North Central London Cancer Alliance
- TELFORD & WREKIN COUNCIL
- University Of Westminster
- Buckinghamshire Healthcare NHS Trust
- Norfolk And Norwich University Hospitals NHS Foundation Trust
- Plymouth University
- GLAXOSMITHKLINE RESEARCH & DEVELOPMENT LIMITED
- South East London Cancer Alliance
- Isle of Man Department of Health & Social Care
- Poole Hospital NHS Foundation Trust
- ISLE OF MAN DEPARTMENT OF HEALTH & SOCIAL CARE
- Redcar & Cleveland Borough Council
- CSL-UK (CompuFile System Limited)
- West Midlands Cancer Alliance
- Northern Cancer Alliance
- West Yorkshire And Harrogate Cancer Alliance
- Met Office
- University Of Bath
- Cheshire And Merseyside Cancer Alliance
- Pathway Communications Ltd
- Cardiff University School Of Medicine
- Local Authorities: Data Has Been Made Available To The Public Health Sections Of 91 Councils
- Vanguard - Moorfields Eye Hospital NHS Foundation Trust
- University Hospital Of South Manchester NHS Foundation Trust
- Greater Manchester Cancer Alliance
- Bradford Teaching Hospitals NHS Foundation Trust
- Children's Commissioner's Office
- Wessex Cancer Alliance
- East Of England - North Cancer Alliance
- Wilmington Healthcare
- South Yorkshire & Bassetlaw Cancer Alliance
- 2020 Delivery
- Breast Test Wales
- Lancashire & South Cumbria Cancer Alliance
- Department of Health (DH)
- Rod Gibson Associates Ltd
- University Of London (uol)
- Competition and Markets Authority
- University Hospitals Of North Midlands NHS Trust
- Sandwell And West Birmingham Hospitals NHS Trust
- Beacon Consulting
- Royal Papworth Hospital NHS Foundation Trust
- Nuffield Department Of Primary Health Sciences
- Hull And York Medical School
- NHS England (Skipton House)
- SOUTH YORKSHIRE & BASSETLAW CANCER ALLIANCE
- Trafford Council
- FTI Consulting
- NHS England (temporary National Repository)
- Stockton-on-tees Borough Council
- Public Health Scotland
- NHS Trust Development Authority (ntda)
- Natcen Social Research
- Wellcome Sanger Institute
- University Of Northumbria At Newcastle
- University Of Kent
- University Hospitals Dorset NHS Foundation Trust
- Peninsula Cancer Alliance
- Central Manchester University Hospitals NHS Foundation Trust
- LANCASHIRE & SOUTH CUMBRIA CANCER ALLIANCE
- Somerset, Wiltshire, Avon And Gloucestershire Cancer Alliance
- The Christie NHS Foundation Trust
- Hull And East Yorkshire Hospitals NHS Trust
- Lambeth London Borough Council
- Royal Derby Hospitals
- The Nuffield Department Of Surgical Sciences - Nds
- Surrey And Sussex Cancer Alliance
- 2020 Delivery Ltd
- MEDICAGO R&D INCORPORATED
- Ipsos Mori
- Nec Software Solutions Uk Limited
- Janssen-cilag Limited
- Birmingham Children's Hospital NHS Foundation Trust
- Sanofi Pasteur
- Royal College Of Surgeons In Ireland
- ROYAL COLLEGE OF PAEDIATRICS & CHILD HEALTH (RCPCH)
- University Of Newcastle Upon Tyne
- Humber, Coast And Vale Cancer Alliance
- University Of Ulster
- City University Of London
- LANCASHIRE & SOUTH CUMBRIA NHS FOUNDATION TRUST
- Dr. Foster
- Experian Marketing Services
- Cedar, Cardiff and Vale UHB
- NHS Trust Development Authority
- Northern Care Alliance NHS Foundation Trust
- Northern Ireland Clinical Trials Unit
- St Helens & Knowsley Teaching Hospitals NHS Trust
- NHS Improving Quality
- Nice
- Lancashire Care NHS Foundation Trust
- Northern Lincolnshire and Goole Hospitals NHS Foundation Trust
- Modernatx, Inc
- Birmingham Children’s Hospital
- Centre for Health Service Economics and Organisation
- Prescqipp Cic
- Health Education East Midlands
- University Hospital of North Staffordshire
- Kingston Hospital NHS Trust
- Beyond Compliance
- Newcastle upon Tyne Hospitals NHS Foundation Trust
- Home Office
Organisations with projects that (partially or fully) honoured opt outs:
279 organisations (56 possibly dangerously if outside the TRE).
- University Of Oxford 🚩
- Medicines And Healthcare Products Regulatory Agency (mhra) 🚩
- Public Health England (phe) 🚩
- Genomics England 🚩
- University College London (ucl) 🚩
- University Of Cambridge 🚩
- University Of Bristol 🚩
- Care Quality Commission (cqc)
- Royal College Of Obstetricians And Gynaecologists (rcog) 🚩
- University Hospitals Birmingham NHS Foundation Trust 🚩
- Uk Biobank
- University Of Birmingham 🚩
- Queen Mary University Of London 🚩
- Imperial College London 🚩
- University Of York 🚩
- South London And Maudsley NHS Foundation Trust 🚩
- Health And Safety Executive 🚩
- Institute Of Cancer Research 🚩
- The University Of Manchester 🚩
- King's College London 🚩
- NHS Wales Informatics Service (nwis)
- London School Of Hygiene And Tropical Medicine 🚩
- University Of Leeds 🚩
- University Of Sheffield 🚩
- North Bristol NHS Trust
- The Brain Tumour Charity
- Royal Liverpool University Hospital
- Royal College Of Anaesthetists 🚩
- Royal College Of Physicians Of London 🚩
- Health & Social Care Information Centre
- University Of Nottingham 🚩
- University Of Aberdeen 🚩
- The Royal College Of Surgeons Of England
- NHS Blood And Transplant (nhsbt) 🚩
- Newcastle University 🚩
- Cambridge University Hospitals NHS Foundation Trust
- National Institute For Cardiovascular Outcomes Research 🚩
- St George's, University Of London
- University Of Dundee
- Manchester University NHS Foundation Trust 🚩
- Nuvia Ltd
- Northgate Public Services (uk) Limited 🚩
- Nottingham University Hospitals NHS Trust
- Ministry Of Defence (mod) 🚩
- Cardiff University 🚩
- National Institute For Health Research (nihr) Bioresource
- Cambridgeshire And Peterborough NHS Foundation Trust
- Lincolnshire County Council
- Suffolk County Council
- Peterborough City Council
- Warwickshire County Council
- South Gloucestershire Council
- National Cjd Surveillance Unit
- East Sussex County Council
- Nottinghamshire County Council
- Cheshire West And Chester Council
- West Sussex County Council
- London North West University Healthcare NHS Trust 🚩
- Surrey County Council
- London Borough Of Islington
- Leicestershire County Council
- Iqvia Ltd 🚩
- Norfolk County Council
- North Lincolnshire Council
- Cambridgeshire County Council
- London Borough Of Havering
- University Of Surrey
- Devon County Council
- Plymouth City Council
- Brighton And Hove City Council
- Birmingham City Council
- Hampshire County Council
- Derbyshire County Council
- Cornwall Council
- Blackburn With Darwen Borough Council
- Southampton City Council
- Cheshire East Council
- Sandwell Metropolitan Borough Council
- Bury Metropolitan Borough Council
- Tameside Metropolitan Borough Council
- University Of Southampton
- Wigan Metropolitan Borough Council
- Stockport Metropolitan Borough Council
- HEALTH & SOCIAL CARE INFORMATION CENTRE
- Calderdale Metropolitan Borough Council
- East Riding Of Yorkshire Council
- Rochdale Metropolitan Borough Council
- Essex County Council
- Torbay Council
- Liverpool City Council
- Sunderland City Council
- Salford City Council
- Portsmouth City Council
- Solihull Metropolitan Borough Council
- Blackpool Borough Council
- Staffordshire County Council
- Kent County Council
- Bath And North East Somerset Council
- Hertfordshire County Council
- Gloucestershire County Council
- Coventry City Council
- Trafford Metropolitan Borough Council
- Northumberland County Council
- North East Lincolnshire Council
- London Borough Of Barking And Dagenham
- Leeds City Council
- Thurrock Council
- Dudley Metropolitan Borough Council
- Oldham Metropolitan Borough Council
- Leicester City Council
- University Of Warwick 🚩
- Barnsley Metropolitan Borough Council
- Medway Council
- Wiltshire Council
- Somerset County Council
- Barts Health NHS Trust 🚩
- London Borough Of Bromley
- University Of Glasgow
- University Hospital Southampton NHS Foundation Trust 🚩
- Isle Of Wight Council
- Worcestershire County Council
- Dorset Council
- West Hertfordshire Hospitals NHS Trust (whht) 🚩
- Intensive Care National Audit & Research Centre (ICNARC)
- Northwest Ehealth Limited
- North Yorkshire County Council
- Nottingham City Council
- Lancashire County Council
- London Borough Of Hounslow
- Knowsley Metropolitan Borough Council
- London Borough Of Ealing
- Cumbria County Council
- Bristol City Council
- Sheffield City Council
- City Of Bradford Metropolitan District Council
- Wolfson Institute Of Preventive Medicine 🚩
- Royal Borough Of Greenwich
- Manchester City Council
- Herefordshire Council
- Buckinghamshire Council
- University Hospitals Bristol And Weston NHS Foundation Trust
- Ims Health Ltd 🚩
- King's College Hospital NHS Foundation Trust
- Sefton Council
- Kirklees Council
- Derbyshire Healthcare NHS Foundation Trust
- Gloucestershire Hospitals NHS Foundation Trust 🚩
- London Borough of Sutton Council
- Wirral Metropolitan Borough Council
- London Borough of Redbridge Council
- Wakefield Council
- Newcastle Upon Tyne City Council
- Bracknell Forest Borough Council
- London Borough Of Barnet
- London Borough of Waltham Forest Council
- Doncaster Council
- South Tyneside Metropolitan Borough Council
- London Borough of Southwark Council
- Moorfields Eye Hospital NHS Foundation Trust
- University Of Liverpool
- Warrington Borough Council
- St Helens Metropolitan Borough Council
- Halton Borough Council
- University Of Edinburgh
- Liverpool Heart And Chest Hospital NHS Foundation Trust
- York City Council
- Northamptonshire County Council
- London Borough Of Richmond Upon Thames Council
- London Borough Of Bexley
- London Borough Of Merton Council
- London Borough of Lewisham Council
- Wolverhampton City Council
- Southend on Sea Borough Council
- Royal Borough Of Kingston-upon-thames Council
- St. Georges Hospital Medical School
- North Northamptonshire Council
- Saving Faces - The Facial Surgery Research Foundation
- Institute For Fiscal Studies
- Hmrc
- McKinsey & Company, Inc. United Kingdom 🚩
- The Medical School - Newcastle Upon Tyne 🚩
- The Royal Wolverhampton NHS Trust
- Addenbrooke's Hospital 🚩
- Royal Free & University College Medical School
- Institute Of Child Health
- Chelsea And Westminster Hospital NHS Foundation Trust
- The Clatterbridge Cancer Centre NHS Foundation Trust 🚩
- London Borough Of Lewisham
- London Borough Of Merton
- London Borough Of Sutton
- Buckinghamshire County Council
- London Borough Of Southwark
- Society Of Endocrinology
- Warrington Borough Council (Unitary)
- Royal Devon And Exeter NHS Foundation Trust
- Halton Borough Council (Unitary)
- Royal Free London NHS Foundation Trust 🚩
- Ucl Institute Of Education (ioe) 🚩
- National Centre For Social Research
- Royal Borough Of Kingston Upon Thames
- Sefton Metropolitan Borough Council
- South Tyneside Council
- Bracknell Forest Council
- Newcastle City Council
- St Helens Council
- Southend-on-sea Borough Council
- London Borough Of Richmond Upon Thames
- Wirral Borough Council
- London Borough Of Waltham Forest
- Iqvia Solutions Uk Limited 🚩
- Oxford University Hospitals NHS Foundation Trust
- City Of York Council
- City Of Wolverhampton Council
- London Borough Of Redbridge
- Wakefield Metropolitan District Council
- Doncaster Metropolitan Borough Council
- University Hospitals Bristol NHS Foundation Trust
- Northumbria Healthcare NHS Foundation Trust
- University College London Hospitals NHS Foundation Trust
- London North West Healthcare NHS Trust
- London Borough of Barnet Council
- London Borough of Lambeth Council
- INTENSIVE CARE NATIONAL AUDIT & RESEARCH CENTRE (ICNARC)
- London Borough of Greenwich
- London Borough of Bexley Council
- Kirklees Metropolitan Council
- Nottinghamshire Healthcare NHS Foundation Trust
- National Institute For Health Research
- Uk Health Security Agency
- Sheffield Teaching Hospitals NHS Foundation Trust 🚩
- Informatica Systems Ltd
- University Of Leicester
- Salford Royal NHS Foundation Trust 🚩
- Bradford City Metropolitan District Council
- Health & Safety Laboratory (hsl)
- The Institute for Fiscal Studies (IFS)
- MCKINSEY & COMPANY, INC. UNITED KINGDOM
- Royal College Of Psychiatrists
- London Borough Of Lambeth
- Guy's And St Thomas' NHS Foundation Trust 🚩
- Royal Devon University Healthcare NHS Foundation Trust
- West Hertfordshire Hospitals NHS Trust
- Cancer Research Uk
- London Ambulance Service NHS Trust
- British Thoracic Society
- Luton Borough Council
- Royal Borough of Kingston-Upon-Thames
- Astrazeneca Ab
- Saving Faces
- Derbyshire Health NHS Foundation Trust
- The Nuffield Trust For Research And Policy Studies In Health Services
- Gateshead Health NHS Foundation Trust
- Valneva Austria Gmbh
- West Hertfordshire Teaching Hospitals NHS Trust
- Picker Institute Europe 🚩
- Institute Of Occupational Medicine (iom) 🚩
- Cause Action Ltd
- Medical Research Council Clinical Trials Unit
- Kingston University London
- Liverpool University Hospitals NHS Foundation Trust
- Office For National Statistics
- Clinical Practice Research Datalink (cprd)
- St George's Hospital Medical School
- Royal College Of Paediatrics & Child Health (rcpch)
- Kings College Medical School
- University Of East Anglia
- Kings College Medical School
- Royal Surrey County Hospital NHS Foundation Trust
- Dorset County Council
- Erasmus University Rotterdam
- Great Ormond Street Hospital For Children NHS Foundation Trust
- Glasgow Caledonian University
- Royal Surrey NHS Foundation Trust
- Hackney Council
- Southampton General Hosptial
- Havering London Borough Council
- The Nuffield Trust 🚩
- Derby Teaching Hospitals NHS Foundation Trust 🚩
- Office For National Statistics (ons) 🚩
Projects above are ordered by volumes of data they receive (longer projects or more data appear higher).
CSU/CCGs
These are grouped in the release register, but audited (and fail) independently