NHS Digital Data Release Register - reformatted
This is a readable version of NHS Digital's Data Release Registers since April 2016 - the "complete" list of where NHS Digital sends data on hospital patients after being paid a processing fee, and whether that release respected opt outs or not. To make that choice for you and your family, medConfidential has details on how.
A small number of other data uses in COVID-19 is available from NHS Digital, in addition to an incomplete spreadsheet from NHS England withholding most data uses.
This page is updated roughly monthly when NHS Digital publish more data. This page doesn't currently include anything from the cancer registry, whose release register is incomplete and wrong (e.g. when NDRS says 'You can find out more about these research projects here' many organisations simply weren't listed).
Did they respect the opt out (or sell your data anyway)?
For the last month we know about (2022/05), NHSD chose to respect optouts in 51% of 887 data releases.
Was the National Data Opt Out respected:
- 440: No - "Does not include the flow of confidential data"
- 193: Statutory exemption to flow confidential data without consent
- 89: Yes
- 57: Section 251 NHS Act 2006
- 51: Mixture of confidential data flow(s) with consent and "non-confidential" data flow(s)
- 46: Consent (Reasonable Expectation)
- 11: Mixture of confidential data flow(s) with support under section 251 NHS Act 2006 and non-confidential data flow(s)
Some organisations that breached the rules:
- Imperial College multiple breaches, remains high risk as dangers persist.
- University College London (UCL) [Opt outs honoured: No, SMLS reported a DPA serious incident; breached contract — audit report]
- Methods Analytics Ltd [Opt outs honoured: No, breached contract — audit report]
- Harvey Walsh Ltd [Opt outs honoured: No, unreported DPA breaches; breached contract — audit report]
- Wakefield Council [Opt outs honoured: No, breached contract (access/storage breaches) — audit report]
- London Borough Of Enfield [Opt outs honoured: No, unreported DPA serious incident — audit report]
- Health IQ Ltd [Opt outs honoured: No, breached contract — audit report]
- University of Nottingham [Opt outs honoured: partially, breached contract (and anonymisation code) — audit report]
- Device Access UK Ltd [Opt outs honoured: No, breached contract with "high risk" — audit report]
- Gateshead Metropolitan Borough Council [Opt outs honoured: No, breached contract (retained 'deleted' data) — audit report]
- Rod Gibson Associates Ltd [Opt outs honoured: No, breached contract (used DropBox) — audit report]
Organisations with projects that fully ignored opt outs since 2018:
244 organisations since 2018.
- Monitor
- Methods Analytics Ltd
- NHS England (quarry House)
- National Audit Office
- The Health Foundation
- Harvey Walsh Ltd
- Wilmington Healthcare
- Carnall Farrar Limited
- Chks Limited
- Department Of Health And Social Care
- Health Data Research Uk
- Optum Health Solutions Uk Limited
- Health Iq Ltd
- London Borough Of Enfield
- Derby City Council
- I5 Health
- Kpmg Llp
- London Borough Of Hackney
- London Borough of Newham Council
- Durham County Council
- Oxfordshire County Council
- Ernst And Young Llp
- Lightfoot Solutions Uk Ltd
- Walsall Metropolitan Borough Council
- Device Access Uk Ltd
- Dr. Foster Limited
- Compufile Systems Limited
- National Institute For Health And Care Excellence (nice)
- London Borough of Tower Hamlets Council
- Westminster City Council
- Gateshead Metropolitan Borough Council
- NHS National Services Scotland
- Rand Europe
- The Newcastle Upon Tyne Hospitals NHS Foundation Trust
- Oliver Wyman
- Medeanalytics International Limited
- Regional Drug & Therapeutic Centre
- University Hospitals Of Derby And Burton NHS Foundation Trust
- NHS Improvement
- I5 Health Limited
- Kingston Hospital NHS Foundation Trust
- London School Of Economics And Political Science (lse)
- Cumbria, Northumberland, Tyne And Wear NHS Foundation Trust
- Northumberland, Tyne And Wear NHS Foundation Trust
- Southend-on-sea Borough Council (unitary)
- Hartlepool Borough Council
- Hull City Council
- Meditrends Ltd
- Redcar And Cleveland Borough Council
- Birmingham Women's And Children's NHS Foundation Trust
- Gateshead Council
- Telstra Health Uk Limited
- Crab Clinical Informatics
- Harrow Council
- Ignite Data Limited
- Telford and Wrekin Council (Unitary)
- NHS Central Register Scotland
- Health Innovation Network - South London
- Calderdale Council
- Bradford Metropolitan District Council
- London Borough Of Tower Hamlets
- Astrazeneca Uk Limited
- Cegedim Rx Ltd
- Private Healthcare Information Network (phin)
- Royal Liverpool And Broadgreen University Hospitals NHS Trust
- Nottingham City Council (unitary)
- The King's Fund
- Civil Eyes Research Ltd
- London Borough Of Hillingdon
- Swansea University
- Telford And Wrekin Council
- Nhis
- Bangor University
- City Of Westminster
- La-ser Europe Ltd
- London Borough Of Croydon
- Rm Partners
- University Of Hull
- Oxford University Hospitals NHS Trust
- NHS Birmingham and Solihull Clinical Commissioning Group
- Novavax, Inc.
- Bolton Metropolitan Borough Council
- The Royal Marsden NHS Foundation Trust
- London Borough Of Newham Council
- Royal Brompton And Harefield NHS Trust
- Brighton & Hove City Council
- Leeds Teaching Hospitals NHS Trust
- North Tyneside Council
- Kent County Council
- Non-specialist Acute Trusts In England
- London Borough Of Newham
- 3m United Kingdom Plc
- London Borough Of Harrow
- London Borough Of Wandsworth
- Cambridge Centre For Health Services Research
- Redcar & Cleveland Council (unitary)
- Islington Council
- NHS England
- Wiltshire Council
- Grail Bio Uk Ltd
- NHS England Direct Commissioning
- University Of Exeter
- Oliver Wyman Ltd
- London Borough Of Haringey
- British Society Of Gastroenterology
- University Of Essex
- NHS England
- REGIONAL DRUG & THERAPEUTIC CENTRE
- Barts And The London School Of Medicine And Dentistry
- Mckinsey & Company
- Rand Europe Community Interest Company
- Plymouth City Council
- Capita
- Uk Haemophilia Centre Doctors' Organisation
- Department For Transport
- Northamptonshire County Council
- Iqvia Technology Services Ltd.
- Market And Opinion Research International Limited
- University Hospitals Coventry And Warwickshire NHS Trust
- The Dudley Group NHS Foundation Trust
- Imperial College London Business School
- University Of Oxford, Department Of Paediatrics
- Western General Hospital
- Royal National Orthopaedic Hospital NHS Trust
- Pharmerit International
- Competition & Markets Authority
- Renal Registry
- Gstt @ Royal Brompton Hospital
- St James University Hospital NHS Trust
- Stoke-on-trent City Council
- Keele University
- University Of Hertfordshire
- Nec Software Solutions Uk Limited
- Cheshire East Borough Council
- Neil Wilson Associates Llp
- NHS England Midlands And East
- Stoke on Trent City Council
- NHS England North (cumbria And North East)
- Powys Teaching Lhb
- Kent And Medway Cancer Alliance
- TELFORD & WREKIN COUNCIL
- North Central London Cancer Alliance
- Thames Valley Cancer Alliance
- GLAXOSMITHKLINE RESEARCH & DEVELOPMENT LIMITED
- Poole Hospital NHS Foundation Trust
- South East London Cancer Alliance
- Redcar & Cleveland Borough Council
- ISLE OF MAN DEPARTMENT OF HEALTH & SOCIAL CARE
- CSL-UK (CompuFile System Limited)
- Plymouth University
- Buckinghamshire Healthcare NHS Trust
- University Of Westminster
- Norfolk And Norwich University Hospitals NHS Foundation Trust
- Isle of Man Department of Health & Social Care
- West Yorkshire And Harrogate Cancer Alliance
- Northern Cancer Alliance
- West Midlands Cancer Alliance
- Met Office
- University Hospital Of South Manchester NHS Foundation Trust
- University Of Bath
- Pathway Communications Ltd
- Cardiff University School Of Medicine
- Local Authorities: Data Has Been Made Available To The Public Health Sections Of 91 Councils
- Vanguard - Moorfields Eye Hospital NHS Foundation Trust
- Cheshire And Merseyside Cancer Alliance
- Greater Manchester Cancer Alliance
- Children's Commissioner's Office
- Wessex Cancer Alliance
- Bradford Teaching Hospitals NHS Foundation Trust
- East Of England - North Cancer Alliance
- Wilmington Healthcare
- Department of Health (DH)
- Lancashire & South Cumbria Cancer Alliance
- Breast Test Wales
- 2020 Delivery
- South Yorkshire & Bassetlaw Cancer Alliance
- Rod Gibson Associates Ltd
- University Of London (uol)
- Royal Brompton Hospital
- Sandwell And West Birmingham Hospitals NHS Trust
- University Hospitals Of North Midlands NHS Trust
- Beacon Consulting
- FTI Consulting
- Royal Papworth Hospital NHS Foundation Trust
- NHS England (Skipton House)
- Trafford Council
- Competition and Markets Authority
- Hull And York Medical School
- SOUTH YORKSHIRE & BASSETLAW CANCER ALLIANCE
- Nuffield Department Of Primary Health Sciences
- Public Health Scotland
- NHS England (temporary National Repository)
- Stockton-on-tees Borough Council
- University Hospitals Dorset NHS Foundation Trust
- Natcen Social Research
- Peninsula Cancer Alliance
- University Of Northumbria At Newcastle
- University Of Kent
- NHS Trust Development Authority (ntda)
- Central Manchester University Hospitals NHS Foundation Trust
- Somerset, Wiltshire, Avon And Gloucestershire Cancer Alliance
- Wellcome Sanger Institute
- LANCASHIRE & SOUTH CUMBRIA CANCER ALLIANCE
- The Christie NHS Foundation Trust
- Surrey And Sussex Cancer Alliance
- East Midlands Cancer Alliance
- Hull And East Yorkshire Hospitals NHS Trust
- The Nuffield Department Of Surgical Sciences - Nds
- Lambeth London Borough Council
- Royal Derby Hospitals
- City University Of London
- Ipsos Mori
- Dr. Foster
- University Of Ulster
- Royal College Of Surgeons In Ireland
- 2020 Delivery Ltd
- Janssen-cilag Limited
- Humber, Coast And Vale Cancer Alliance
- LANCASHIRE & SOUTH CUMBRIA NHS FOUNDATION TRUST
- Birmingham Children's Hospital NHS Foundation Trust
- MEDICAGO R&D INCORPORATED
- Sanofi Pasteur
- University Of Newcastle Upon Tyne
- ROYAL COLLEGE OF PAEDIATRICS & CHILD HEALTH (RCPCH)
- Experian Marketing Services
- Newcastle upon Tyne Hospitals NHS Foundation Trust
- Nice
- Kingston Hospital NHS Trust
- NHS Improving Quality
- Prescqipp Cic
- Lancashire Care NHS Foundation Trust
- Home Office
- St Helens & Knowsley Teaching Hospitals NHS Trust
- University Hospital of North Staffordshire
- NHS Trust Development Authority
- Health Education East Midlands
- Birmingham Children’s Hospital
- Cedar, Cardiff and Vale UHB
- Centre for Health Service Economics and Organisation
- Modernatx, Inc
- Beyond Compliance
- Northern Care Alliance NHS Foundation Trust
- Northern Lincolnshire and Goole Hospitals NHS Foundation Trust
- Northern Ireland Clinical Trials Unit
Organisations with projects that (partially or fully) honoured opt outs:
279 organisations (56 possibly dangerously if outside the TRE).
- University Of Oxford 🚩
- Medicines And Healthcare Products Regulatory Agency (mhra) 🚩
- Public Health England (phe) 🚩
- Genomics England 🚩
- University College London (ucl) 🚩
- University Of Cambridge 🚩
- University Of Bristol 🚩
- Care Quality Commission (cqc)
- Royal College Of Obstetricians And Gynaecologists (rcog) 🚩
- University Hospitals Birmingham NHS Foundation Trust 🚩
- Uk Biobank
- University Of Birmingham 🚩
- Queen Mary University Of London 🚩
- Imperial College London 🚩
- University Of York 🚩
- South London And Maudsley NHS Foundation Trust 🚩
- Health And Safety Executive 🚩
- The University Of Manchester 🚩
- Institute Of Cancer Research 🚩
- King's College London 🚩
- NHS Wales Informatics Service (nwis)
- London School Of Hygiene And Tropical Medicine 🚩
- University Of Leeds 🚩
- University Of Sheffield 🚩
- North Bristol NHS Trust
- The Brain Tumour Charity
- Royal Liverpool University Hospital
- Royal College Of Anaesthetists 🚩
- Royal College Of Physicians Of London 🚩
- Health & Social Care Information Centre
- University Of Nottingham 🚩
- University Of Aberdeen 🚩
- The Royal College Of Surgeons Of England
- NHS Blood And Transplant (nhsbt) 🚩
- Newcastle University 🚩
- Cambridge University Hospitals NHS Foundation Trust
- National Institute For Cardiovascular Outcomes Research 🚩
- St George's, University Of London
- University Of Dundee
- Manchester University NHS Foundation Trust 🚩
- Northgate Public Services (uk) Limited 🚩
- Nuvia Ltd
- Nottingham University Hospitals NHS Trust
- Ministry Of Defence (mod) 🚩
- Cardiff University 🚩
- National Institute For Health Research (nihr) Bioresource
- Cambridgeshire And Peterborough NHS Foundation Trust
- Lincolnshire County Council
- Suffolk County Council
- Barts Health NHS Trust 🚩
- Peterborough City Council
- Warwickshire County Council
- South Gloucestershire Council
- National Cjd Surveillance Unit
- Nottinghamshire County Council
- London North West University Healthcare NHS Trust 🚩
- Surrey County Council
- London Borough Of Islington
- Cheshire West And Chester Council
- East Sussex County Council
- West Sussex County Council
- Leicestershire County Council
- Iqvia Ltd 🚩
- Cambridgeshire County Council
- North Lincolnshire Council
- Norfolk County Council
- Sandwell Metropolitan Borough Council
- University Of Southampton
- Bury Metropolitan Borough Council
- Birmingham City Council
- University Of Surrey
- Cornwall Council
- Brighton And Hove City Council
- Hampshire County Council
- London Borough Of Havering
- Devon County Council
- Blackburn With Darwen Borough Council
- Tameside Metropolitan Borough Council
- Wigan Metropolitan Borough Council
- Southampton City Council
- Cheshire East Council
- Plymouth City Council
- Derbyshire County Council
- Solihull Metropolitan Borough Council
- Gloucestershire County Council
- Bath And North East Somerset Council
- Hertfordshire County Council
- Portsmouth City Council
- London Borough Of Barking And Dagenham
- Rochdale Metropolitan Borough Council
- Essex County Council
- Liverpool City Council
- East Riding Of Yorkshire Council
- Trafford Metropolitan Borough Council
- Salford City Council
- Blackpool Borough Council
- Coventry City Council
- Northumberland County Council
- Stockport Metropolitan Borough Council
- Torbay Council
- Kent County Council
- HEALTH & SOCIAL CARE INFORMATION CENTRE
- Sunderland City Council
- Staffordshire County Council
- North East Lincolnshire Council
- Calderdale Metropolitan Borough Council
- Wiltshire Council
- Leeds City Council
- Barnsley Metropolitan Borough Council
- Thurrock Council
- Oldham Metropolitan Borough Council
- Dudley Metropolitan Borough Council
- Somerset County Council
- University Of Warwick 🚩
- Medway Council
- Leicester City Council
- London Borough Of Bromley
- Isle Of Wight Council
- University Of Glasgow
- University Hospital Southampton NHS Foundation Trust 🚩
- Worcestershire County Council
- Intensive Care National Audit & Research Centre (ICNARC)
- Dorset Council
- West Hertfordshire Hospitals NHS Trust (whht) 🚩
- Northwest Ehealth Limited
- North Yorkshire County Council
- London Borough Of Hounslow
- Knowsley Metropolitan Borough Council
- Lancashire County Council
- Nottingham City Council
- Cumbria County Council
- Bristol City Council
- London Borough Of Ealing
- Sheffield City Council
- City Of Bradford Metropolitan District Council
- Wolfson Institute Of Preventive Medicine 🚩
- Manchester City Council
- Herefordshire Council
- Royal Borough Of Greenwich
- Buckinghamshire Council
- University Hospitals Bristol And Weston NHS Foundation Trust
- Ims Health Ltd 🚩
- King's College Hospital NHS Foundation Trust
- Kirklees Council
- Sefton Council
- Moorfields Eye Hospital NHS Foundation Trust
- London Borough of Redbridge Council
- Derbyshire Healthcare NHS Foundation Trust
- Gloucestershire Hospitals NHS Foundation Trust 🚩
- Wirral Metropolitan Borough Council
- Wakefield Council
- London Borough of Sutton Council
- Bracknell Forest Borough Council
- Newcastle Upon Tyne City Council
- London Borough Of Barnet
- London Borough of Waltham Forest Council
- South Tyneside Metropolitan Borough Council
- Doncaster Council
- University Of Liverpool
- London Borough of Southwark Council
- University Of Edinburgh
- Warrington Borough Council
- St Helens Metropolitan Borough Council
- Liverpool Heart And Chest Hospital NHS Foundation Trust
- Halton Borough Council
- York City Council
- London Borough Of Richmond Upon Thames Council
- Northamptonshire County Council
- London Borough Of Bexley
- London Borough Of Merton Council
- London Borough of Lewisham Council
- Wolverhampton City Council
- Southend on Sea Borough Council
- Royal Borough Of Kingston-upon-thames Council
- St. Georges Hospital Medical School
- North Northamptonshire Council
- Hmrc
- Saving Faces - The Facial Surgery Research Foundation
- Institute For Fiscal Studies
- The Medical School - Newcastle Upon Tyne 🚩
- McKinsey & Company, Inc. United Kingdom 🚩
- The Royal Wolverhampton NHS Trust
- Addenbrooke's Hospital 🚩
- National Centre For Social Research
- Royal Free & University College Medical School
- Chelsea And Westminster Hospital NHS Foundation Trust
- Institute Of Child Health
- The Clatterbridge Cancer Centre NHS Foundation Trust 🚩
- London Borough Of Sutton
- London Borough Of Merton
- London Borough Of Lewisham
- Buckinghamshire County Council
- London Borough Of Southwark
- Society Of Endocrinology
- Warrington Borough Council (Unitary)
- Royal Free London NHS Foundation Trust 🚩
- Royal Devon And Exeter NHS Foundation Trust
- Halton Borough Council (Unitary)
- Ucl Institute Of Education (ioe) 🚩
- London Borough Of Redbridge
- Wakefield Metropolitan District Council
- Bracknell Forest Council
- Doncaster Metropolitan Borough Council
- St Helens Council
- Iqvia Solutions Uk Limited 🚩
- Oxford University Hospitals NHS Foundation Trust
- Royal Borough Of Kingston Upon Thames
- Wirral Borough Council
- Sefton Metropolitan Borough Council
- London Borough Of Richmond Upon Thames
- South Tyneside Council
- City Of Wolverhampton Council
- London Borough Of Waltham Forest
- City Of York Council
- Southend-on-sea Borough Council
- Newcastle City Council
- University Hospitals Bristol NHS Foundation Trust
- University College London Hospitals NHS Foundation Trust
- Northumbria Healthcare NHS Foundation Trust
- London Borough of Barnet Council
- London North West Healthcare NHS Trust
- INTENSIVE CARE NATIONAL AUDIT & RESEARCH CENTRE (ICNARC)
- London Borough of Greenwich
- London Borough of Lambeth Council
- Kirklees Metropolitan Council
- London Borough of Bexley Council
- Uk Health Security Agency
- National Institute For Health Research
- Nottinghamshire Healthcare NHS Foundation Trust
- Sheffield Teaching Hospitals NHS Foundation Trust 🚩
- University Of Leicester
- Informatica Systems Ltd
- Salford Royal NHS Foundation Trust 🚩
- Health & Safety Laboratory (hsl)
- The Institute for Fiscal Studies (IFS)
- Bradford City Metropolitan District Council
- MCKINSEY & COMPANY, INC. UNITED KINGDOM
- Royal College Of Psychiatrists
- London Borough Of Lambeth
- Guy's And St Thomas' NHS Foundation Trust 🚩
- Cancer Research Uk
- West Hertfordshire Hospitals NHS Trust
- Royal Devon University Healthcare NHS Foundation Trust
- Luton Borough Council
- London Ambulance Service NHS Trust
- Royal Borough of Kingston-Upon-Thames
- British Thoracic Society
- Astrazeneca Ab
- Gateshead Health NHS Foundation Trust
- Saving Faces
- Derbyshire Health NHS Foundation Trust
- The Nuffield Trust For Research And Policy Studies In Health Services
- Valneva Austria Gmbh
- Picker Institute Europe 🚩
- West Hertfordshire Teaching Hospitals NHS Trust
- Institute Of Occupational Medicine (iom) 🚩
- Cause Action Ltd
- Medical Research Council Clinical Trials Unit
- Liverpool University Hospitals NHS Foundation Trust
- Kingston University London
- Royal College Of Paediatrics & Child Health (rcpch)
- Clinical Practice Research Datalink (cprd)
- Glasgow Caledonian University
- Dorset County Council
- Erasmus University Rotterdam
- Royal Surrey County Hospital NHS Foundation Trust
- Great Ormond Street Hospital For Children NHS Foundation Trust
- University Of East Anglia
- St George's Hospital Medical School
- Office For National Statistics
- Kings College Medical School
- Kings College Medical School
- Royal Surrey NHS Foundation Trust
- Havering London Borough Council
- The Nuffield Trust 🚩
- Office For National Statistics (ons) 🚩
- Derby Teaching Hospitals NHS Foundation Trust 🚩
- Hackney Council
- Southampton General Hosptial
Projects above are ordered by volumes of data they receive (longer projects or more data appear higher).
CSU/CCGs
These are grouped in the release register, but audited (and fail) independently