NHS Digital Data Release Register - reformatted
This is a readable version of NHS Digital's Data Release Registers since April 2016 - the "complete" list of where NHS Digital sends data on hospital patients after being paid a processing fee, and whether that release respected opt outs or not. To make that choice for you and your family, medConfidential has details on how.
A small number of other data uses in COVID-19 is available from NHS Digital, in addition to an incomplete spreadsheet from NHS England withholding most data uses.
This page is updated roughly monthly when NHS Digital publish more data. This page doesn't currently include anything from the cancer registry, whose release register is incomplete and wrong (e.g. when NDRS says 'You can find out more about these research projects here' many organisations simply weren't listed).
Did they respect the opt out (or sell your data anyway)?
For the last month we know about (2022/08), NHSD chose to respect optouts in 46% of 1236 data releases.
Was the National Data Opt Out respected:
- 675: No - "Does not include the flow of confidential data"
- 380: Yes
- 121: Statutory exemption to flow confidential data without consent
- 41: Consent (Reasonable Expectation)
- 10: Mixture of confidential data flow(s) with support under section 251 NHS Act 2006 and "non-confidential" data flow(s)
- 6: Section 251 NHS Act 2006
- 3: Mixture of confidential data flow(s) with consent and non-confidential data flow(s)
Some organisations that breached the rules:
- Imperial College multiple breaches, remains high risk as dangers persist.
- University College London (UCL) [Opt outs honoured: No, SMLS reported a DPA serious incident; breached contract — audit report]
- Methods Analytics Ltd [Opt outs honoured: No, breached contract — audit report]
- Harvey Walsh Ltd [Opt outs honoured: No, unreported DPA breaches; breached contract — audit report]
- Wakefield Council [Opt outs honoured: No, breached contract (access/storage breaches) — audit report]
- London Borough Of Enfield [Opt outs honoured: No, unreported DPA serious incident — audit report]
- Health IQ Ltd [Opt outs honoured: No, breached contract — audit report]
- University of Nottingham [Opt outs honoured: partially, breached contract (and anonymisation code) — audit report]
- Device Access UK Ltd [Opt outs honoured: No, breached contract with "high risk" — audit report]
- Gateshead Metropolitan Borough Council [Opt outs honoured: No, breached contract (retained 'deleted' data) — audit report]
- Rod Gibson Associates Ltd [Opt outs honoured: No, breached contract (used DropBox) — audit report]
Organisations with projects that fully ignored opt outs since 2018:
246 organisations since 2018.
- Monitor
- Methods Analytics Ltd
- NHS England (quarry House)
- National Audit Office
- The Health Foundation
- Harvey Walsh Ltd
- Wilmington Healthcare
- Department Of Health And Social Care
- Carnall Farrar Limited
- Chks Limited
- Health Data Research Uk
- Optum Health Solutions Uk Limited
- Health Iq Ltd
- London Borough Of Enfield
- Derby City Council
- I5 Health
- Kpmg Llp
- London Borough of Newham Council
- London Borough Of Hackney
- Durham County Council
- Oxfordshire County Council
- Ernst And Young Llp
- Lightfoot Solutions Uk Ltd
- Walsall Metropolitan Borough Council
- Device Access Uk Ltd
- Dr. Foster Limited
- Compufile Systems Limited
- National Institute For Health And Care Excellence (nice)
- London Borough of Tower Hamlets Council
- Westminster City Council
- Gateshead Metropolitan Borough Council
- NHS National Services Scotland
- The Newcastle Upon Tyne Hospitals NHS Foundation Trust
- Rand Europe
- NHS Improvement
- Oliver Wyman
- Medeanalytics International Limited
- Regional Drug & Therapeutic Centre
- University Hospitals Of Derby And Burton NHS Foundation Trust
- I5 Health Limited
- Kingston Hospital NHS Foundation Trust
- Cumbria, Northumberland, Tyne And Wear NHS Foundation Trust
- London School Of Economics And Political Science (lse)
- Northumberland, Tyne And Wear NHS Foundation Trust
- Southend-on-sea Borough Council (unitary)
- Hartlepool Borough Council
- Hull City Council
- Birmingham Women's And Children's NHS Foundation Trust
- Meditrends Ltd
- Redcar And Cleveland Borough Council
- Gateshead Council
- Telstra Health Uk Limited
- Crab Clinical Informatics
- Harrow Council
- Ignite Data Limited
- Cegedim Rx Ltd
- Telford and Wrekin Council (Unitary)
- NHS Central Register Scotland
- Health Innovation Network - South London
- London Borough Of Tower Hamlets
- Calderdale Council
- Bradford Metropolitan District Council
- Astrazeneca Uk Limited
- Private Healthcare Information Network (phin)
- Civil Eyes Research Ltd
- Royal Liverpool And Broadgreen University Hospitals NHS Trust
- Swansea University
- Nottingham City Council (unitary)
- The King's Fund
- City Of Westminster
- London Borough Of Hillingdon
- Telford And Wrekin Council
- Nhis
- Bangor University
- Rm Partners
- London Borough Of Croydon
- University Of Hull
- Oxford University Hospitals NHS Trust
- Novavax, Inc.
- NHS Birmingham and Solihull Clinical Commissioning Group
- Bolton Metropolitan Borough Council
- The Royal Marsden NHS Foundation Trust
- London Borough Of Newham Council
- La-ser Europe Ltd
- Royal Brompton And Harefield NHS Trust
- Grail Bio Uk Ltd
- Brighton & Hove City Council
- Barts And The London School Of Medicine And Dentistry
- Leeds Teaching Hospitals NHS Trust
- Kent County Council
- North Tyneside Council
- Non-specialist Acute Trusts In England
- London Borough Of Newham
- REGIONAL DRUG & THERAPEUTIC CENTRE
- 3m United Kingdom Plc
- London Borough Of Harrow
- Cambridge Centre For Health Services Research
- London Borough Of Wandsworth
- Redcar & Cleveland Council (unitary)
- Islington Council
- University Of Exeter
- Wiltshire Council
- NHS England
- NHS England Direct Commissioning
- Oliver Wyman Ltd
- London Borough Of Haringey
- British Society Of Gastroenterology
- University Of Essex
- NHS England
- Mckinsey & Company
- Rand Europe Community Interest Company
- Plymouth City Council
- Capita
- Uk Haemophilia Centre Doctors' Organisation
- Department For Transport
- Northamptonshire County Council
- Iqvia Technology Services Ltd.
- Market And Opinion Research International Limited
- University Hospitals Coventry And Warwickshire NHS Trust
- Imperial College London Business School
- The Dudley Group NHS Foundation Trust
- Western General Hospital
- University Of Oxford, Department Of Paediatrics
- Pharmerit International
- Renal Registry
- Competition & Markets Authority
- Royal National Orthopaedic Hospital NHS Trust
- St James University Hospital NHS Trust
- Gstt @ Royal Brompton Hospital
- Keele University
- Stoke-on-trent City Council
- University Of Hertfordshire
- Cheshire East Borough Council
- Neil Wilson Associates Llp
- NHS England Midlands And East
- Kent And Medway Cancer Alliance
- Stoke on Trent City Council
- NHS England North (cumbria And North East)
- Powys Teaching Lhb
- Public Health Scotland
- TELFORD & WREKIN COUNCIL
- North Central London Cancer Alliance
- Thames Valley Cancer Alliance
- Plymouth University
- Northern Cancer Alliance
- Poole Hospital NHS Foundation Trust
- ISLE OF MAN DEPARTMENT OF HEALTH & SOCIAL CARE
- La-ser Europe Limited (a Certara Company)
- Isle of Man Department of Health & Social Care
- Buckinghamshire Healthcare NHS Trust
- South East London Cancer Alliance
- Norfolk And Norwich University Hospitals NHS Foundation Trust
- CSL-UK (CompuFile System Limited)
- University Of Westminster
- GLAXOSMITHKLINE RESEARCH & DEVELOPMENT LIMITED
- Redcar & Cleveland Borough Council
- West Midlands Cancer Alliance
- West Yorkshire And Harrogate Cancer Alliance
- Met Office
- Pathway Communications Ltd
- University Of Bath
- Cardiff University School Of Medicine
- Cheshire And Merseyside Cancer Alliance
- Vanguard - Moorfields Eye Hospital NHS Foundation Trust
- Greater Manchester Cancer Alliance
- Local Authorities: Data Has Been Made Available To The Public Health Sections Of 91 Councils
- University Hospital Of South Manchester NHS Foundation Trust
- Children's Commissioner's Office
- Wessex Cancer Alliance
- Bradford Teaching Hospitals NHS Foundation Trust
- Wilmington Healthcare
- East Of England - North Cancer Alliance
- Lancashire & South Cumbria Cancer Alliance
- Breast Test Wales
- Department of Health (DH)
- University Of London (uol)
- South Yorkshire & Bassetlaw Cancer Alliance
- Rod Gibson Associates Ltd
- 2020 Delivery
- Trafford Council
- Nuffield Department Of Primary Health Sciences
- Royal Brompton Hospital
- Royal Papworth Hospital NHS Foundation Trust
- Sandwell And West Birmingham Hospitals NHS Trust
- Beacon Consulting
- University Hospitals Of North Midlands NHS Trust
- SOUTH YORKSHIRE & BASSETLAW CANCER ALLIANCE
- NHS England (Skipton House)
- FTI Consulting
- Competition and Markets Authority
- Hull And York Medical School
- NHS England (temporary National Repository)
- Stockton-on-tees Borough Council
- Central Manchester University Hospitals NHS Foundation Trust
- Peninsula Cancer Alliance
- University Of Northumbria At Newcastle
- LANCASHIRE & SOUTH CUMBRIA CANCER ALLIANCE
- University Of Kent
- Natcen Social Research
- University Hospitals Dorset NHS Foundation Trust
- Somerset, Wiltshire, Avon And Gloucestershire Cancer Alliance
- Wellcome Sanger Institute
- NHS Trust Development Authority (ntda)
- City University Of London
- The Christie NHS Foundation Trust
- Surrey And Sussex Cancer Alliance
- Hull And East Yorkshire Hospitals NHS Trust
- NHS Kent And Medway Integrated Care Board
- Royal Derby Hospitals
- The Nuffield Department Of Surgical Sciences - Nds
- Lambeth London Borough Council
- East Midlands Cancer Alliance
- ROYAL COLLEGE OF PAEDIATRICS & CHILD HEALTH (RCPCH)
- University Of Ulster
- Janssen-cilag Limited
- Dr. Foster
- Royal College Of Surgeons In Ireland
- Humber, Coast And Vale Cancer Alliance
- University Of Newcastle Upon Tyne
- Northern Ireland Clinical Trials Unit
- Sanofi Pasteur
- MEDICAGO R&D INCORPORATED
- 2020 Delivery Ltd
- Ipsos Mori
- LANCASHIRE & SOUTH CUMBRIA NHS FOUNDATION TRUST
- Birmingham Children's Hospital NHS Foundation Trust
- Home Office
- Cedar, Cardiff and Vale UHB
- Birmingham Children’s Hospital
- Experian Marketing Services
- Prescqipp Cic
- Our Future Health
- Beyond Compliance
- Newcastle upon Tyne Hospitals NHS Foundation Trust
- University Hospital of North Staffordshire
- Lancashire Care NHS Foundation Trust
- Northern Care Alliance NHS Foundation Trust
- Northern Lincolnshire and Goole Hospitals NHS Foundation Trust
- Nice
- Kingston Hospital NHS Trust
- St Helens & Knowsley Teaching Hospitals NHS Trust
- Modernatx, Inc
- NHS Improving Quality
- Health Education East Midlands
- Centre for Health Service Economics and Organisation
- NHS Trust Development Authority
Organisations with projects that (partially or fully) honoured opt outs:
280 organisations (57 possibly dangerously if outside the TRE).
- University Of Oxford 🚩
- Medicines And Healthcare Products Regulatory Agency (mhra) 🚩
- Public Health England (phe) 🚩
- Genomics England 🚩
- University College London (ucl) 🚩
- University Of Cambridge 🚩
- University Of Bristol 🚩
- Care Quality Commission (cqc)
- Royal College Of Obstetricians And Gynaecologists (rcog) 🚩
- University Hospitals Birmingham NHS Foundation Trust 🚩
- Uk Biobank
- University Of Birmingham 🚩
- Queen Mary University Of London 🚩
- Imperial College London 🚩
- University Of York 🚩
- South London And Maudsley NHS Foundation Trust 🚩
- King's College London 🚩
- Health And Safety Executive 🚩
- The University Of Manchester 🚩
- Institute Of Cancer Research 🚩
- NHS Wales Informatics Service (nwis)
- London School Of Hygiene And Tropical Medicine 🚩
- University Of Leeds 🚩
- University Of Sheffield 🚩
- North Bristol NHS Trust
- The Brain Tumour Charity
- Royal Liverpool University Hospital
- Royal College Of Physicians Of London 🚩
- Royal College Of Anaesthetists 🚩
- Health & Social Care Information Centre
- University Of Nottingham 🚩
- University Of Aberdeen 🚩
- The Royal College Of Surgeons Of England
- NHS Blood And Transplant (nhsbt) 🚩
- Newcastle University 🚩
- Cambridge University Hospitals NHS Foundation Trust
- National Institute For Cardiovascular Outcomes Research 🚩
- St George's, University Of London
- University Of Dundee
- Nottingham University Hospitals NHS Trust
- Manchester University NHS Foundation Trust 🚩
- Nuvia Ltd
- Ministry Of Defence (mod) 🚩
- National Institute For Health Research (nihr) Bioresource
- Cardiff University 🚩
- Northgate Public Services (uk) Limited 🚩
- Cambridgeshire And Peterborough NHS Foundation Trust
- Lincolnshire County Council
- Suffolk County Council
- Peterborough City Council
- Barts Health NHS Trust 🚩
- Warwickshire County Council
- National Cjd Surveillance Unit
- South Gloucestershire Council
- London Borough Of Islington
- Surrey County Council
- London North West University Healthcare NHS Trust 🚩
- East Sussex County Council
- Nottinghamshire County Council
- Cheshire West And Chester Council
- West Sussex County Council
- Iqvia Ltd 🚩
- Leicestershire County Council
- Cambridgeshire County Council
- North Lincolnshire Council
- Norfolk County Council
- University Of Southampton
- Devon County Council
- Blackburn With Darwen Borough Council
- Hampshire County Council
- Sandwell Metropolitan Borough Council
- Tameside Metropolitan Borough Council
- Derbyshire County Council
- Southampton City Council
- Brighton And Hove City Council
- Birmingham City Council
- Plymouth City Council
- Wigan Metropolitan Borough Council
- University Of Surrey
- Cheshire East Council
- Bury Metropolitan Borough Council
- Cornwall Council
- London Borough Of Havering
- Essex County Council
- Bath And North East Somerset Council
- Northumberland County Council
- Coventry City Council
- London Borough Of Barking And Dagenham
- Hertfordshire County Council
- Calderdale Metropolitan Borough Council
- Kent County Council
- Torbay Council
- Rochdale Metropolitan Borough Council
- Blackpool Borough Council
- North East Lincolnshire Council
- Liverpool City Council
- Solihull Metropolitan Borough Council
- Portsmouth City Council
- East Riding Of Yorkshire Council
- Sunderland City Council
- Stockport Metropolitan Borough Council
- Trafford Metropolitan Borough Council
- Salford City Council
- HEALTH & SOCIAL CARE INFORMATION CENTRE
- Gloucestershire County Council
- Staffordshire County Council
- Barnsley Metropolitan Borough Council
- Medway Council
- Leeds City Council
- Somerset County Council
- Wiltshire Council
- University Of Warwick 🚩
- Leicester City Council
- Oldham Metropolitan Borough Council
- Thurrock Council
- Dudley Metropolitan Borough Council
- London Borough Of Bromley
- Worcestershire County Council
- University Of Glasgow
- University Hospital Southampton NHS Foundation Trust 🚩
- Isle Of Wight Council
- Dorset Council
- West Hertfordshire Hospitals NHS Trust (whht) 🚩
- Intensive Care National Audit & Research Centre (ICNARC)
- Northwest Ehealth Limited
- North Yorkshire County Council
- London Borough Of Hounslow
- Nottingham City Council
- Lancashire County Council
- Knowsley Metropolitan Borough Council
- London Borough Of Ealing
- Cumbria County Council
- Bristol City Council
- City Of Bradford Metropolitan District Council
- Sheffield City Council
- Wolfson Institute Of Preventive Medicine 🚩
- Royal Borough Of Greenwich
- Manchester City Council
- Herefordshire Council
- Buckinghamshire Council
- University Hospitals Bristol And Weston NHS Foundation Trust
- Ims Health Ltd 🚩
- Kirklees Council
- Sefton Council
- Wirral Metropolitan Borough Council
- Gloucestershire Hospitals NHS Foundation Trust 🚩
- Wakefield Council
- Derbyshire Healthcare NHS Foundation Trust
- Moorfields Eye Hospital NHS Foundation Trust
- London Borough of Sutton Council
- London Borough of Redbridge Council
- London Borough Of Barnet
- Newcastle Upon Tyne City Council
- Bracknell Forest Borough Council
- London Borough of Waltham Forest Council
- Doncaster Council
- South Tyneside Metropolitan Borough Council
- University Of Liverpool
- London Borough of Southwark Council
- St Helens Metropolitan Borough Council
- University Of Edinburgh
- Liverpool Heart And Chest Hospital NHS Foundation Trust
- Halton Borough Council
- Warrington Borough Council
- York City Council
- Northamptonshire County Council
- London Borough Of Richmond Upon Thames Council
- Saving Faces - The Facial Surgery Research Foundation
- London Borough Of Bexley
- London Borough Of Merton Council
- Wolverhampton City Council
- King's College Hospital NHS Foundation Trust
- London Borough of Lewisham Council
- Southend on Sea Borough Council
- Royal Borough Of Kingston-upon-thames Council
- North Northamptonshire Council
- St. Georges Hospital Medical School
- Institute For Fiscal Studies
- Hmrc
- The Medical School - Newcastle Upon Tyne 🚩
- McKinsey & Company, Inc. United Kingdom 🚩
- The Royal Wolverhampton NHS Trust
- Addenbrooke's Hospital 🚩
- National Centre For Social Research
- Royal Free & University College Medical School
- Oxford University Hospitals NHS Foundation Trust
- Chelsea And Westminster Hospital NHS Foundation Trust
- The Clatterbridge Cancer Centre NHS Foundation Trust 🚩
- Institute Of Child Health
- London Borough Of Merton
- London Borough Of Southwark
- London Borough Of Lewisham
- London Borough Of Sutton
- Buckinghamshire County Council
- Society Of Endocrinology
- Halton Borough Council (Unitary)
- Royal Devon And Exeter NHS Foundation Trust
- Warrington Borough Council (Unitary)
- Royal Free London NHS Foundation Trust 🚩
- Ucl Institute Of Education (ioe) 🚩
- Bracknell Forest Council
- South Tyneside Council
- Iqvia Solutions Uk Limited 🚩
- London Borough Of Redbridge
- Wakefield Metropolitan District Council
- Southend-on-sea Borough Council
- St Helens Council
- London Borough Of Waltham Forest
- City Of York Council
- Newcastle City Council
- Sefton Metropolitan Borough Council
- Royal Borough Of Kingston Upon Thames
- London Borough Of Richmond Upon Thames
- City Of Wolverhampton Council
- Doncaster Metropolitan Borough Council
- Wirral Borough Council
- University Hospitals Bristol NHS Foundation Trust
- University College London Hospitals NHS Foundation Trust
- Northumbria Healthcare NHS Foundation Trust
- London Borough of Lambeth Council
- London Borough of Barnet Council
- INTENSIVE CARE NATIONAL AUDIT & RESEARCH CENTRE (ICNARC)
- National Institute For Health Research
- London Borough of Greenwich
- London North West Healthcare NHS Trust
- Kirklees Metropolitan Council
- London Borough of Bexley Council
- Nottinghamshire Healthcare NHS Foundation Trust
- Sheffield Teaching Hospitals NHS Foundation Trust 🚩
- Uk Health Security Agency
- Informatica Systems Ltd
- University Of Leicester
- Salford Royal NHS Foundation Trust 🚩
- Royal Devon University Healthcare NHS Foundation Trust
- Bradford City Metropolitan District Council
- The Institute for Fiscal Studies (IFS)
- Health & Safety Laboratory (hsl)
- Nec Software Solutions Uk Limited 🚩
- MCKINSEY & COMPANY, INC. UNITED KINGDOM
- Royal College Of Psychiatrists
- London Borough Of Lambeth
- Guy's And St Thomas' NHS Foundation Trust 🚩
- West Hertfordshire Hospitals NHS Trust
- Cancer Research Uk
- Royal Borough of Kingston-Upon-Thames
- Luton Borough Council
- British Thoracic Society
- London Ambulance Service NHS Trust
- Gateshead Health NHS Foundation Trust
- The Nuffield Trust For Research And Policy Studies In Health Services
- Saving Faces
- Astrazeneca Ab
- Derbyshire Health NHS Foundation Trust
- Valneva Austria Gmbh
- West Hertfordshire Teaching Hospitals NHS Trust
- Picker Institute Europe 🚩
- Institute Of Occupational Medicine (iom) 🚩
- Cause Action Ltd
- Medical Research Council Clinical Trials Unit
- Kingston University London
- Liverpool University Hospitals NHS Foundation Trust
- Glasgow Caledonian University
- Clinical Practice Research Datalink (cprd)
- Kings College Medical School
- University Of East Anglia
- St George's Hospital Medical School
- Office For National Statistics
- Royal Surrey County Hospital NHS Foundation Trust
- Royal College Of Paediatrics & Child Health (rcpch)
- Dorset County Council
- Great Ormond Street Hospital For Children NHS Foundation Trust
- Kings College Medical School
- Erasmus University Rotterdam
- Royal Surrey NHS Foundation Trust
- Southampton General Hosptial
- Derby Teaching Hospitals NHS Foundation Trust 🚩
- The Nuffield Trust 🚩
- Havering London Borough Council
- Office For National Statistics (ons) 🚩
- Hackney Council
Projects above are ordered by volumes of data they receive (longer projects or more data appear higher).
CSU/CCGs
These are grouped in the release register, but audited (and fail) independently