NHS Digital Data Release Register - reformatted
This is a readable version of NHS Digital's Data Release Registers since April 2016 - the "complete" list of where NHS Digital sends data on hospital patients after being paid a processing fee, and whether that release respected opt outs or not. To make that choice for you and your family, medConfidential has details on how.
A small number of other data uses in COVID-19 is available from NHS Digital, in addition to an incomplete spreadsheet from NHS England withholding most data uses.
This page is updated roughly monthly when NHS Digital publish more data. This page doesn't currently include anything from the cancer registry, whose release register is incomplete and wrong (e.g. when NDRS says 'You can find out more about these research projects here' many organisations simply weren't listed).
Did they respect the opt out (or sell your data anyway)?
For the last month we know about (2021/11), NHSD chose to disregard optouts in 56% of data releases. Was the National Data Opt Out respected:
- 525: No - "Does not include the flow of confidential data"
- 428: Consent (Reasonable Expectation)
- 123: Statutory exemption to flow confidential data without consent
- 65: Mixture of confidential data flow(s) with support under section 251 NHS Act 2006 and "non-confidential" data flow(s)
- 46: Yes
- 3: Mixture of confidential data flow(s) with consent and non-confidential data flow(s)
Some organisations that breached the rules:
- Imperial College multiple breaches, remains high risk as dangers persist.
- University College London (UCL) [Opt outs honoured: No, SMLS reported a DPA serious incident; breached contract — audit report]
- Methods Analytics Ltd [Opt outs honoured: No, breached contract — audit report]
- Harvey Walsh Ltd [Opt outs honoured: No, unreported DPA breaches; breached contract — audit report]
- Wakefield Council [Opt outs honoured: No, breached contract (access/storage breaches) — audit report]
- London Borough Of Enfield [Opt outs honoured: No, unreported DPA serious incident — audit report]
- Health IQ Ltd [Opt outs honoured: No, breached contract — audit report]
- University of Nottingham [Opt outs honoured: partially, breached contract (and anonymisation code) — audit report]
- Device Access UK Ltd [Opt outs honoured: No, breached contract with "high risk" — audit report]
- Gateshead Metropolitan Borough Council [Opt outs honoured: No, breached contract (retained 'deleted' data) — audit report]
- Rod Gibson Associates Ltd [Opt outs honoured: No, breached contract (used DropBox) — audit report]
Organisations with projects that fully ignored opt outs since 2018:
235 organisations since 2018.
- Monitor
- Methods Analytics Ltd
- NHS England (quarry House)
- Office For National Statistics (ons)
- National Audit Office
- The Health Foundation
- Wilmington Healthcare
- Harvey Walsh Ltd
- Chks Limited
- Carnall Farrar Limited
- Department Of Health And Social Care
- Optum Health Solutions Uk Limited
- Health Data Research Uk
- Health Iq Ltd
- London Borough Of Enfield
- Derby City Council
- I5 Health
- Kpmg Llp
- London Borough of Newham Council
- London Borough Of Hackney
- Durham County Council
- Oxfordshire County Council
- Ernst And Young Llp
- Lightfoot Solutions Uk Ltd
- Walsall Metropolitan Borough Council
- Device Access Uk Ltd
- Dr. Foster Limited
- Compufile Systems Limited
- London Borough of Tower Hamlets Council
- Westminster City Council
- Gateshead Metropolitan Borough Council
- National Institute For Health And Care Excellence (nice)
- NHS National Services Scotland
- Rand Europe
- The Newcastle Upon Tyne Hospitals NHS Foundation Trust
- Medeanalytics International Limited
- Oliver Wyman
- Regional Drug & Therapeutic Centre
- University Hospitals Of Derby And Burton NHS Foundation Trust
- NHS Improvement
- I5 Health Limited
- Kingston Hospital NHS Foundation Trust
- London School Of Economics And Political Science (lse)
- Cumbria, Northumberland, Tyne And Wear NHS Foundation Trust
- Northumberland, Tyne And Wear NHS Foundation Trust
- Southend-on-sea Borough Council (unitary)
- Hartlepool Borough Council
- Hull City Council
- Redcar And Cleveland Borough Council
- Meditrends Ltd
- Birmingham Women's And Children's NHS Foundation Trust
- Gateshead Council
- Ignite Data Limited
- Crab Clinical Informatics
- Harrow Council
- Telford and Wrekin Council (Unitary)
- NHS Central Register Scotland
- Health Innovation Network - South London
- London Borough Of Tower Hamlets
- Bradford Metropolitan District Council
- Calderdale Council
- Telstra Health Uk Limited
- Cegedim Rx Ltd
- Royal Liverpool And Broadgreen University Hospitals NHS Trust
- Private Healthcare Information Network (phin)
- Nottingham City Council (unitary)
- The King's Fund
- Civil Eyes Research Ltd
- Swansea University
- London Borough Of Hillingdon
- Astrazeneca Uk Limited
- Telford And Wrekin Council
- Nhis
- Bangor University
- Rm Partners
- London Borough Of Croydon
- City Of Westminster
- University Of Hull
- Oxford University Hospitals NHS Trust
- Novavax, Inc.
- La-ser Europe Ltd
- NHS Birmingham and Solihull Clinical Commissioning Group
- Bolton Metropolitan Borough Council
- The Royal Marsden NHS Foundation Trust
- London Borough Of Newham Council
- Royal Brompton And Harefield NHS Trust
- Brighton & Hove City Council
- Leeds Teaching Hospitals NHS Trust
- Kent County Council
- Non-specialist Acute Trusts In England
- London Borough Of Newham
- London Borough Of Harrow
- Redcar & Cleveland Council (unitary)
- Cambridge Centre For Health Services Research
- London Borough Of Wandsworth
- North Tyneside Council
- 3m United Kingdom Plc
- Islington Council
- University Of Exeter
- NHS England
- NHS England Direct Commissioning
- Wiltshire Council
- British Society Of Gastroenterology
- University Of Essex
- Oliver Wyman Ltd
- London Borough Of Haringey
- NHS England
- Barts And The London School Of Medicine And Dentistry
- Mckinsey & Company
- Gstt @ Royal Brompton Hospital
- Plymouth City Council
- Rand Europe Community Interest Company
- Capita
- Uk Haemophilia Centre Doctors' Organisation
- REGIONAL DRUG & THERAPEUTIC CENTRE
- Northamptonshire County Council
- Department For Transport
- University Hospitals Coventry And Warwickshire NHS Trust
- Market And Opinion Research International Limited
- The Dudley Group NHS Foundation Trust
- Iqvia Technology Services Ltd.
- Imperial College London Business School
- Western General Hospital
- University Of Oxford, Department Of Paediatrics
- Royal National Orthopaedic Hospital NHS Trust
- Competition & Markets Authority
- Pharmerit International
- St James University Hospital NHS Trust
- Stoke-on-trent City Council
- Keele University
- University Of Hertfordshire
- Cheshire East Borough Council
- Stoke on Trent City Council
- Neil Wilson Associates Llp
- NHS England North (cumbria And North East)
- NHS England Midlands And East
- Powys Teaching Lhb
- Renal Registry
- North Central London Cancer Alliance
- TELFORD & WREKIN COUNCIL
- Thames Valley Cancer Alliance
- Kent And Medway Cancer Alliance
- Redcar & Cleveland Borough Council
- Norfolk And Norwich University Hospitals NHS Foundation Trust
- Plymouth University
- CSL-UK (CompuFile System Limited)
- ISLE OF MAN DEPARTMENT OF HEALTH & SOCIAL CARE
- Isle of Man Department of Health & Social Care
- University Of Westminster
- Buckinghamshire Healthcare NHS Trust
- Poole Hospital NHS Foundation Trust
- Northern Cancer Alliance
- South East London Cancer Alliance
- West Midlands Cancer Alliance
- West Yorkshire And Harrogate Cancer Alliance
- Local Authorities: Data Has Been Made Available To The Public Health Sections Of 91 Councils
- University Of Bath
- Cardiff University School Of Medicine
- Cheshire And Merseyside Cancer Alliance
- Greater Manchester Cancer Alliance
- Pathway Communications Ltd
- University Hospital Of South Manchester NHS Foundation Trust
- Vanguard - Moorfields Eye Hospital NHS Foundation Trust
- Bradford Teaching Hospitals NHS Foundation Trust
- Wessex Cancer Alliance
- Children's Commissioner's Office
- Wilmington Healthcare
- East Of England - North Cancer Alliance
- Breast Test Wales
- Department of Health (DH)
- University Of London (uol)
- South Yorkshire & Bassetlaw Cancer Alliance
- Met Office
- 2020 Delivery
- Rod Gibson Associates Ltd
- Lancashire & South Cumbria Cancer Alliance
- Sandwell And West Birmingham Hospitals NHS Trust
- FTI Consulting
- Trafford Council
- University Hospitals Of North Midlands NHS Trust
- Competition and Markets Authority
- NHS England (Skipton House)
- Nuffield Department Of Primary Health Sciences
- Hull And York Medical School
- SOUTH YORKSHIRE & BASSETLAW CANCER ALLIANCE
- Royal Papworth Hospital NHS Foundation Trust
- Beacon Consulting
- NHS England (temporary National Repository)
- LANCASHIRE & SOUTH CUMBRIA CANCER ALLIANCE
- Wellcome Sanger Institute
- Peninsula Cancer Alliance
- NHS Trust Development Authority (ntda)
- University Of Northumbria At Newcastle
- Natcen Social Research
- University Of Kent
- Somerset, Wiltshire, Avon And Gloucestershire Cancer Alliance
- University Hospitals Dorset NHS Foundation Trust
- Central Manchester University Hospitals NHS Foundation Trust
- Royal Derby Hospitals
- Lambeth London Borough Council
- The Christie NHS Foundation Trust
- The Nuffield Department Of Surgical Sciences - Nds
- Hull And East Yorkshire Hospitals NHS Trust
- Surrey And Sussex Cancer Alliance
- Janssen-cilag Limited
- Grail Bio Uk Ltd
- University Of Ulster
- Dr. Foster
- City University Of London
- ROYAL COLLEGE OF PAEDIATRICS & CHILD HEALTH (RCPCH)
- Ipsos Mori
- Birmingham Children's Hospital NHS Foundation Trust
- University Of Newcastle Upon Tyne
- Sanofi Pasteur
- Royal College Of Surgeons In Ireland
- Humber, Coast And Vale Cancer Alliance
- 2020 Delivery Ltd
- LANCASHIRE & SOUTH CUMBRIA NHS FOUNDATION TRUST
- MEDICAGO R&D INCORPORATED
- Beyond Compliance
- Nice
- University Hospital of North Staffordshire
- Birmingham Children’s Hospital
- Cedar, Cardiff and Vale UHB
- Experian Marketing Services
- Prescqipp Cic
- NHS Trust Development Authority
- Kingston Hospital NHS Trust
- NHS Improving Quality
- Newcastle upon Tyne Hospitals NHS Foundation Trust
- St Helens & Knowsley Teaching Hospitals NHS Trust
- Health Education East Midlands
- Lancashire Care NHS Foundation Trust
- Centre for Health Service Economics and Organisation
- Northern Lincolnshire and Goole Hospitals NHS Foundation Trust
Organisations with projects that (partially or fully) honoured opt outs:
274 organisations (55 possibly dangerously if outside the TRE).
- University Of Oxford 🚩
- Medicines And Healthcare Products Regulatory Agency (mhra) 🚩
- Public Health England (phe) 🚩
- Genomics England 🚩
- University College London (ucl) 🚩
- University Of Cambridge 🚩
- University Of Bristol 🚩
- Care Quality Commission (cqc)
- Royal College Of Obstetricians And Gynaecologists (rcog) 🚩
- University Hospitals Birmingham NHS Foundation Trust 🚩
- Uk Biobank
- University Of Birmingham 🚩
- Queen Mary University Of London 🚩
- Imperial College London 🚩
- University Of York 🚩
- South London And Maudsley NHS Foundation Trust 🚩
- Health And Safety Executive 🚩
- The University Of Manchester 🚩
- NHS Wales Informatics Service (nwis)
- King's College London 🚩
- London School Of Hygiene And Tropical Medicine 🚩
- Institute Of Cancer Research 🚩
- University Of Leeds 🚩
- University Of Sheffield 🚩
- North Bristol NHS Trust
- The Brain Tumour Charity
- Royal Liverpool University Hospital
- Health & Social Care Information Centre
- Royal College Of Physicians Of London 🚩
- University Of Nottingham 🚩
- St George's, University Of London
- Royal College Of Anaesthetists 🚩
- The Royal College Of Surgeons Of England
- University Of Aberdeen 🚩
- NHS Blood And Transplant (nhsbt) 🚩
- Newcastle University 🚩
- National Institute For Cardiovascular Outcomes Research 🚩
- Cambridge University Hospitals NHS Foundation Trust
- University Of Dundee
- Nuvia Ltd
- Northgate Public Services (uk) Limited 🚩
- Manchester University NHS Foundation Trust 🚩
- Cardiff University 🚩
- Ministry Of Defence (mod) 🚩
- National Institute For Health Research (nihr) Bioresource
- Cambridgeshire And Peterborough NHS Foundation Trust
- Nottingham University Hospitals NHS Trust
- Lincolnshire County Council
- Suffolk County Council
- Peterborough City Council
- Warwickshire County Council
- National Cjd Surveillance Unit
- South Gloucestershire Council
- Surrey County Council
- London Borough Of Islington
- Nottinghamshire County Council
- Cheshire West And Chester Council
- London North West University Healthcare NHS Trust 🚩
- West Sussex County Council
- East Sussex County Council
- Leicestershire County Council
- Iqvia Ltd 🚩
- Cambridgeshire County Council
- Norfolk County Council
- North Lincolnshire Council
- Hampshire County Council
- Wigan Metropolitan Borough Council
- Southampton City Council
- Cheshire East Council
- University Of Surrey
- Blackburn With Darwen Borough Council
- Cornwall Council
- Derbyshire County Council
- University Of Southampton
- Plymouth City Council
- Bury Metropolitan Borough Council
- Brighton And Hove City Council
- Birmingham City Council
- Devon County Council
- Sandwell Metropolitan Borough Council
- London Borough Of Havering
- Tameside Metropolitan Borough Council
- Stockport Metropolitan Borough Council
- Rochdale Metropolitan Borough Council
- Coventry City Council
- Sunderland City Council
- Calderdale Metropolitan Borough Council
- Blackpool Borough Council
- Northumberland County Council
- Kent County Council
- HEALTH & SOCIAL CARE INFORMATION CENTRE
- Essex County Council
- Gloucestershire County Council
- Portsmouth City Council
- Solihull Metropolitan Borough Council
- Hertfordshire County Council
- Trafford Metropolitan Borough Council
- East Riding Of Yorkshire Council
- London Borough Of Barking And Dagenham
- Staffordshire County Council
- Liverpool City Council
- Salford City Council
- North East Lincolnshire Council
- Torbay Council
- Bath And North East Somerset Council
- Leeds City Council
- London Borough Of Bromley
- Wiltshire Council
- Somerset County Council
- University Of Warwick 🚩
- Medway Council
- Barts Health NHS Trust 🚩
- Thurrock Council
- Barnsley Metropolitan Borough Council
- Oldham Metropolitan Borough Council
- Leicester City Council
- Dudley Metropolitan Borough Council
- Isle Of Wight Council
- Worcestershire County Council
- University Of Glasgow
- Intensive Care National Audit & Research Centre (ICNARC)
- Dorset Council
- West Hertfordshire Hospitals NHS Trust (whht) 🚩
- Northwest Ehealth Limited
- London Borough Of Hounslow
- North Yorkshire County Council
- Nottingham City Council
- Lancashire County Council
- Knowsley Metropolitan Borough Council
- Cumbria County Council
- London Borough Of Ealing
- Bristol City Council
- University Hospital Southampton NHS Foundation Trust 🚩
- Sheffield City Council
- City Of Bradford Metropolitan District Council
- Herefordshire Council
- Manchester City Council
- Royal Borough Of Greenwich
- Wolfson Institute Of Preventive Medicine 🚩
- Buckinghamshire Council
- Ims Health Ltd 🚩
- King's College Hospital NHS Foundation Trust
- Sefton Council
- Kirklees Council
- Wirral Metropolitan Borough Council
- London Borough of Redbridge Council
- London Borough of Sutton Council
- Gloucestershire Hospitals NHS Foundation Trust 🚩
- Derbyshire Healthcare NHS Foundation Trust
- Wakefield Council
- Bracknell Forest Borough Council
- Newcastle Upon Tyne City Council
- London Borough Of Barnet
- Doncaster Council
- London Borough of Waltham Forest Council
- University Hospitals Bristol And Weston NHS Foundation Trust
- South Tyneside Metropolitan Borough Council
- London Borough of Southwark Council
- Moorfields Eye Hospital NHS Foundation Trust
- University Of Liverpool
- St Helens Metropolitan Borough Council
- Halton Borough Council
- Warrington Borough Council
- Liverpool Heart And Chest Hospital NHS Foundation Trust
- London Borough Of Richmond Upon Thames Council
- Northamptonshire County Council
- York City Council
- London Borough Of Merton Council
- University Of Edinburgh
- London Borough Of Bexley
- Southend on Sea Borough Council
- Wolverhampton City Council
- London Borough of Lewisham Council
- Royal Borough Of Kingston-upon-thames Council
- Institute For Fiscal Studies
- Saving Faces - The Facial Surgery Research Foundation
- Royal Devon And Exeter NHS Foundation Trust
- Hmrc
- The Medical School - Newcastle Upon Tyne 🚩
- McKinsey & Company, Inc. United Kingdom 🚩
- The Royal Wolverhampton NHS Trust
- North Northamptonshire Council
- Addenbrooke's Hospital 🚩
- Royal Free & University College Medical School
- Chelsea And Westminster Hospital NHS Foundation Trust
- Institute Of Child Health
- The Clatterbridge Cancer Centre NHS Foundation Trust 🚩
- London Borough Of Sutton
- London Borough Of Lewisham
- Buckinghamshire County Council
- London Borough Of Southwark
- London Borough Of Merton
- Society Of Endocrinology
- Warrington Borough Council (Unitary)
- Halton Borough Council (Unitary)
- Royal Free London NHS Foundation Trust 🚩
- Ucl Institute Of Education (ioe) 🚩
- Southend-on-sea Borough Council
- Bracknell Forest Council
- London Borough Of Redbridge
- National Centre For Social Research
- Oxford University Hospitals NHS Foundation Trust
- Newcastle City Council
- City Of Wolverhampton Council
- St Helens Council
- London Borough Of Waltham Forest
- City Of York Council
- Wakefield Metropolitan District Council
- Royal Borough Of Kingston Upon Thames
- South Tyneside Council
- Iqvia Solutions Uk Limited 🚩
- Doncaster Metropolitan Borough Council
- Wirral Borough Council
- London Borough Of Richmond Upon Thames
- Sefton Metropolitan Borough Council
- University Hospitals Bristol NHS Foundation Trust
- Northumbria Healthcare NHS Foundation Trust
- London Borough of Greenwich
- London Borough of Lambeth Council
- London North West Healthcare NHS Trust
- London Borough of Barnet Council
- London Borough of Bexley Council
- Kirklees Metropolitan Council
- Nottinghamshire Healthcare NHS Foundation Trust
- Sheffield Teaching Hospitals NHS Foundation Trust 🚩
- University College London Hospitals NHS Foundation Trust
- INTENSIVE CARE NATIONAL AUDIT & RESEARCH CENTRE (ICNARC)
- National Institute For Health Research
- University Of Leicester
- Informatica Systems Ltd
- West Hertfordshire Hospitals NHS Trust
- Salford Royal NHS Foundation Trust 🚩
- The Institute for Fiscal Studies (IFS)
- Health & Safety Laboratory (hsl)
- Bradford City Metropolitan District Council
- MCKINSEY & COMPANY, INC. UNITED KINGDOM
- Royal College Of Psychiatrists
- London Borough Of Lambeth
- Guy's And St Thomas' NHS Foundation Trust 🚩
- Cancer Research Uk
- British Thoracic Society
- Luton Borough Council
- Royal Borough of Kingston-Upon-Thames
- London Ambulance Service NHS Trust
- Saving Faces
- Derbyshire Health NHS Foundation Trust
- The Nuffield Trust For Research And Policy Studies In Health Services
- Gateshead Health NHS Foundation Trust
- Valneva Austria Gmbh
- Picker Institute Europe 🚩
- Institute Of Occupational Medicine (iom) 🚩
- Astrazeneca Ab
- Cause Action Ltd
- Medical Research Council Clinical Trials Unit
- Office For National Statistics
- Liverpool University Hospitals NHS Foundation Trust
- Kingston University London
- Royal Surrey NHS Foundation Trust
- Clinical Practice Research Datalink (cprd)
- Great Ormond Street Hospital For Children NHS Foundation Trust
- Dorset County Council
- University Of East Anglia
- Kings College Medical School
- Glasgow Caledonian University
- Royal College Of Paediatrics & Child Health (rcpch)
- St George's Hospital Medical School
- Kings College Medical School
- Erasmus University Rotterdam
- Royal Surrey County Hospital NHS Foundation Trust
- Hackney Council
- Havering London Borough Council
- Southampton General Hosptial
- The Nuffield Trust 🚩
- Derby Teaching Hospitals NHS Foundation Trust 🚩
Projects above are ordered by volumes of data they receive (longer projects or more data appear higher).
CSU/CCGs
These are grouped in the release register, but audited (and fail) independently