NHS Digital Data Release Register - reformatted

This is a readable version of NHS Digital's Data Release Registers since April 2016 - the "complete" list of where NHS Digital sends data on hospital patients after being paid a processing fee, and whether that release respected opt outs or not. To make that choice for you and your family, medConfidential has details on how.

A small number of other data uses in COVID-19 is available from NHS Digital, in addition to an incomplete spreadsheet from NHS England withholding most data uses.

This page is updated roughly monthly when NHS Digital publish more data. This page doesn't currently include anything from the cancer registry, whose release register is incomplete and wrong (e.g. when NDRS says 'You can find out more about these research projects here' many organisations simply weren't listed).

Did they respect the opt out (or sell your data anyway)?

For the last month we know about (2022/10), NHSD chose to respect optouts in 37% of 1025 data releases.
Was the National Data Opt Out respected:

  • 652: No - "Does not include the flow of confidential data"
  • 160: Consent (Reasonable Expectation)
  • 117: Yes
  • 58: Statutory exemption to flow confidential data without consent
  • 26: Mixture of confidential data flow(s) with support under section 251 NHS Act 2006 and "non-confidential" data flow(s)
  • 12: Section 251 NHS Act 2006

Some organisations that breached the rules:

Organisations with projects that fully ignored opt outs since 2018:

313 organisations since 2018.


Organisations with projects that (partially or fully) honoured opt outs:

323 organisations (57 possibly dangerously if outside the TRE).

Projects above are ordered by volumes of data they receive (longer projects or more data appear higher).

CSU/CCGs

These are grouped in the release register, but audited (and fail) independently

  • NHS Liverpool CCG
  • NHS Wakefield CCG
  • NHS Gloucestershire CCG
  • NHS Calderdale CCG
  • NHS Bedfordshire Ccg
  • NHS East Riding Of Yorkshire CCG
  • NHS Buckinghamshire CCG
  • NHS East Lancashire CCG
  • NHS Heywood, Middleton And Rochdale CCG
  • NHS Birmingham And Solihull CCG
  • NHS Leeds CCG
  • NHS East Berkshire CCG
  • NHS Derby And Derbyshire CCG
  • NHS Fareham And Gosport Ccg
  • NHS Sunderland CCG
  • NHS Bolton CCG
  • NHS Berkshire West CCG
  • NHS Milton Keynes Ccg
  • NHS Brighton And Hove CCG
  • NHS Bristol, North Somerset And South Gloucestershire CCG
  • NHS South Tyneside CCG
  • NHS Greater Preston CCG
  • NHS Manchester CCG
  • NHS Fylde And Wyre CCG
  • NHS South Warwickshire Ccg
  • NHS Kernow CCG
  • NHS Telford And Wrekin Ccg
  • NHS Barking And Dagenham Ccg
  • NHS Coventry And Rugby Ccg
  • NHS Southport And Formby CCG
  • NHS Sandwell And West Birmingham Ccg
  • NHS Sheffield CCG
  • NHS Doncaster CCG
  • NHS North East Lincolnshire CCG
  • NHS Oxfordshire CCG
  • NHS Blackpool CCG
  • NHS Tameside And Glossop CCG
  • NHS Guildford And Waverley Ccg
  • NHS Devon CCG
  • NHS Chorley And South Ribble CCG
  • NHS Blackburn With Darwen CCG
  • NHS Rotherham CCG
  • NHS East Leicestershire And Rutland CCG
  • NHS Somerset CCG
  • NHS Halton CCG
  • NHS Stockport CCG
  • NHS Dudley Ccg
  • NHS East And North Hertfordshire CCG
  • NHS West Lancashire CCG
  • NHS Wolverhampton Ccg
  • NHS North Cumbria CCG
  • NHS Northumberland CCG
  • NHS Trafford CCG
  • NHS North Lincolnshire CCG
  • NHS Eastern Cheshire Ccg
  • NHS Luton Ccg
  • NHS Hull CCG
  • NHS Bassetlaw CCG
  • NHS Herts Valleys CCG
  • NHS Morecambe Bay CCG
  • NHS Dorset CCG
  • NHS Barnsley CCG
  • NHS Basildon And Brentwood CCG
  • NHS Newcastle Gateshead CCG
  • NHS North Tyneside CCG
  • NHS Walsall Ccg
  • NHS Vale Of York CCG
  • NHS Brent Ccg
  • NHS Warrington CCG
  • NHS East Surrey Ccg
  • NHS Ipswich And East Suffolk CCG
  • NHS North Kirklees Ccg
  • NHS Airedale, Wharfedale And Craven Ccg
  • NHS Surrey Heath Ccg
  • NHS North East Hampshire And Farnham Ccg
  • NHS Hambleton, Richmondshire And Whitby Ccg
  • NHS West Essex CCG
  • NHS South Sefton CCG
  • NHS Swindon Ccg
  • NHS St Helens CCG
  • NHS Bury CCG
  • NHS Knowsley CCG
  • NHS Greater Huddersfield Ccg
  • NHS Cambridgeshire And Peterborough CCG
  • NHS West Norfolk Ccg
  • NHS Lincolnshire East Ccg
  • NHS Bexley Ccg
  • NHS Midlands And Lancashire Commissioning Support Unit
  • NHS North Durham Ccg
  • NHS Scarborough And Ryedale Ccg
  • NHS Ashford Ccg
  • NHS Cheshire CCG
  • NHS Corby Ccg
  • NHS Barnet Ccg
  • NHS South Kent Coast Ccg
  • NHS Croydon Ccg
  • NHS Darlington Ccg
  • NHS Dartford, Gravesham And Swanley Ccg
  • NHS Islington Ccg
  • NHS Rushcliffe Ccg
  • NHS Thanet Ccg
  • NHS Durham Dales, Easington and Sedgefield CCG
  • NHS Canterbury And Coastal Ccg
  • NHS Bath And North East Somerset Ccg
  • NHS West Kent Ccg
  • NHS Harrogate And Rural District Ccg
  • NHS Portsmouth CCG
  • NHS Swale Ccg
  • NHS West Hampshire Ccg
  • NHS South Eastern Hampshire Ccg
  • NHS North Hampshire Ccg
  • NHS Erewash Ccg
  • NHS Haringey Ccg
  • NHS Vale Royal Ccg
  • NHS Herefordshire Ccg
  • NHS Hardwick Ccg
  • NHS South Worcestershire Ccg
  • NHS Medway Ccg
  • NHS Shropshire Ccg
  • NHS Redditch And Bromsgrove Ccg
  • NHS Bradford District And Craven CCG
  • NHS Crawley Ccg
  • NHS Wyre Forest Ccg
  • NHS Hartlepool And Stockton-on-tees Ccg
  • NHS South Tees Ccg
  • NHS Herefordshire And Worcestershire CCG
  • NHS North Yorkshire CCG
  • NHS Tees Valley CCG
  • NHS Surrey Heartlands CCG
  • NHS Northamptonshire CCG
  • NHS South East London CCG
  • NHS Kent And Medway CCG
  • NHS Enfield Ccg
  • NHS County Durham CCG
  • NHS North Central London CCG
  • NHS East Staffordshire CCG
  • NHS South West London CCG
  • NHS Bath And North East Somerset, Swindon And Wiltshire CCG
  • NHS Norfolk And Waveney CCG
  • NHS Salford CCG
  • NHS Lincolnshire CCG
  • NHS South Cheshire Ccg
  • NHS North Derbyshire Ccg
  • NHS Southern Derbyshire Ccg
  • NHS Hampshire, Southampton And Isle Of Wight CCG
  • NHS Oldham CCG
  • NHS Leicester City CCG
  • NHS Arden And Greater East Midlands Commissioning Support Unit
  • NHS Wigan Borough CCG
  • NHS Wirral CCG
  • NHS Southampton Ccg
  • NHS Southwark Ccg
  • NHS Greenwich Ccg
  • NHS Lincolnshire West Ccg
  • NHS Nottingham And Nottinghamshire CCG
  • NHS South West Lincolnshire Ccg
  • NHS South Norfolk Ccg
  • NHS North Norfolk Ccg
  • NHS Bradford City Ccg
  • NHS Bradford Districts Ccg
  • NHS North And East London Commissioning Support Unit
  • NHS Wiltshire Ccg
  • NHS West Cheshire Ccg
  • NHS South Lincolnshire Ccg
  • NHS Redbridge Ccg
  • NHS Stoke On Trent CCG
  • NHS Stafford And Surrounds CCG
  • NHS Norwich Ccg
  • NHS Cannock Chase CCG
  • NHS Warwickshire North Ccg
  • NHS North Staffordshire CCG
  • NHS Waltham Forest Ccg
  • NHS Richmond Ccg
  • NHS North East Essex CCG
  • NHS West Sussex CCG
  • NHS Lewisham Ccg
  • NHS Kingston Ccg
  • NHS Bromley Ccg
  • NHS Harrow Ccg
  • NHS Surrey Downs Ccg
  • NHS Havering Ccg
  • NHS Great Yarmouth And Waveney Ccg
  • NHS Bedfordshire, Luton And Milton Keynes CCG
  • NHS Black Country And West Birmingham CCG
  • NHS South East Staffordshire And Seisdon Peninsula CCG
  • NHS West Leicestershire CCG
  • NHS Newark And Sherwood Ccg
  • NHS Mansfield And Ashfield Ccg
  • NHS Nottingham North And East Ccg
  • NHS Nene Ccg
  • NHS Thurrock CCG
  • NHS Lambeth Ccg
  • NHS Northern, Eastern and Western Devon CCG
  • NHS Nottingham West Ccg
  • NHS Nottingham City Ccg
  • NHS North Of England Commissioning Support Unit
  • NHS Frimley CCG
  • NHS Hambleton, Richmond and Whitby CCG
  • NHS West Suffolk CCG
  • NHS Mid Essex CCG
  • NHS Kirklees CCG
  • NHS Southend CCG
  • NHS Ealing Ccg
  • NHS Horsham And Mid Sussex Ccg
  • NHS Shropshire, Telford And Wrekin CCG
  • NHS West London Ccg
  • NHS Hammersmith And Fulham Ccg
  • NHS Hillingdon Ccg
  • NHS Hounslow Ccg
  • NHS Central London (westminster) Ccg
  • NHS Coventry And Warwickshire CCG
  • NHS Eastbourne, Hailsham & Seaford Ccg
  • NHS Isle Of Wight Ccg
  • NHS Tower Hamlets Ccg
  • NHS North West London CCG
  • NHS Hastings And Rother Ccg
  • NHS Wandsworth Ccg
  • NHS Merton Ccg
  • NHS High Weald Lewes Havens Ccg
  • NHS Leeds South And East Ccg
  • NHS North East London CCG
  • NHS South Devon And Torbay Ccg
  • NHS Camden Ccg
  • NHS Sutton Ccg
  • NHS Slough Ccg
  • NHS North West Surrey Ccg
  • NHS Coastal West Sussex Ccg
  • NHS Chiltern Ccg
  • NHS Newham Ccg
  • NHS Castle Point And Rochford CCG
  • NHS South Reading Ccg
  • NHS Windsor Ascot And Maidenhead Ccg
  • NHS Herts Valley Ccg
  • NHS Leeds West Ccg
  • NHS Leeds North Ccg
  • NHS Bracknell And Ascot Ccg
  • NHS Castlepoint And Rochford Ccg
  • NHS Cumbria Ccg
  • NHS Southampton City CCG
  • NHS North And West Reading Ccg
  • NHS Wokingham Ccg
  • NHS Central Manchester Ccg
  • NHS Central Midlands Commissioning Support Unit
  • NHS Bristol Ccg
  • NHS Newbury And District Ccg
  • NHS Northern Eastern Western Devon Ccg
  • NHS Aylesbury Ccg
  • NHS Cambridge And Peterborough Ccg
  • NHS City & Hackney Ccg
  • NHS Solihull Ccg
  • NHS North Somerset Ccg
  • NHS South Gloucestershire Ccg
  • NHS South Manchester Ccg
  • NHS City and Hackney CCG
  • NHS North Manchester Ccg
  • NHS Birmingham South And Central Ccg
  • NHS Durham Dales, Easington & Sedgefield Ccg
  • NHS South, Central and West Commissioning Support Unit
  • NHS Lancashire North Ccg
  • NHS South East Staffs And Seisdon Peninsular Ccg
  • NHS Birmingham Cross City Ccg
  • NHS Eastbourne, Hailsham and Seaford CCG
  • NHS East Sussex CCG
  • NHS Aylesbury Vale Ccg
  • NHS Birmingham Crosscity Ccg
  • Csus, Ccgs
  • NHS Newbury And District Ccg
  • NHS Windsor, Ascot And Maidenhead Ccg
  • NHS Bracknell And Ascot Ccg
  • NHS Fylde & Wyre Ccg
  • NHS Central London CCG
  • Central Southern Commissioning Support Unit
  • NHS South Commissioning Support Unit