NHS Digital Data Release Register - reformatted
West Hertfordshire Hospitals NHS Trust (whht) projects
73 data files in total were disseminated unsafely (information about files used safely is missing for TRE/"system access" projects).
🚩 West Hertfordshire Hospitals NHS Trust (whht) was sent multiple files from the same dataset, in the same month, both with optouts respected and with optouts ignored. West Hertfordshire Hospitals NHS Trust (whht) may not have compared the two files, but the identifiers are consistent between datasets, and outside of a good TRE NHS Digital can not know what recipients actually do.
MR1258 - Early Rheumatoid Arthritis in the United Kingdom (ERAN) — DARS-NIC-147877-QXH0L
Type of data: information not disclosed for TRE projects
Opt outs honoured: No - consent provided by participants of research study, Identifiable, Yes, No (, )
Legal basis: Informed Patient consent to permit the receipt, processing and release of data by the HSCIC, Health and Social Care Act 2012 – s261(2)(c), Informed Patient consent to permit the receipt, processing and release of data by NHS Digital, , Informed Patient consent to permit the receipt, processing and release of data by NHS Digital; Informed Patient consent to permit the receipt, processing and release of data by NHS Digital
Purposes: No (NHS Trust)
Sensitive: Sensitive, and Non Sensitive, and Non-Sensitive
When:DSA runs 2012-03-14 — 2027-03-13 2016.06 — 2020.03.
Access method: Ongoing, One-Off
Data-controller type: WEST HERTFORDSHIRE HOSPITALS NHS TRUST, WEST HERTFORDSHIRE TEACHING HOSPITALS NHS TRUST
Sublicensing allowed: No
Datasets:
- MRIS - Cause of Death Report
- MRIS - Cohort Event Notification Report
- MRIS - Flagging Current Status Report
- MRIS - Members and Postings Report
- MRIS - Personal Demographics Service
- MRIS - Scottish NHS / Registration
Objectives:
Early Rheumatoid Arthritis in the United Kingdom – A prospective observational study of the secondary care management of patients with early rheumatoid arthritis in the United Kingdom (ERAN).
Primary aim:
To establish a database of long-term clinical data in order to monitor management and outcomes of patients with early RA in the UK. It is envisaged that this resource will contribute to the development of good clinical practice/guidelines and clinical governance issues.
Secondary aim:
To facilitate the design and execution of nested studies by providing statistical information required for study design and permitting the identification of potential research subjects.
The following main primary endpoints will be evaluated:
Diagnosis of RA
Disease severity
RA medication usage and reasons for change
Prevalence of concurrent pathology
Co-morbidity & Mortality
Project 2 — DARS-NIC-148292-HV9WG
Type of data: information not disclosed for TRE projects
Opt outs honoured: Y, N, Yes - patient objections upheld ()
Legal basis: Approved researcher accreditation under section 39(4)(i) and 39(5) of the Statistical Registration Service Act 2007
Purposes: ()
Sensitive: Sensitive, and Non Sensitive
When:2017.06 — 2017.05.
Access method: Ongoing
Data-controller type:
Sublicensing allowed:
Datasets:
- MRIS - Cause of Death Report
- MRIS - Cohort Event Notification Report
- MRIS - Scottish NHS / Registration
Objectives:
The data supplied by the NHS IC to St Albans City Hospital will be used for only the approved Medical Research Project MR671.