NHS Digital Data Release Register - reformatted

NHS Cheshire And Merseyside Icb - 02e projects

2 data files in total were disseminated unsafely (information about files used safely is missing for TRE/"system access" projects).


DSfC - NHS Warrington CCG; RS, Comm & IV — DARS-NIC-47225-D8S4S

Opt outs honoured: N, Y, No - data flow is not identifiable, Yes - patient objections upheld, Anonymised - ICO Code Compliant, Identifiable (Section 251, Section 251 NHS Act 2006, Mixture of confidential data flow(s) with support under section 251 NHS Act 2006 and non-confidential data flow(s))

Legal basis: Health and Social Care Act 2012 – s261(1) and s261(2)(b)(ii), Section 251 approval is in place for the flow of identifiable data, National Health Service Act 2006 - s251 - 'Control of patient information'. , Health and Social Care Act 2012 - s261 - 'Other dissemination of information', Health and Social Care Act 2012 – s261(1) and s261(2)(b)(ii), Health and Social Care Act 2012 – s261(7); National Health Service Act 2006 - s251 - 'Control of patient information'., Health and Social Care Act 2012 – s261(2)(b)(ii)

Purposes: No (Clinical Commissioning Group (CCG), Sub ICB Location)

Sensitive: Sensitive

When:DSA runs 2019-02-01 — 2022-01-31 2018.06 — 2021.05.

Access method: Frequent adhoc flow, Frequent Adhoc Flow, One-Off

Data-controller type: NHS WARRINGTON CCG, NHS CHESHIRE AND MERSEYSIDE ICB - 02E

Sublicensing allowed: No

Datasets:

  1. Acute-Local Provider Flows
  2. Ambulance-Local Provider Flows
  3. Children and Young People Health
  4. Community-Local Provider Flows
  5. Demand for Service-Local Provider Flows
  6. Diagnostic Imaging Dataset
  7. Diagnostic Services-Local Provider Flows
  8. Emergency Care-Local Provider Flows
  9. Experience, Quality and Outcomes-Local Provider Flows
  10. Improving Access to Psychological Therapies Data Set
  11. Maternity Services Data Set
  12. Mental Health and Learning Disabilities Data Set
  13. Mental Health Minimum Data Set
  14. Mental Health Services Data Set
  15. Mental Health-Local Provider Flows
  16. Other Not Elsewhere Classified (NEC)-Local Provider Flows
  17. Population Data-Local Provider Flows
  18. Primary Care Services-Local Provider Flows
  19. Public Health and Screening Services-Local Provider Flows
  20. SUS for Commissioners
  21. Civil Registration - Births
  22. Civil Registration - Deaths
  23. Community Services Data Set
  24. National Cancer Waiting Times Monitoring DataSet (CWT)
  25. National Diabetes Audit
  26. Patient Reported Outcome Measures
  27. e-Referral Service for Commissioning
  28. Medicines dispensed in Primary Care (NHSBSA data)
  29. Personal Demographic Service
  30. Summary Hospital-level Mortality Indicator
  31. National Cancer Waiting Times Monitoring DataSet (NCWTMDS)
  32. Improving Access to Psychological Therapies Data Set_v1.5

Objectives:

Risk Stratification
To use SUS data identifiable at the level of NHS number according to S.251 CAG 7-04(a) (and Primary Care Data) for the purpose of Risk Stratification. Risk Stratification provides a forecast of future demand by identifying high risk patients. This enables commissioners to initiate proactive management plans for patients that are potentially high service users. Risk Stratification enables General Practitioners (GPs) to better target intervention in Primary Care.
Risk Stratification will be conducted by Arden and Greater East Midlands Commissioning Support Unit and Midlands and Lancashire Commissioning Support Unit

Commissioning
To use pseudonymised data to provide intelligence to support commissioning of health services. The pseudonymised data is required to ensure that analysis of health care provision can be completed to support the needs of the health profile of the population within the CCG area based on the full analysis of multiple pseudonymised datasets.
The CCGs commission services from a range of providers covering a wide array of services. Each of the data flow categories requested supports the commissioned activity of one or more providers.
The following pseudonymised datasets are required to provide intelligence to support commissioning of health services:
-Secondary Uses Service (SUS)
-Local Provider Flows
-Acute
-Ambulance
-Community
-Demand for Service
-Diagnostic Service
-Emergency Care
-Experience, Quality and Outcomes
-Mental Health
-Other Not Elsewhere Classified
-Population Data
-Primary Care Services
-Public Health Screening
-Mental Health Minimum Data Set (MHMDS)
-Mental Health Learning Disability Data Set (MHLDDS)
-Mental Health Services Data Set (MHSDS)
-Maternity Services Data Set (MSDS)
-Improving Access to Psychological Therapy (IAPT)
-Child and Young People Health Service (CYPHS)
-Diagnostic Imaging Data Set (DIDS)

The pseudonymised data is required to ensure that analysis of health care provision can be completed to support the needs of the health profile of the population within the CCG area based on the full analysis of multiple pseudonymised datasets.

Processing for commissioning will be conducted by -
Arden and Greater East Midlands Commissioning Support Unit
Midlands and Lancashire Commissioning Support Unit
Advancing Quality Alliance (AQuA)
The Academic Health Sciences Network

Yielded Benefits:

Expected Benefits:

Risk Stratification
Risk stratification promotes improved case management in primary care and will lead to the following benefits being realised:
1. Improved planning by better understanding patient flows through the healthcare system, thus allowing commissioners to design appropriate pathways to improve patient flow and allowing commissioners to identify priorities and identify plans to address these.
2. Improved quality of services through reduced emergency readmissions, especially avoidable emergency admissions. This is achieved through mapping of frequent users of emergency services thus allowing early intervention.
3. Improved access to services by identifying which services may be in demand but have poor access, and from this identify areas where improvement is required.
4. Supports the commissioner to meets its requirement to reduce premature mortality in line with the CCG Outcome Framework by allowing for more targeted intervention in primary care.
5. Better understanding of local population characteristics through analysis of their health and healthcare outcomes
All of the above lead to improved patient experience through more effective commissioning of services.



Commissioning
1. Supporting Quality Innovation Productivity and Prevention (QIPP) to review demand management, integrated care and pathways.
a. Analysis to support full business cases.
b. Develop business models.
c. Monitor In year projects.
2. Supporting Joint Strategic Needs Assessment (JSNA) for specific disease types.
3. Health economic modelling using:
a. Analysis on provider performance against 18 weeks wait targets.
b. Learning from and predicting likely patient pathways for certain conditions, in order to influence early interventions and other treatments for patients.
c. Analysis of outcome measures for differential treatments, accounting for the full patient pathway.
d. Analysis to understand emergency care and linking A&E and Emergency Urgent Care Flows (EUCC).
4. Commissioning cycle support for grouping and re-costing previous activity.
5. Enables monitoring of:
a. CCG outcome indicators.
b. Financial and Non-financial validation of activity.
c. Successful delivery of integrated care within the CCG.
d. Checking frequent or multiple attendances to improve early intervention and avoid admissions.
e. Case management.
f. Care service planning.
g. Commissioning and performance management.
h. List size verification by GP practices.
i. Understanding the care of patients in nursing homes.
6. Feedback to NHS service providers on data quality at an aggregate and individual record level – only on data initially provided by the service providers.
7. Improved planning by better understanding patient flows through the healthcare system, thus allowing commissioners to design appropriate pathways to improve patient flow and allowing commissioners to identify priorities and identify plans to address these.
8. Improved quality of services through reduced emergency readmissions, especially avoidable emergency admissions. This is achieved through mapping of frequent users of emergency services and early intervention of appropriate care.
9. Improved access to services by identifying which services may be in demand but have poor access, and from this identify areas where improvement is required.
10. Potentially reduced premature mortality by more targeted intervention in primary care, which supports the commissioner to meets its requirement to reduce premature mortality in line with the CCG Outcome Framework.
11. Better understanding of the health of and the variations in health outcomes within the population to help understand local population characteristics.
12. Better understanding of contract requirements, contract execution, and required services for management of existing contracts, and to assist with identification and planning of future contracts
13. Insights into patient outcomes, and identification of the possible efficacy of outcomes-based contracting opportunities

Outputs:

Risk Stratification
1. As part of the risk stratification processing activity detailed above, GPs have access to the risk stratification tool which highlights patients for whom the GP is responsible and have been classed as at risk. The only identifier available to GPs is the NHS numbers of their own patients. Any further identification of the patients will be completed by the GP on their own systems.
2. Output from the risk stratification tool will provide aggregate reporting of number and percentage of population found to be at risk.
3. Record level output will be available for commissioners (of the CCG), pseudonymised at patient level.
4. GP Practices will be able to view the risk scores for individual patients with the ability to display the underlying SUS data for the individual patients when it is required for direct care purposes by someone who has a legitimate relationship with the patient.
5. The CCG will be able to target specific patient groups and enable clinicians with the duty of care for the patient to offer appropriate interventions. The CCG will also be able to:
a. Stratify populations based on: disease profiles; conditions currently being treated; current service use; pharmacy use and risk of future overall cost
b. Plan work for commissioning services and contracts
c. Set up capitated budgets
d. Identify health determinants of risk of admission to hospital, or other adverse care outcomes.

Commissioning
a. Commissioner reporting:
1. Summary by provider view - plan & actuals year to date (YTD).
2. Summary by Patient Outcome Data (POD) view - plan & actuals YTD.
3. Summary by provider view - activity & finance variance by POD.
4. Planned care by provider view - activity & finance plan & actuals YTD.
5. Planned care by POD view - activity plan & actuals YTD.
6. Provider reporting.
7. Statutory returns.
8. Statutory returns - monthly activity return.
9. Statutory returns - quarterly activity return.
10.Delayed discharges.
11. Quality & performance referral to treatment reporting.
b. Readmissions analysis.
c. Production of aggregate reports for CCG Business Intelligence.
d. Production of project / programme level dashboards.
e. Monitoring of acute / community / mental health quality matrix.
f. Clinical coding reviews / audits.
g. Budget reporting down to individual GP Practice level.
h. GP Practice level dashboard reports include high flyers.

Processing:

Data must only be used as stipulated within this Data Sharing Agreement.

Data Processors must only act upon specific instructions from the Data Controller.

Data can only be stored at the addresses listed under storage addresses.

Patient level data will not be shared outside of the CCG unless it is for the purpose of Direct Care, where it may be shared only with those health professionals who have a legitimate relationship with the patient and a legitimate reason to access the data.
All access to data is managed under Roles-Based Access Controls
No patient level data will be linked other than as specifically detailed within this agreement. Data will only be shared with those parties listed and will only be used for the purposes laid out in the application/agreement. The data to be released from NHS Digital will not be national data, but only that data relating to the specific locality and that data required by the applicant.
NHS Digital reminds all organisations party to this agreement of the need to comply with the Data Sharing Framework Contract requirements, including those regarding the use (and purposes of that use) by “Personnel” (as defined within the Data Sharing Framework Contract ie: employees, agents and contractors of the Data Recipient who may have access to that data)
The DSCRO (part of NHS Digital) will apply Type 2 objections before any identifiable data leaves the DSCRO.
CCGs should work with general practices within their CCG to help them fulfil data controller responsibilities regarding flow of identifiable data into risk stratification tools.

Segregation
Where the Data Processor and/or the Data Controller hold both identifiable and pseudonymised data, the data will be held separately so data cannot be linked.

All access to data is auditable by NHS Digital.

Risk Stratification - Arden and Greater East Midlands Commissioning Support Unit
1. Identifiable SUS+ data is obtained from the SUS Repository to the Data Services for Commissioners Regional Office (DSCRO).
2. Data quality management and standardisation of data is completed by the DSCRO and the data identifiable at the level of NHS number is transferred securely to Arden and Greater East Midlands Commissioning Support Unit, who hold the SUS+ data within the secure Data Centre on N3.
3. Identifiable GP Data is securely sent from the GP system to Arden and Greater East Midlands Commissioning Support Unit.
4. SUS+ data is linked to GP data in the risk stratification tool by the data processor.
5. As part of the risk stratification processing activity, GPs have access to the risk stratification tool within the data processor, which highlights patients with whom the GP has a legitimate relationship and have been classed as at risk. The only identifier available to GPs is the NHS numbers of their own patients. Any further identification of the patients will be completed by the GP on their own systems.
6. Once Arden and Greater East Midlands Commissioning Support Unit has completed the processing, the CCG can access the online system via a secure connection to access the data pseudonymised at patient level.

Risk Stratification - Midlands & Lancashire Commissioning Support Unit
1. Identifiable SUS+ data is obtained from the SUS Repository to the Data Services for Commissioners Regional Office (DSCRO).
2. Data quality management and standardisation of data is completed by the DSCRO and the data identifiable at the level of NHS number is transferred securely to Midlands & Lancashire Commissioning Support Unit, who hold the SUS+ data within the secure Data Centre on N3.
3. Identifiable GP Data is securely sent from the GP system to Midlands & Lancashire Commissioning Support Unit.
4. SUS+ data is linked to GP data in the risk stratification tool by the data processor.
5. As part of the risk stratification processing activity, GPs have access to the risk stratification tool within the data processor, which highlights patients with whom the GP has a legitimate relationship and have been classed as at risk. The only identifier available to GPs is the NHS numbers of their own patients. Any further identification of the patients will be completed by the GP on their own systems.
6. Once Midlands & Lancashire Commissioning Support Unit has completed the processing, the CCG can access the online system via a secure connection to access the data pseudonymised at patient level.

Commissioning
The Data Services for Commissioners Regional Office (DSCRO) obtains the following data sets:
-SUS
-Local Provider Flows (received directly from providers)
-Acute
-Ambulance
-Community
-Demand for Service
-Diagnostic Service
-Emergency Care
-Experience, Quality and Outcomes
-Mental Health
-Other Not Elsewhere Classified
-Population Data
-Primary Care Services
-Public Health Screening
-Mental Health Minimum Data Set (MHMDS)
-Mental Health Learning Disability Data Set (MHLDDS)
-Mental Health Services Data Set (MHSDS)
-Maternity Services Data Set (MSDS)
-Improving Access to Psychological Therapy (IAPT)
-Child and Young People Health Service (CYPHS)
-Diagnostic Imaging Data Set (DIDS)

Data quality management and pseudonymisation is completed within the DSCRO and is then disseminated as follows:

Data Processor 1 – Arden and Greater East Midlands Commissioning Support Unit
1. Pseudonymised SUS, Local Provider data, Mental Health data (MHSDS, MHMDS, MHLDDS), Maternity data (MSDS), Improving Access to Psychological Therapies data (IAPT), Child and Young People’s Health data (CYPHS) and Diagnostic Imaging data (DIDS) only is securely transferred from the DSCRO to Arden and Greater East Midlands Commissioning Support Unit.
2. Arden and Greater East Midlands Commissioning Support Unit add derived fields, link data and provide analysis to:
a. See patient journeys for pathways or service design, re-design and de-commissioning.
b. Check recorded activity against contracts or invoices and facilitate discussions with providers.
c. Undertake population health management
d. Undertake data quality and validation checks
e. Thoroughly investigate the needs of the population
f. Understand cohorts of residents who are at risk
g. Conduct Health Needs Assessments
3. Allowed linkage is between the data sets contained within point 1.
4. Arden and Greater East Midlands Commissioning Support Unit then pass the processed, pseudonymised and linked data to the CCG.
5. Aggregation of required data for CCG management use will be completed by Arden and Greater East Midlands Commissioning Support Unit or the CCG as instructed by the CCG.
6. Patient level data will not be shared outside of the CCG and will only be shared within the CCG on a need to know basis, as per the purposes stipulated within the Data Sharing Agreement. External aggregated reports only with small number suppression can be shared as set out within NHS Digital guidance applicable to each data set.


Data Processor 2 – Midlands and Lancashire Commissioning Support Unit
1. Pseudonymised SUS, Local Provider data, Mental Health data (MHSDS, MHMDS, MHLDDS), Maternity data (MSDS), Improving Access to Psychological Therapies data (IAPT), Child and Young People’s Health data (CYPHS) and Diagnostic Imaging data (DIDS) only is securely transferred from the DSCRO to Midlands and Lancashire Commissioning Support Unit.
2. Midlands and Lancashire Commissioning Support Unit add derived fields, link data and provide analysis to see patient journeys for pathways or service design, re-design and de-commissioning.
3. Allowed linkage is between the data sets contained within point 1.
4. Midlands and Lancashire Commissioning Support Unit then pass the processed, pseudonymised and linked data to the CCG.
5. Aggregation of required data for CCG management use will be completed by Midlands and Lancashire Commissioning Support Unit or the CCG as instructed by the CCG.
6. Patient level data will not be shared outside of the CCG and will only be shared within the CCG on a need to know basis, as per the purposes stipulated within the Data Sharing Agreement. External aggregated reports only with small number suppression can be shared as set out within NHS Digital guidance applicable to each data set.

Data Processor 3 – Advancing Quality Alliance (AQuA) via Arden and Greater East Midlands Commissioning Support
1. Pseudonymised SUS, Local Provider data and Mental Health data (MHSDS, MHMDS, MHLDDS) only is securely transferred from the DSCRO to Arden and Greater East Midlands Commissioning Support.
2. Arden and Greater East Midlands Commissioning Support add derived fields, link data and provide analysis.
3. Allowed linkage is between the data sets contained within point 1.
4. Arden and Greater East Midlands Commissioning Support then pass the processed, pseudonymised and linked data to Advancing Quality Alliance (AQuA). Advancing Quality Alliance (AQuA) provide support for a range of quality improvement programmes including the NW Advancing Quality Programme. Advancing Quality Alliance (AQuA) identifies cohorts of patients within specific disease groups for further analysis to help drive quality improvements across the region.
5. Aggregation of required data for CCG management use will be completed by Advancing Quality Alliance (AQuA).
6. Patient level data will not be shared outside of the CCG and will only be shared within the CCG on a need to know basis, as per the purposes stipulated within the Data Sharing Agreement. External aggregated reports only with small number suppression can be shared as set out within NHS Digital guidance applicable to each data set.


Data Processor 4 – The Academic Health Sciences Network via Arden and Greater East Midlands Commissioning Support
1. Pseudonymised SUS only is securely transferred from the DSCRO to Arden and Greater East Midlands Commissioning Support.
2. Arden and Greater East Midlands Commissioning Support add derived fields, link data and provide analysis.
3. Allowed linkage is between the data sets contained within point 1.
4. Arden and Greater East Midlands Commissioning Support then pass the processed, pseudonymised and linked data to The Academic Health Sciences Network. The Academic Health Sciences Network analyse the data to look at processes rather than patients, for example, A&E performance, process times, bed days as well as ‘deep dives’ to support clinical reviews for CCGs.
5. Aggregation of required data for CCG management use will be completed by The Academic Health Sciences Network.
6. Patient level data will not be shared outside of the CCG and will only be shared within the CCG on a need to know basis, as per the purposes stipulated within the Data Sharing Agreement. External aggregated reports only with small number suppression can be shared as set out within NHS Digital guidance applicable to each data set.