NHS Digital Data Release Register - reformatted

Kings College Medical School projects

3 data files in total were disseminated unsafely (information about files used safely is missing for TRE/"system access" projects).

Project 1 — DARS-NIC-148120-0Q51J

Type of data: information not disclosed for TRE projects

Opt outs honoured: Y ()

Legal basis: Section 251 approval is in place for the flow of identifiable data

Purposes: ()

Sensitive: Sensitive, and Non Sensitive

When:2016.04 — 2017.02.

Access method: Ongoing

Data-controller type:

Sublicensing allowed:


  1. MRIS - Cause of Death Report
  2. MRIS - Cohort Event Notification Report
  3. MRIS - Scottish NHS / Registration
  4. MRIS - Flagging Current Status Report


To determine overall outcome in terms of mortality and early entry into care of all babies and children (up to 5 years of age) identified with sickle cell disease (HbSS, HbSC, HbS, beta thalassaemia, Hb S/D Punjab, HbS/OArab) and overall access to timely informed choice in preceding screening history for parents.

Expected Benefits:

To be completed by applicant


To be completed by applicant


To be completed by applicant