NHS Digital Data Release Register - reformatted
Royal Liverpool And Broadgreen University Hospitals NHS Trust projects
73 data files in total were disseminated unsafely (information about files used safely is missing for TRE/"system access" projects).
MR572 - Management of Ocular Melanoma — DARS-NIC-148321-ZPHJ3
Type of data: information not disclosed for TRE projects
Opt outs honoured: N, Identifiable (Consent (Reasonable Expectation), Section 251 NHS Act 2006)
Legal basis: Informed Patient consent to permit the receipt, processing and release of data by the HSCIC, Health and Social Care Act 2012 – s261(2)(c), Health and Social Care Act 2012 s261(2)(c), Health and Social Care Act 2012 - s261(5)(d); National Health Service Act 2006 - s251 - 'Control of patient information'.
Purposes: No (NHS Trust)
Sensitive: Sensitive, and Non Sensitive
When:DSA runs 2018-10-01 — 2021-08-23 2017.09 — 2017.05.
Access method: Ongoing, One-Off
Data-controller type: LIVERPOOL UNIVERSITY HOSPITALS NHS FOUNDATION TRUST
Sublicensing allowed: No
Datasets:
- MRIS - Cause of Death Report
- MRIS - Cohort Event Notification Report
- MRIS - Flagging Current Status Report
- MRIS - Scottish NHS / Registration
- MRIS - Members and Postings Report
- Civil Registrations of Death
Objectives:
No contact will be made with any individual(s) that could be identified from the information supplied, except as specified in the protocol and associated letters agreed between Royal Liverpool Hospital and NHS IC.
Any reports, papers or statistical tables that are published or released to other organisations will fully protect the identity of individuals in accordance with current NHS IC guidance.
Where there is doubt about the implications to a particular situation, the advice of the NHS IC will be sought. If subsequent to release, it appears possible that there is a risk of disclosure, the NHS IC will be informed immediately.
No attempt will be made to link the information supplied to any other data relating to identifiable individuals without the prior approval of the NHS IC. The prior agreement of the NHS IC will also be sought for any extension of this work beyond what was originally made known to the NHS IC, if it involves the use of data supplied or derived from that supplied by the NHS IC.
Yielded Benefits:
In any future application, the applicant will be required to provide details of the actual benefits achieved as a result of the study.
Expected Benefits:
In any future application, the applicant will be required to provide details of the expected benefits resulting from the study.
Outputs:
No new outputs will be produced under this Data Sharing Agreement.
In any future application, the applicant will be required to provide details of the outputs that were produced and disseminated by the study as well as details of any future outputs planned.
Processing:
Under this Agreement, the data may be securely stored but not otherwise processed. No new data will be provided by NHS Digital under this Agreement.
The study data, including data provided by NHS Digital under previous agreements, are currently held by the Royal Liverpool and Broadgreen University Hospitals NHS Trust. Under this interim extension all devices containing data will be securely locked away in a locked cabinet at the Royal Liverpool and Broadgreen University Hospitals NHS Trust storage address specified in this Agreement.
The following provides background on the processing activities undertaken for the original study:
Identifiable data was shared with ONS to carry out the linkage between the study data and civil registration data. Participants records were flagged with the Office for National Statistics (ONS). ONS notified the study team at the Royal Liverpool and Broadgreen University Hospitals NHS Trust of participants deaths (date and cause) and cancer events when they occurred. The flagging for long-term follow up service transferred from ONS to the HSCIC in 2008. Data was last supplied in September 2018.
Project 2 — HDIS_Royal Liverpool and Broadgreen University Hospitals NHS Trust
Type of data: information not disclosed for TRE projects
Opt outs honoured: N
Legal basis: Health and Social Care Act 2012
Purposes: ()
Sensitive: Non Sensitive
When:2016.04 — 2016.08.
Access method: Ongoing
Data-controller type:
Sublicensing allowed:
Datasets:
- Access to HES Data Interrogation system
Objectives:
The HES (Hospital Episode Statistics) Data Interrogation System (HDIS) allows users to securely access HES, interrogate the data, perform aggregations, statistical analysis, and produce a range of different outputs. Access to HDIS is only provided to organisations who work within the public sector with a specific interest in public health. There is a strict information governance applications process in place to protect and control how the data is managed.