NHS Digital Data Release Register - reformatted
This is a readable version of NHS England's Data Release Registers since April 2016 - the "complete" list of where NHS England sends data on hospital patients after being paid a processing fee, and whether that release respected opt outs or not. To make that choice for you and your family, medConfidential has details on how.
A small number of other data uses in COVID-19 is available from NHS Digital, in addition to an incomplete spreadsheet from NHS England withholding most data uses.
This page is updated roughly monthly when NHS England publish more data.
Did they respect the opt out (or sell your data anyway)?
For the last month we know about (2025/02), NHSD chose to respect optouts in 33% of 2220 data releases of personal data.
Was the National Data Opt Out respected:
- 1493: No - "Does not include the flow of confidential data"
- 274: Statutory exemption to flow confidential data without consent
- 221: Yes
- 185: Consent (Reasonable Expectation)
- 31: Section 251 NHS Act 2006
- 11: Mixture of confidential data flow(s) with support under section 251 NHS Act 2006 and "non-confidential" data flow(s)
- 3: No -
- 2: Mixture of confidential data flow(s) with consent and flow(s) with support under section 251 NHS Act 2006
Organisations with projects that fully ignored opt outs since 2018:
239 organisations since 2018.
- Monitor
- Carnall Farrar Limited
- Harvey Walsh Ltd
- Methods Analytics Ltd
- The Health Foundation
- London School Of Economics And Political Science (lse)
- Wilmington Healthcare
- National Audit Office
- The Nuffield Trust For Research And Policy Studies In Health Services
- Telstra Health Uk Limited
- Chks Limited
- Barts And The London School Of Medicine And Dentistry
- Health Iq Ltd
- I5 Health Limited
- Compufile Systems Limited
- The Newcastle Upon Tyne Hospitals NHS Foundation Trust
- Lightfoot Solutions Uk Ltd
- Rand Europe Community Interest Company
- Civil Eyes Research Ltd
- Novavax, Inc.
- NHS National Services Scotland
- Our Future Health
- The Boston Consulting Group Uk Llp
- Astrazeneca Uk Limited
- Derby City Council
- Cegedim Rx Ltd
- Meditrends Ltd
- London Borough Of Hackney
- London Borough Of Newham
- Grail Bio Uk Ltd
- Walsall Metropolitan Borough Council
- London Borough Of Enfield
- Durham County Council
- City Of Westminster
- London Borough Of Hillingdon
- Optum Health Solutions Uk Limited
- Oxfordshire County Council
- London Borough Of Tower Hamlets
- Bolton Metropolitan Borough Council
- Hull City Council
- Harrow Council
- London Borough Of Haringey
- Stoke-on-trent City Council
- Prescqipp Cic
- Met Office
- Cambridge Centre For Health Services Research
- GLAXOSMITHKLINE RESEARCH & DEVELOPMENT LIMITED
- Epsom And St Helier University Hospitals NHS Trust
- Gateshead Metropolitan Borough Council
- The King's Fund
- La-ser Europe Limited (a Certara Company)
- Home Office
- Bangor University
- Public Health Scotland
- Private Healthcare Information Network (phin)
- Medeanalytics International Limited
- University Of Bath
- Nec Software Solutions
- NHS Coventry And Warwickshire Integrated Care Board
- Device Access Uk Ltd
- Office For Health Improvement And Disparities
- University Hospitals Of Derby And Burton NHS Foundation Trust
- Bedford Borough Council
- Crab Clinical Informatics
- Stockton-on-tees Borough Council
- Department For Transport
- Renal Registry
- Market And Opinion Research International Limited
- NHS Norfolk And Waveney Integrated Care Board
- London Borough Of Croydon
- Archus Limited
- Nuffield Department Of Primary Health Sciences
- Healthcare Quality Improvement Partnership (hqip)
- Northern Care Alliance NHS Foundation Trust
- I5 Health
- Department Of Health And Social Care
- University Hospitals Dorset NHS Foundation Trust
- Roehampton University
- Kpmg Llp
- London Borough of Newham Council
- Royal Papworth Hospital NHS Foundation Trust
- Ernst And Young Llp
- University Of Hull
- Dr. Foster Limited
- North Tyneside Council
- Ignite Data Limited
- Natcen Social Research
- London Borough of Tower Hamlets Council
- Westminster City Council
- Rand Europe
- Oliver Wyman
- Ipsos
- Regional Drug & Therapeutic Centre
- Royal National Orthopaedic Hospital NHS Trust
- National Institute For Health And Care Excellence (nice)
- Kingston Hospital NHS Foundation Trust
- Health Data Research Uk
- Northumberland, Tyne And Wear NHS Foundation Trust
- Southend-on-sea Borough Council (unitary)
- York And Scarborough Teaching Hospitals NHS Foundation Trust
- 2020 Delivery Ltd
- Adelphi Real World
- Medway NHS Foundation Trust
- Gateshead Council
- Adelphi Group Limited
- 3m United Kingdom Plc
- Leeds Teaching Hospitals NHS Trust
- Neil Wilson Associates Llp
- Telford and Wrekin Council (Unitary)
- NHS Central Register Scotland
- Birmingham Women's And Children's NHS Foundation Trust
- Calderdale Council
- Bradford Metropolitan District Council
- La-ser Europe Ltd
- London Borough Of Camden
- Hartlepool Borough Council
- Redcar And Cleveland Borough Council
- Cumbria, Northumberland, Tyne And Wear NHS Foundation Trust
- Royal Liverpool And Broadgreen University Hospitals NHS Trust
- Health Innovation Network - South London
- Nottingham City Council (unitary)
- Telford And Wrekin Council
- Nhis
- University Of Exeter
- Sandwell And West Birmingham Hospitals NHS Trust
- Middlesbrough Borough Council
- Oxford University Hospitals NHS Trust
- NHS Birmingham and Solihull Clinical Commissioning Group
- University Of Kent
- Swindon Borough Council
- Erasmus University Medical Centre
- The Royal Marsden NHS Foundation Trust
- London Borough Of Newham Council
- Hampshire Hospitals NHS Foundation Trust
- Royal Brompton And Harefield NHS Trust
- Brighton & Hove City Council
- University Of Northumbria At Newcastle
- Kent County Council
- Non-specialist Acute Trusts In England
- Young Epilepsy
- London Borough Of Harrow
- Redcar & Cleveland Council (unitary)
- London Borough Of Wandsworth
- Islington Council
- The Public Service Consultants Limited
- NHS England
- NHS England Direct Commissioning
- Wiltshire Council
- Oliver Wyman Ltd
- Westmorland And Furness Council
- British Society Of Gastroenterology
- NHS England
- Department For Business And Trade
- University Of Essex
- Mckinsey & Company
- Plymouth City Council
- Capita
- Rm Partners
- NHS Improvement
- Northamptonshire County Council
- Digital Health And Care Wales
- Western General Hospital
- Competition & Markets Authority
- Imperial College London Business School
- Corevitas
- Pharmerit International
- St James University Hospital NHS Trust
- Cheshire East Borough Council
- NHS England North (cumbria And North East)
- Stoke on Trent City Council
- University Hospitals Coventry And Warwickshire NHS Trust
- NHS England Midlands And East
- Plymouth University
- CSL-UK (CompuFile System Limited)
- Poole Hospital NHS Foundation Trust
- Redcar & Cleveland Borough Council
- Isle of Man Department of Health & Social Care
- Slough Borough Council
- Gstt @ Royal Brompton Hospital
- Vanguard - Moorfields Eye Hospital NHS Foundation Trust
- Local Authorities: Data Has Been Made Available To The Public Health Sections Of 91 Councils
- Pathway Communications Ltd
- University Of Oxford, Department Of Paediatrics
- University Hospital Of South Manchester NHS Foundation Trust
- Bradford Teaching Hospitals NHS Foundation Trust
- Wilmington Healthcare
- Ipsos Mori
- Northern Cancer Alliance
- South Yorkshire & Bassetlaw Cancer Alliance
- Rod Gibson Associates Ltd
- West Midlands Cancer Alliance
- West Yorkshire And Harrogate Cancer Alliance
- Lancashire & South Cumbria Cancer Alliance
- North Central London Cancer Alliance
- Wessex Cancer Alliance
- Thames Valley Cancer Alliance
- 2020 Delivery
- Breast Test Wales
- Kent And Medway Cancer Alliance
- University Of London (uol)
- Department of Health (DH)
- Beacon Consulting
- Greater Manchester Cancer Alliance
- Trafford Council
- Competition and Markets Authority
- NHS England (Skipton House)
- FTI Consulting
- Powys Teaching Lhb
- University Hospitals Of North Midlands NHS Trust
- NHS England (temporary National Repository)
- South East London Cancer Alliance
- Central Manchester University Hospitals NHS Foundation Trust
- Cheshire And Merseyside Cancer Alliance
- NHS Trust Development Authority (ntda)
- The Dudley Group NHS Foundation Trust
- East Of England - North Cancer Alliance
- Lambeth London Borough Council
- Hull And East Yorkshire Hospitals NHS Trust
- The Nuffield Department Of Surgical Sciences - Nds
- Royal Derby Hospitals
- The Christie NHS Foundation Trust
- Birmingham Children's Hospital NHS Foundation Trust
- Dr. Foster
- Cedar, Cardiff and Vale UHB
- Newcastle upon Tyne Hospitals NHS Foundation Trust
- Lancashire Care NHS Foundation Trust
- Kingston Hospital NHS Trust
- NHS Improving Quality
- NHS Trust Development Authority
- Health Education East Midlands
- Beyond Compliance
- Centre for Health Service Economics and Organisation
- Northern Lincolnshire and Goole Hospitals NHS Foundation Trust
- University Hospital of North Staffordshire
- Birmingham Children’s Hospital
- St Helens & Knowsley Teaching Hospitals NHS Trust
- Nice
- Experian Marketing Services
- Children's Commissioner's Office
Organisations with projects that (partially or fully) honoured opt outs:
293 organisations (61 possibly dangerously if outside the TRE).
- Genomics England 🚩
- Public Health England (phe) 🚩
- University Of Oxford 🚩
- Medicines And Healthcare Products Regulatory Agency (mhra) 🚩
- University College London (ucl) 🚩
- Care Quality Commission (cqc)
- University Of Cambridge 🚩
- Royal College Of Obstetricians And Gynaecologists (rcog) 🚩
- University Of Birmingham 🚩
- University Hospitals Birmingham NHS Foundation Trust 🚩
- University Of Bristol 🚩
- King's College London 🚩
- South London And Maudsley NHS Foundation Trust 🚩
- University Of York 🚩
- North Bristol NHS Trust
- Uk Biobank
- University Of Leeds 🚩
- NHS England - X26
- Imperial College London 🚩
- University Of Surrey
- University Of Sheffield 🚩
- University Of Nottingham 🚩
- Royal College Of Psychiatrists
- Queen Mary University Of London 🚩
- Royal Liverpool University Hospital
- Nottingham University Hospitals NHS Trust
- The Brain Tumour Charity
- University Of Newcastle Upon Tyne 🚩
- Institute Of Cancer Research 🚩
- Cambridge University Hospitals NHS Foundation Trust
- Nec Software Solutions Uk Limited 🚩
- The Royal College Of Surgeons Of England
- St. Georges Hospital Medical School
- Health And Safety Executive 🚩
- Suffolk County Council
- University Of Aberdeen 🚩
- North Lincolnshire Council
- Brighton And Hove City Council
- City Of Bradford Metropolitan District Council
- Plymouth City Council
- Birmingham City Council
- Cornwall Council
- Wigan Metropolitan Borough Council
- Hampshire County Council
- Peterborough City Council
- Lincolnshire County Council
- Blackpool Borough Council
- Cheshire West And Chester Council
- Cambridgeshire County Council
- Bury Metropolitan Borough Council
- Sandwell Metropolitan Borough Council
- Devon County Council
- Derbyshire County Council
- Nottinghamshire County Council
- Essex County Council
- National Institute For Cardiovascular Outcomes Research 🚩
- Sefton Metropolitan Borough Council
- King's College Hospital NHS Foundation Trust
- Southampton City Council
- Liverpool City Council
- London Borough Of Havering
- Cheshire East Council
- Staffordshire County Council
- Northumberland County Council
- Portsmouth City Council
- West Sussex County Council
- East Riding Of Yorkshire Council
- Calderdale Metropolitan Borough Council
- East Sussex County Council
- Stockport Metropolitan Borough Council
- Salford City Council
- Hertfordshire County Council
- London Borough Of Sutton
- Leicestershire County Council
- Wakefield Metropolitan District Council
- Blackburn With Darwen Borough Council
- Buckinghamshire Council
- Kirklees Council
- Tameside Metropolitan Borough Council
- Torbay Council
- Solihull Metropolitan Borough Council
- North East Lincolnshire Council
- Sunderland City Council
- London Borough Of Islington
- Kent County Council
- Manchester University NHS Foundation Trust 🚩
- Barnsley Metropolitan Borough Council
- London Borough Of Bromley
- Dorset Council
- London Borough Of Redbridge
- Gloucestershire County Council
- Warwickshire County Council
- Thurrock Council
- London Borough Of Barking And Dagenham
- Oldham Metropolitan Borough Council
- Dudley Metropolitan Borough Council
- Leicester City Council
- South Gloucestershire Council
- Leeds City Council
- Coventry City Council
- Rochdale Metropolitan Borough Council
- Warrington Borough Council
- Halton Borough Council
- Surrey County Council
- Bracknell Forest Council
- Newcastle City Council
- Wirral Borough Council
- London Borough Of Barnet
- Royal Borough Of Kingston Upon Thames
- Isle Of Wight Council
- Norfolk County Council
- Trafford Metropolitan Borough Council
- HEALTH & SOCIAL CARE INFORMATION CENTRE
- Doncaster Metropolitan Borough Council
- London Borough Of Merton
- London Borough Of Southwark
- South Tyneside Council
- Northwest Ehealth Limited
- St Helens Council
- Lancashire County Council
- Wiltshire Council
- Knowsley Metropolitan Borough Council
- Medway Council
- Bath And North East Somerset Council
- London Borough Of Hounslow
- Bristol City Council
- London Borough Of Ealing
- City Of York Council
- London Borough Of Richmond Upon Thames
- Worcestershire County Council
- North Northamptonshire Council
- London Borough Of Lewisham
- City Of Wolverhampton Council
- Royal Borough Of Greenwich
- London School Of Hygiene And Tropical Medicine 🚩
- Sheffield City Council
- Southend-on-sea Borough Council
- Nottingham City Council
- Manchester City Council
- Herefordshire Council
- Royal College Of Anaesthetists 🚩
- London Borough Of Bexley
- Cumberland Council
- London Borough Of Waltham Forest
- NHS England (quarry House) 🚩
- Royal College Of Physicians Of London 🚩
- The University Of Manchester 🚩
- National Institute For Health Research (nihr) Bioresource
- Gloucestershire Hospitals NHS Foundation Trust 🚩
- Somerset Council
- London Borough Of Lambeth
- Cambridgeshire And Peterborough NHS Foundation Trust
- Liverpool Heart And Chest Hospital NHS Foundation Trust
- University Of East Anglia 🚩
- University Of Edinburgh
- London North West University Healthcare NHS Trust 🚩
- Newcastle University 🚩
- University Of Dundee
- University Hospital Southampton NHS Foundation Trust 🚩
- University Of Southampton
- Iqvia Ltd 🚩
- Barts Health NHS Trust 🚩
- Royal Devon University Healthcare NHS Foundation Trust
- West Hertfordshire Teaching Hospitals NHS Trust
- Moorfields Eye Hospital NHS Foundation Trust
- University Of Glasgow
- University Of Liverpool
- Norfolk And Norwich University Hospitals NHS Foundation Trust
- Somerset County Council
- The Royal Wolverhampton NHS Trust
- Cardiff University 🚩
- National Cjd Surveillance Unit
- Keele University
- MCKINSEY & COMPANY, INC. UNITED KINGDOM
- University Of Leicester
- Swansea University
- North Yorkshire Council
- INTENSIVE CARE NATIONAL AUDIT & RESEARCH CENTRE (ICNARC) 🚩
- NHS Blood And Transplant (nhsbt) 🚩
- National Institute For Health Research
- Nuvia Ltd
- NHS Wales Informatics Service (nwis)
- Northumbria Healthcare NHS Foundation Trust
- North Yorkshire County Council
- Cumbria County Council
- Milton Keynes University Hospital NHS Foundation Trust
- Oxford University Hospitals NHS Foundation Trust
- Great Ormond Street Hospital For Children NHS Foundation Trust
- Institute For Fiscal Studies
- St George's, University Of London
- Uk Haemophilia Centre Doctors' Organisation
- University Of Warwick 🚩
- Royal Free London NHS Foundation Trust 🚩
- Health & Social Care Information Centre
- Northgate Public Services (uk) Limited 🚩
- Derbyshire Healthcare NHS Foundation Trust
- Astrazeneca Ab
- Uk Health Security Agency
- ROYAL COLLEGE OF PAEDIATRICS & CHILD HEALTH (RCPCH)
- University Hospitals Bristol And Weston NHS Foundation Trust
- Society Of Endocrinology
- British Thoracic Society
- London Ambulance Service NHS Trust
- Intensive Care National Audit & Research Centre (ICNARC)
- West Hertfordshire Hospitals NHS Trust (whht) 🚩
- Institute Of Occupational Medicine (iom) 🚩
- Saving Faces - The Facial Surgery Research Foundation
- Ims Health Ltd 🚩
- Sefton Council
- Ministry Of Defence (mod) 🚩
- Wakefield Council
- Wirral Metropolitan Borough Council
- London Borough of Redbridge Council
- London Borough of Sutton Council
- Newcastle Upon Tyne City Council
- Bracknell Forest Borough Council
- South Tyneside Metropolitan Borough Council
- London Borough of Waltham Forest Council
- West Hertfordshire Hospitals NHS Trust
- Wolfson Institute Of Preventive Medicine 🚩
- Doncaster Council
- London Borough of Southwark Council
- Liverpool University Hospitals NHS Foundation Trust
- Royal Devon And Exeter NHS Foundation Trust
- St Helens Metropolitan Borough Council
- Luton Borough Council
- York City Council
- Northamptonshire County Council
- London Borough Of Richmond Upon Thames Council
- East Anglian Air Ambulance
- London Borough Of Merton Council
- London Borough of Lewisham Council
- Southend on Sea Borough Council
- Wolverhampton City Council
- Royal Borough Of Kingston-upon-thames Council
- Kingston University
- Hmrc
- The Medical School - Newcastle Upon Tyne 🚩
- McKinsey & Company, Inc. United Kingdom 🚩
- Addenbrooke's Hospital 🚩
- Cancer Research Uk
- Royal Free & University College Medical School
- The Clatterbridge Cancer Centre NHS Foundation Trust 🚩
- Chelsea And Westminster Hospital NHS Foundation Trust
- Buckinghamshire County Council
- Halton Borough Council (Unitary)
- Warrington Borough Council (Unitary)
- Ucl Institute Of Education (ioe) 🚩
- Glasgow Caledonian University
- University Hospitals Bristol NHS Foundation Trust
- Erasmus University Rotterdam
- London Borough of Barnet Council
- Royal Surrey County Hospital NHS Foundation Trust
- London Borough of Lambeth Council
- London North West Healthcare NHS Trust
- London Borough of Greenwich
- Kirklees Metropolitan Council
- London Borough of Bexley Council
- Office For National Statistics (ons) 🚩
- Sheffield Teaching Hospitals NHS Foundation Trust 🚩
- Informatica Systems Ltd
- Salford Royal NHS Foundation Trust 🚩
- Health & Safety Laboratory (hsl)
- Bradford City Metropolitan District Council
- The Institute for Fiscal Studies (IFS)
- Iqvia Solutions Uk Limited 🚩
- Nottinghamshire Healthcare NHS Foundation Trust
- University College London Hospitals NHS Foundation Trust
- Institute Of Child Health
- Guy's And St Thomas' NHS Foundation Trust 🚩
- Royal Borough of Kingston-Upon-Thames
- Kingston University London
- Saving Faces
- Gateshead Health NHS Foundation Trust
- Derbyshire Health NHS Foundation Trust
- Picker Institute Europe 🚩
- National Centre For Social Research
- Cause Action Ltd
- Medical Research Council Clinical Trials Unit
- Kings College Medical School
- Kings College Medical School
- Royal College Of Paediatrics & Child Health (rcpch)
- Office For National Statistics
- Dorset County Council
- St George's Hospital Medical School
- Valneva Austria Gmbh
- Clinical Practice Research Datalink (cprd)
- Southampton General Hosptial
- The Nuffield Trust 🚩
- Derby Teaching Hospitals NHS Foundation Trust 🚩
- Royal Surrey NHS Foundation Trust
- Havering London Borough Council
- Hackney Council
Projects above are ordered by volumes of data they receive (longer projects or more data appear higher).
CSU/ICBs/CCGs
These are grouped in the release register, but audited (and fail) independently