NHS Digital Data Release Register - reformatted

This is a readable version of NHS Digital's Data Release Registers since April 2016 - the "complete" list of where NHS Digital sends data on hospital patients after being paid a fee, and whether that release respected opt outs or not. For how to express that choice, medConfidential has more details.

This page is updated when NHS Digital publish more data. This page doesn't currnetly include anything from the cancer registry, whose release register is incomplete and wrong (e.g. when NDRS says 'You can find out more about these research projects here' many organisations simply aren't listed). PHE started respecting the National Data Opt Out in September 2018, and releases made after this date will be included (register publication lags release by at least 3 months).

Organisations that breached the rules:

Organisations with projects that ignored opt outs:

  • Monitor
  • Methods Analytics Ltd
  • National Audit Office
  • Harvey Walsh Ltd
  • Wilmington Healthcare
  • Kpmg Llp
  • Ernst And Young Llp
  • Optum Health Solutions Uk Limited
  • CHKS Limited
  • The Health Foundation
  • Norfolk County Council
  • Oliver Wyman
  • London Borough of Newham Council
  • Device Access UK Ltd
  • Lightfoot Solutions UK Ltd
  • Southend-on-sea Borough Council (unitary)
  • Health IQ Ltd
  • Gateshead Council
  • I5 Health
  • NHS National Services Scotland
  • NHS Central Register Scotland
  • MedeAnalytics International Limited
  • Kingston Hospital NHS Foundation Trust
  • Northumberland County Council
  • Calderdale Council
  • Bradford Metropolitan District Council
  • London Borough of Enfield
  • Royal Liverpool And Broadgreen University Hospitals NHS Trust
  • Nottingham City Council (unitary)
  • Compufile Systems Limited
  • Harrow Council
  • Telford And Wrekin Council
  • Nhis
  • Office for National Statistics (ONS)
  • CRAB Clinical Informatics
  • Addenbrooke's Hospital
  • Northumberland, Tyne and Wear NHS Foundation Trust
  • Oxford University Hospitals NHS Trust
  • London Borough Of Newham Council
  • Westminster City Council
  • Brighton & Hove City Council
  • Sefton Metropolitan Borough Council
  • Private Healthcare Information Network (PHIN)
  • University Of Surrey
  • The Brain Tumour Charity
  • Kent County Council
  • University Of Hull
  • Newcastle City Council
  • London Borough Of Wandsworth
  • Redcar & Cleveland Council (unitary)
  • Islington Council
  • The Newcastle upon Tyne Hospitals NHS Foundation Trust
  • NHS England
  • Wiltshire Council
  • NHS England Direct Commissioning
  • British Society Of Gastroenterology
  • Oliver Wyman Ltd
  • NHS England (quarry House)
  • NHS England
  • University Of Essex
  • London Borough of Sutton Council
  • Mckinsey & Company
  • Plymouth City Council
  • RAND Europe
  • Meditrends Ltd
  • Capita
  • Northamptonshire County Council
  • Royal Brompton And Harefield NHS Trust
  • University Of Edinburgh
  • University Of Exeter
  • Regional Drug & Therapeutic Centre
  • Derby City Council
  • The Nuffield Trust For Research And Policy Studies In Health Services
  • The Clatterbridge Cancer Centre NHS Foundation Trust
  • Birmingham Women's and Children's NHS Foundation Trust
  • Durham County Council
  • Western General Hospital
  • Leeds Teaching Hospitals NHS Trust
  • Halton Borough Council
  • Competition & Markets Authority
  • London School Of Economics And Political Science (lse)
  • Imperial College London Business School
  • Pharmerit International
  • London Borough Of Southwark
  • London Borough of Tower Hamlets Council
  • St James University Hospital NHS Trust
  • The Institute For Fiscal Studies (ifs)
  • Nottingham University Hospitals NHS Trust
  • Cheshire East Borough Council
  • 3m United Kingdom Plc
  • Telford and Wrekin Council (Unitary)
  • Saving Faces
  • University Hospitals Coventry And Warwickshire NHS Trust
  • University Hospitals Bristol NHS Foundation Trust
  • Plymouth University
  • Department For Transport
  • CSL-UK (CompuFile System Limited)
  • Civil Eyes Research Ltd
  • Gateshead Metropolitan Borough Council
  • Royal Free London NHS Foundation Trust
  • London Borough of Hackney
  • Dr. Foster Limited
  • University Hospital Of South Manchester NHS Foundation Trust
  • Local Authorities: Data Has Been Made Available To The Public Health Sections Of 91 Councils
  • Oxford University Hospitals NHS Foundation Trust
  • Vanguard - Moorfields Eye Hospital NHS Foundation Trust
  • National Institute for Health and Care Excellence (NICE)
  • Pathway Communications Ltd
  • Non-specialist Acute Trusts In England
  • The King's Fund
  • London Borough Of Hillingdon
  • Medical Research Council Clinical Trials Unit
  • Bradford Teaching Hospitals NHS Foundation Trust
  • Poole Hospital NHS Foundation Trust
  • Manchester University NHS Foundation Trust
  • Redcar and Cleveland Borough Council
  • Wilmington Healthcare
  • Department Of Health (dh)
  • Breast Test Wales
  • Rod Gibson Associates Ltd
  • University Of London (uol)
  • Trafford Council
  • University Hospitals Of North Midlands NHS Trust
  • FTI Consulting
  • Beacon Consulting
  • Competition and Markets Authority
  • Neil Wilson Associates Llp
  • NHS England (temporary National Repository)
  • University Hospitals of Derby and Burton NHS Foundation Trust
  • Sunderland City Council
  • NHS Trust Development Authority (ntda)
  • Health Innovation Network - South London
  • Department of Health and Social Care
  • Oxfordshire County Council
  • Central Manchester University Hospitals NHS Foundation Trust
  • Royal National Orthopaedic Hospital NHS Trust
  • The Dudley Group NHS Foundation Trust
  • The Nuffield Department Of Surgical Sciences - Nds
  • Royal Derby Hospitals
  • City Of York Council
  • St George's Hospital Medical School
  • London Borough Of Tower Hamlets
  • Hull And East Yorkshire Hospitals NHS Trust
  • Lambeth London Borough Council
  • Dr. Foster
  • University Of Newcastle Upon Tyne
  • Birmingham Children's Hospital NHS Foundation Trust
  • The Royal Marsden NHS Foundation Trust
  • University Hospital of North Staffordshire
  • Centre for Health Service Economics and Organisation
  • Newcastle upon Tyne Hospitals NHS Foundation Trust
  • Northern Lincolnshire and Goole Hospitals NHS Foundation Trust
  • Lancashire Care NHS Foundation Trust
  • Children's Commissioner's Office
  • Beyond Compliance
  • NHS Trust Development Authority
  • St Helens & Knowsley Teaching Hospitals NHS Trust
  • Cedar, Cardiff and Vale UHB
  • Experian Marketing Services
  • NHS Improving Quality
  • Nice
  • Royal Borough of Greenwich
  • Met Office
  • Birmingham Children’s Hospital
  • Kingston Hospital NHS Trust
  • Health Education East Midlands
  • Organisations with projects that honoured opt outs:

  • Medicines and Healthcare Products Regulatory Agency (MHRA)
  • University College London (UCL)
  • University of Oxford
  • Public Health England (phe)
  • University of Cambridge
  • University Hospitals Birmingham NHS Foundation Trust
  • University of Birmingham
  • University of Bristol
  • University of York
  • Royal College of Physicians of London
  • Royal College of Obstetricians and Gynaecologists (RCOG)
  • London School of Hygiene and Tropical Medicine
  • South London And Maudsley NHS Foundation Trust
  • NHS Blood And Transplant (nhsbt)
  • Imperial College London
  • Queen Mary University Of London
  • NHS Wales Informatics Service (nwis)
  • The Royal College Of Surgeons Of England
  • The University of Manchester
  • University Of Aberdeen
  • University of Nottingham
  • Nuvia Ltd
  • National Institute for Cardiovascular Outcomes Research
  • Ims Health Ltd
  • Wolfson Institute Of Preventive Medicine
  • Royal College of Anaesthetists
  • University of Leeds
  • Cardiff University
  • Ministry Of Defence (mod)
  • North Bristol NHS Trust
  • West Hertfordshire Hospitals NHS Trust (WHHT)
  • University of Sheffield
  • Care Quality Commission (CQC)
  • Royal Free & University College Medical School
  • Gloucestershire Hospitals NHS Foundation Trust
  • Institute of Cancer Research
  • Chelsea And Westminster Hospital NHS Foundation Trust
  • Genomics England
  • Intensive Care National Audit & Research Centre (ICNARC)
  • Northgate Public Services (UK) Limited
  • London North West Healthcare NHS Trust
  • Ucl Institute Of Education (ioe)
  • The Medical School - Newcastle Upon Tyne
  • National Cjd Surveillance Unit
  • London North West University Healthcare NHS Trust
  • Newcastle University
  • Sheffield Teaching Hospitals NHS Foundation Trust
  • University Hospital Southampton NHS Foundation Trust
  • Informatica Systems Ltd
  • Barts Health NHS Trust
  • Health & Safety Laboratory (hsl)
  • Health and Safety Executive
  • IQVIA Solutions UK Limited
  • University College London Hospitals NHS Foundation Trust
  • Nottinghamshire Healthcare NHS Foundation Trust
  • Institute Of Child Health
  • Guy's And St Thomas' NHS Foundation Trust
  • Salford Royal NHS Foundation Trust
  • Cancer Research Uk
  • Royal Devon And Exeter NHS Foundation Trust
  • University of Glasgow
  • Derbyshire Health NHS Foundation Trust
  • Gateshead Health NHS Foundation Trust
  • Institute Of Occupational Medicine (iom)
  • Picker Institute Europe
  • Royal Liverpool University Hospital
  • Cause Action Ltd
  • University Of Leicester
  • University of Warwick
  • Kings College Medical School
  • Royal College Of Paediatrics & Child Health (rcpch)
  • University of Liverpool
  • Kings College Medical School
  • Nottingham City Council
  • King's College London
  • London Borough of Hounslow
  • Cheshire East Council
  • University of Dundee
  • Worcestershire County Council
  • Health & Social Care Information Centre
  • UK Biobank
  • London Borough of Barking and Dagenham
  • Blackburn with Darwen Borough Council
  • London Borough of Richmond Upon Thames Council
  • King's College Hospital NHS Foundation Trust
  • Tameside Metropolitan Borough Council
  • Saving Faces - The Facial Surgery Research Foundation
  • Southampton General Hosptial
  • Solihull Metropolitan Borough Council
  • Cheshire West and Chester Council
  • Havering London Borough Council
  • London Borough of Ealing
  • Halton Borough Council (Unitary)
  • Leeds City Council
  • City of Bradford Metropolitan District Council
  • Society of Endocrinology
  • London Borough of Islington
  • South Gloucestershire Council
  • London Borough of Lambeth Council
  • Kirklees Metropolitan Council
  • The Nuffield Trust
  • Isle of Wight Council
  • Trafford Metropolitan Borough Council
  • London Borough Of Bromley
  • Royal Borough of Kingston-Upon-Thames Council
  • Suffolk County Council
  • North East Lincolnshire Council
  • Cambridge University Hospitals NHS Foundation Trust
  • Bath and North East Somerset Council
  • Gloucestershire County Council
  • Luton Borough Council
  • London Borough of Waltham Forest Council
  • Salford City Council
  • Wakefield Council
  • Southampton City Council
  • North Yorkshire County Council
  • Bury Metropolitan Borough Council
  • Liverpool City Council
  • St Helens Metropolitan Borough Council
  • Stockport Metropolitan Borough Council
  • Medway Council
  • Wiltshire Council
  • Derbyshire County Council
  • Wigan Metropolitan Borough Council
  • Sandwell Metropolitan Borough Council
  • Lincolnshire County Council
  • North Lincolnshire Council
  • Barnsley Metropolitan Borough Council
  • St George's, University of London
  • Hertfordshire County Council
  • University Of Southampton
  • Somerset County Council
  • Bracknell Forest Borough Council
  • Manchester City Council
  • Knowsley Metropolitan Borough Council
  • London Borough of Havering
  • University of East Anglia
  • Surrey County Council
  • Calderdale Metropolitan Borough Council
  • Oldham Metropolitan Borough Council
  • London Borough of Barnet
  • Rochdale Metropolitan Borough Council
  • Newcastle Upon Tyne City Council
  • Dudley Metropolitan Borough Council
  • Portsmouth City Council
  • Warwickshire County Council
  • Cambridgeshire County Council
  • Blackpool Borough Council
  • Staffordshire County Council
  • Lancashire County Council
  • East Riding of Yorkshire Council
  • Torbay Council
  • Brighton and Hove City Council
  • Doncaster Council
  • Wirral Metropolitan Borough Council
  • Derby Teaching Hospitals NHS Foundation Trust
  • Peterborough City Council
  • Thurrock Council
  • National Centre For Social Research
  • Bristol City Council
  • Leicestershire County Council
  • Wolverhampton City Council
  • Hampshire County Council
  • Hmrc
  • Herefordshire Council
  • Cornwall Council
  • Southend on Sea Borough Council
  • South Tyneside Metropolitan Borough Council
  • Kent County Council
  • Northamptonshire County Council
  • London Borough of Redbridge Council
  • Plymouth City Council
  • York City Council
  • London Borough of Bexley
  • West Sussex County Council
  • Buckinghamshire County Council
  • Hackney Council
  • Nottinghamshire County Council
  • Sheffield City Council
  • Cumbria County Council
  • Essex County Council
  • East Sussex County Council
  • Coventry City Council
  • Devon County Council
  • Sefton Council
  • London Borough of Greenwich
  • Warrington Borough Council (Unitary)
  • London Borough of Merton Council
  • Leicester City Council
  • Dorset County Council
  • Birmingham City Council
  • London Borough of Southwark Council
  • London Borough of Lewisham Council
  • Projects above are ordered by volumes of data they receive (longer projects or more data appear higher).

    CSU/CCGs

    These are grouped in the release register, but audited (and fail) independently

  • NHS North East Hampshire and Farnham CCG
  • NHS Hardwick CCG
  • NHS South Tyneside CCG
  • NHS Heywood, Middleton and Rochdale CCG
  • NHS South Warwickshire CCG
  • NHS Crawley CCG
  • NHS Leeds CCG
  • NHS Guildford and Waverley CCG
  • NHS Sunderland CCG
  • NHS Airedale, Wharfedale and Craven CCG
  • NHS Darlington CCG
  • NHS East Surrey CCG
  • NHS Coventry and Rugby CCG
  • NHS South Tees CCG
  • NHS Surrey Heath CCG
  • NHS West Norfolk CCG
  • NHS Liverpool CCG
  • NHS Hambleton, Richmondshire and Whitby CCG
  • NHS Wakefield CCG
  • NHS North Derbyshire CCG
  • NHS Erewash CCG
  • NHS Oxfordshire CCG
  • NHS North Durham CCG
  • NHS Milton Keynes CCG
  • NHS Dartford, Gravesham and Swanley CCG
  • NHS Ashford CCG
  • NHS Corby CCG
  • NHS East Lancashire CCG
  • NHS Barking and Dagenham CCG
  • NHS Stockport CCG
  • NHS Calderdale CCG
  • NHS Birmingham and Solihull CCG
  • NHS Barnet CCG
  • NHS Berkshire West CCG
  • NHS South Norfolk CCG
  • NHS Vale of York CCG
  • NHS Bexley CCG
  • NHS Bradford City CCG
  • NHS Bradford Districts CCG
  • NHS Eastern Cheshire CCG
  • NHS Southport and Formby CCG
  • NHS Hartlepool and Stockton-on-Tees CCG
  • NHS Bristol, North Somerset and South Gloucestershire CCG
  • NHS Canterbury and Coastal CCG
  • NHS North Norfolk CCG
  • NHS Thurrock CCG
  • NHS Gloucestershire CCG
  • NHS Sandwell and West Birmingham CCG
  • NHS West Kent CCG
  • NHS Southern Derbyshire CCG
  • NHS West Suffolk CCG
  • NHS Redbridge CCG
  • NHS Sheffield CCG
  • NHS South Kent Coast CCG
  • NHS Walsall CCG
  • NHS Telford and Wrekin CCG
  • NHS Bury CCG
  • NHS Ipswich and East Suffolk CCG
  • NHS Medway CCG
  • NHS North Tyneside CCG
  • NHS Lincolnshire East CCG
  • NHS Oldham CCG
  • NHS Islington CCG
  • NHS Brent CCG
  • NHS Croydon CCG
  • NHS East Berkshire CCG
  • NHS Norwich CCG
  • NHS Shropshire CCG
  • NHS Southwark CCG
  • NHS Thanet CCG
  • NHS Tameside and Glossop CCG
  • NHS Greenwich CCG
  • NHS Trafford CCG
  • NHS St Helens Ccg
  • NHS Kernow CCG
  • NHS Hull CCG
  • NHS Warwickshire North CCG
  • NHS Swindon CCG
  • NHS Richmond CCG
  • NHS East Riding of Yorkshire CCG
  • NHS Waltham Forest CCG
  • NHS Warrington CCG
  • NHS Brighton and Hove CCG
  • NHS Bedfordshire CCG
  • NHS East and North Hertfordshire CCG
  • NHS North Lincolnshire CCG
  • NHS Kingston CCG
  • NHS West Cheshire CCG
  • NHS East Leicestershire and Rutland CCG
  • NHS Swale CCG
  • NHS Basildon and Brentwood CCG
  • NHS Luton CCG
  • NHS Havering CCG
  • NHS Bolton CCG
  • NHS Bath and North East Somerset CCG
  • NHS Dudley CCG
  • NHS Rotherham CCG
  • NHS Scarborough and Ryedale CCG
  • NHS Wirral CCG
  • NHS Doncaster CCG
  • NHS Somerset CCG
  • NHS Horsham and Mid Sussex CCG
  • NHS Newcastle Gateshead CCG
  • NHS South West Lincolnshire CCG
  • NHS Northumberland CCG
  • NHS Wiltshire CCG
  • NHS Lincolnshire West CCG
  • NHS Salford CCG
  • NHS Lewisham CCG
  • NHS Vale Royal CCG
  • NHS Haringey CCG
  • NHS Greater Preston CCG
  • NHS Manchester CCG
  • NHS West Lancashire CCG
  • NHS Bromley CCG
  • NHS Buckinghamshire CCG
  • NHS Chorley and South Ribble CCG
  • NHS Knowsley CCG
  • NHS North East Lincolnshire CCG
  • NHS Great Yarmouth and Waveney CCG
  • NHS South Sefton CCG
  • NHS Durham Dales, Easington and Sedgefield CCG
  • NHS Enfield CCG
  • NHS North of England Commissioning Support Unit
  • NHS Southend CCG
  • NHS Surrey Downs CCG
  • NHS Rushcliffe CCG
  • NHS North East Essex CCG
  • NHS West Hampshire CCG
  • NHS Harrow CCG
  • NHS Barnsley CCG
  • NHS Portsmouth CCG
  • NHS South Lincolnshire CCG
  • NHS Blackburn with Darwen CCG
  • NHS Halton CCG
  • NHS Blackpool CCG
  • NHS Fylde and Wyre CCG
  • NHS Eastbourne, Hailsham & Seaford Ccg
  • NHS Mansfield and Ashfield CCG
  • NHS West Essex CCG
  • NHS Newark and Sherwood CCG
  • NHS Leicester City CCG
  • NHS Greater Huddersfield CCG
  • NHS Fareham and Gosport CCG
  • NHS Nene CCG
  • NHS North Hampshire CCG
  • NHS South Eastern Hampshire CCG
  • NHS East Staffordshire CCG
  • NHS Stafford and Surrounds CCG
  • NHS Harrogate and Rural District CCG
  • NHS Tower Hamlets Ccg
  • NHS Herefordshire CCG
  • NHS South Worcestershire CCG
  • NHS Stoke On Trent Ccg
  • NHS Mid Essex CCG
  • NHS Redditch and Bromsgrove CCG
  • NHS Cannock Chase CCG
  • NHS Wolverhampton CCG
  • NHS Bassetlaw CCG
  • NHS West London CCG
  • NHS North Kirklees CCG
  • NHS Hammersmith and Fulham CCG
  • NHS Hillingdon CCG
  • NHS Lambeth CCG
  • NHS Ealing CCG
  • NHS Hounslow CCG
  • NHS Wandsworth CCG
  • NHS Wigan Borough Ccg
  • NHS Wyre Forest CCG
  • NHS Central London (Westminster) CCG
  • NHS North Staffordshire CCG
  • NHS Nottingham West CCG
  • NHS Nottingham North and East CCG
  • NHS Leeds South And East Ccg
  • NHS West Leicestershire CCG
  • NHS Northern, Eastern and Western Devon CCG
  • NHS Isle of Wight CCG
  • NHS Nottingham City CCG
  • NHS Merton CCG
  • NHS North and East London Commissioning Support Unit
  • NHS Dorset CCG
  • NHS Sutton CCG
  • NHS Hastings and Rother CCG
  • NHS North West Surrey Ccg
  • NHS South Cheshire CCG
  • NHS Slough Ccg
  • NHS High Weald Lewes Havens CCG
  • NHS Chiltern Ccg
  • NHS Newham Ccg
  • NHS South Reading Ccg
  • NHS Southampton Ccg
  • NHS Herts Valley Ccg
  • NHS South Devon and Torbay CCG
  • NHS Windsor Ascot And Maidenhead Ccg
  • NHS Leeds West Ccg
  • NHS Camden CCG
  • NHS North Cumbria CCG
  • NHS Leeds North Ccg
  • NHS Cambridgeshire and Peterborough CCG
  • NHS Bracknell And Ascot Ccg
  • NHS Castlepoint And Rochford Ccg
  • NHS Coastal West Sussex CCG
  • NHS Cumbria Ccg
  • NHS South East Staffordshire and Seisdon Peninsula CCG
  • NHS Morecambe Bay CCG
  • NHS North And West Reading Ccg
  • NHS Wokingham Ccg
  • NHS Herts Valleys CCG
  • NHS Central Manchester Ccg
  • NHS Midlands And Lancashire Commissioning Support Unit
  • NHS Central Midlands Commissioning Support Unit
  • NHS Bristol Ccg
  • NHS Aylesbury Ccg
  • NHS Newbury And District Ccg
  • NHS Northern Eastern Western Devon Ccg
  • NHS Cambridge And Peterborough Ccg
  • NHS City & Hackney Ccg
  • NHS Solihull Ccg
  • NHS North Somerset Ccg
  • NHS South Gloucestershire Ccg
  • NHS North Manchester Ccg
  • NHS South Manchester Ccg
  • NHS Castle Point and Rochford CCG
  • NHS Birmingham South And Central Ccg
  • NHS Durham Dales, Easington & Sedgefield Ccg
  • NHS Lancashire North Ccg
  • NHS City and Hackney CCG
  • NHS South East Staffs And Seisdon Peninsular Ccg
  • NHS Birmingham Cross City Ccg
  • NHS Southampton City CCG
  • NHS South, Central And West Commissioning Support Unit
  • NHS Aylesbury Vale Ccg
  • NHS Birmingham Crosscity Ccg
  • Csus, Ccgs
  • NHS Bracknell And Ascot Ccg
  • NHS Windsor, Ascot And Maidenhead Ccg
  • NHS Newbury And District Ccg
  • NHS Fylde & Wyre Ccg
  • NHS Eastbourne, Hailsham and Seaford CCG
  • NHS South Commissioning Support Unit
  • Central Southern Commissioning Support Unit