NHS Digital Data Release Register - reformatted

This is a readable version of NHS Digital's Data Release Registers since April 2016 - the "complete" list of where NHS Digital sends data on hospital patients after being paid a fee, and whether that release respected opt outs or not. For how to express that choice, medConfidential has more details.

This page is updated when NHS Digital publish more data. This page doesn't currently include anything from the cancer registry, whose release register is incomplete and wrong (e.g. when NDRS says 'You can find out more about these research projects here' many organisations simply aren't listed). PHE started respecting the National Data Opt Out in September 2018, and releases made after this date will be included (register publication lags release by at least 3 months).

Organisations that breached the rules:

Organisations with projects that ignored opt outs:

  • Monitor
  • Methods Analytics Ltd
  • National Audit Office
  • Harvey Walsh Ltd
  • Wilmington Healthcare
  • Kpmg Llp
  • Ernst And Young Llp
  • Optum Health Solutions Uk Limited
  • CHKS Limited
  • The Health Foundation
  • London Borough of Newham Council
  • Oliver Wyman
  • Device Access UK Ltd
  • Lightfoot Solutions UK Ltd
  • Health IQ Ltd
  • Southend-on-sea Borough Council (unitary)
  • i5 Health
  • Gateshead Council
  • NHS National Services Scotland
  • MedeAnalytics International Limited
  • Kingston Hospital NHS Foundation Trust
  • NHS Central Register Scotland
  • Calderdale Council
  • Bradford Metropolitan District Council
  • London Borough of Enfield
  • Royal Liverpool And Broadgreen University Hospitals NHS Trust
  • Nottingham City Council (unitary)
  • Compufile Systems Limited
  • Harrow Council
  • Telford And Wrekin Council
  • Office for National Statistics (ONS)
  • Nhis
  • Northumberland, Tyne and Wear NHS Foundation Trust
  • CRAB Clinical Informatics
  • Addenbrooke's Hospital
  • Oxford University Hospitals NHS Trust
  • London Borough Of Newham Council
  • Royal Brompton and Harefield NHS Trust
  • Westminster City Council
  • Sefton Metropolitan Borough Council
  • Brighton & Hove City Council
  • Private Healthcare Information Network (PHIN)
  • University Of Surrey
  • NHS England (quarry House)
  • University Of Hull
  • The Brain Tumour Charity
  • Kent County Council
  • Newcastle City Council
  • London Borough Of Wandsworth
  • The Newcastle upon Tyne Hospitals NHS Foundation Trust
  • Redcar & Cleveland Council (unitary)
  • Islington Council
  • NHS England Direct Commissioning
  • NHS England
  • Wiltshire Council
  • British Society Of Gastroenterology
  • Oliver Wyman Ltd
  • NHS England
  • Regional Drug & Therapeutic Centre
  • Derby City Council
  • University Of Essex
  • Mckinsey & Company
  • RAND Europe
  • Plymouth City Council
  • Meditrends Ltd
  • Capita
  • Northamptonshire County Council
  • London Borough of Tower Hamlets Council
  • Durham County Council
  • University Of Edinburgh
  • The Nuffield Trust For Research And Policy Studies In Health Services
  • Birmingham Women's and Children's NHS Foundation Trust
  • University Of Exeter
  • Telford and Wrekin Council (Unitary)
  • The Clatterbridge Cancer Centre NHS Foundation Trust
  • Leeds Teaching Hospitals NHS Trust
  • Nottingham University Hospitals NHS Trust
  • Western General Hospital
  • London School Of Economics And Political Science (lse)
  • Imperial College London Business School
  • Halton Borough Council
  • Pharmerit International
  • Competition & Markets Authority
  • London Borough Of Southwark
  • St James University Hospital NHS Trust
  • Gateshead Metropolitan Borough Council
  • London Borough of Hackney
  • 3m United Kingdom Plc
  • Cheshire East Borough Council
  • The Institute For Fiscal Studies (ifs)
  • National Institute for Health and Care Excellence (NICE)
  • University Hospitals Coventry And Warwickshire NHS Trust
  • Saving Faces
  • University Hospitals Bristol NHS Foundation Trust
  • Plymouth University
  • Civil Eyes Research Ltd
  • Department For Transport
  • CSL-UK (CompuFile System Limited)
  • Redcar and Cleveland Borough Council
  • Manchester University NHS Foundation Trust
  • Dr. Foster Limited
  • Royal Free London NHS Foundation Trust
  • Non-specialist Acute Trusts In England
  • Pathway Communications Ltd
  • Vanguard - Moorfields Eye Hospital NHS Foundation Trust
  • University Hospital Of South Manchester NHS Foundation Trust
  • Oxford University Hospitals NHS Foundation Trust
  • Local Authorities: Data Has Been Made Available To The Public Health Sections Of 91 Councils
  • Bradford Teaching Hospitals NHS Foundation Trust
  • London Borough Of Hillingdon
  • The King's Fund
  • Poole Hospital NHS Foundation Trust
  • University Hospitals of Derby and Burton NHS Foundation Trust
  • Department of Health and Social Care
  • Wilmington Healthcare
  • Health Innovation Network - South London
  • Oxfordshire County Council
  • Breast Test Wales
  • University Of London (uol)
  • Rod Gibson Associates Ltd
  • Department Of Health (dh)
  • Neil Wilson Associates Llp
  • University Hospitals Of North Midlands NHS Trust
  • Competition and Markets Authority
  • Beacon Consulting
  • Trafford Council
  • FTI Consulting
  • NHS England (temporary National Repository)
  • Royal National Orthopaedic Hospital NHS Trust
  • Central Manchester University Hospitals NHS Foundation Trust
  • The Dudley Group NHS Foundation Trust
  • NHS Trust Development Authority (ntda)
  • Royal Derby Hospitals
  • Lambeth London Borough Council
  • City Of York Council
  • Hull And East Yorkshire Hospitals NHS Trust
  • London Borough Of Tower Hamlets
  • The Nuffield Department Of Surgical Sciences - Nds
  • St George's Hospital Medical School
  • Dr. Foster
  • Birmingham Children's Hospital NHS Foundation Trust
  • University Of Newcastle Upon Tyne
  • Centre for Health Service Economics and Organisation
  • University Hospital of North Staffordshire
  • Beyond Compliance
  • Children's Commissioner's Office
  • Newcastle upon Tyne Hospitals NHS Foundation Trust
  • Experian Marketing Services
  • The Royal Marsden NHS Foundation Trust
  • Northern Lincolnshire and Goole Hospitals NHS Foundation Trust
  • NHS Improving Quality
  • Met Office
  • St Helens & Knowsley Teaching Hospitals NHS Trust
  • Nice
  • Lancashire Care NHS Foundation Trust
  • Birmingham Children’s Hospital
  • Cedar, Cardiff and Vale UHB
  • Kingston Hospital NHS Trust
  • Health Education East Midlands
  • NHS Trust Development Authority
  • Royal Borough of Greenwich
  • Organisations with projects that honoured opt outs:

  • Medicines and Healthcare Products Regulatory Agency (MHRA)
  • University of Oxford
  • University College London (UCL)
  • Public Health England (phe)
  • University of Cambridge
  • University Hospitals Birmingham NHS Foundation Trust
  • University of Birmingham
  • University of Bristol
  • University of York
  • Royal College of Physicians of London
  • Royal College of Obstetricians and Gynaecologists (RCOG)
  • South London And Maudsley NHS Foundation Trust
  • London School of Hygiene and Tropical Medicine
  • NHS Blood And Transplant (nhsbt)
  • Imperial College London
  • Queen Mary University of London
  • NHS Wales Informatics Service (nwis)
  • The Royal College Of Surgeons Of England
  • University of Nottingham
  • The University of Manchester
  • University Of Aberdeen
  • Nuvia Ltd
  • National Institute for Cardiovascular Outcomes Research
  • Ims Health Ltd
  • Wolfson Institute Of Preventive Medicine
  • Royal College of Anaesthetists
  • University of Leeds
  • Cardiff University
  • Ministry Of Defence (mod)
  • Genomics England
  • North Bristol NHS Trust
  • Intensive Care National Audit & Research Centre (ICNARC)
  • West Hertfordshire Hospitals NHS Trust (WHHT)
  • Care Quality Commission (CQC)
  • University of Sheffield
  • Institute of Cancer Research
  • Gloucestershire Hospitals NHS Foundation Trust
  • Royal Free & University College Medical School
  • Chelsea And Westminster Hospital NHS Foundation Trust
  • Northgate Public Services (UK) Limited
  • London North West Healthcare NHS Trust
  • Ucl Institute Of Education (ioe)
  • Newcastle University
  • The Medical School - Newcastle Upon Tyne
  • National Cjd Surveillance Unit
  • London North West University Healthcare NHS Trust
  • Sheffield Teaching Hospitals NHS Foundation Trust
  • University Hospital Southampton NHS Foundation Trust
  • Informatica Systems Ltd
  • Health and Safety Executive
  • University of Glasgow
  • Health & Safety Laboratory (hsl)
  • Barts Health NHS Trust
  • IQVIA Solutions UK Limited
  • University of Dundee
  • University College London Hospitals NHS Foundation Trust
  • Nottinghamshire Healthcare NHS Foundation Trust
  • Guy's And St Thomas' NHS Foundation Trust
  • Institute Of Child Health
  • Salford Royal NHS Foundation Trust
  • Royal Devon and Exeter NHS Foundation Trust
  • Cancer Research Uk
  • Derbyshire Health NHS Foundation Trust
  • Gateshead Health NHS Foundation Trust
  • Institute Of Occupational Medicine (iom)
  • Picker Institute Europe
  • Royal Liverpool University Hospital
  • University of Leicester
  • Cause Action Ltd
  • King's College Hospital NHS Foundation Trust
  • Saving Faces - The Facial Surgery Research Foundation
  • University of Liverpool
  • London Borough of Bexley
  • London Borough of Hounslow
  • Royal College Of Paediatrics & Child Health (rcpch)
  • London Borough of Richmond Upon Thames Council
  • Tameside Metropolitan Borough Council
  • Kings College Medical School
  • Blackburn with Darwen Borough Council
  • University of Warwick
  • London Borough of Barking and Dagenham
  • Nottingham City Council
  • Cheshire East Council
  • Kings College Medical School
  • Medical Research Council Clinical Trials Unit
  • Wiltshire Council
  • St George's, University of London
  • Lincolnshire County Council
  • London Borough of Sutton Council
  • Cornwall Council
  • Warrington Borough Council (Unitary)
  • Stockport Metropolitan Borough Council
  • Manchester City Council
  • Southampton City Council
  • Herefordshire Council
  • Salford City Council
  • Derbyshire County Council
  • Luton Borough Council
  • Cambridgeshire County Council
  • Essex County Council
  • Blackpool Borough Council
  • London Borough of Havering
  • Barnsley Metropolitan Borough Council
  • Somerset County Council
  • Wigan Metropolitan Borough Council
  • Bristol City Council
  • Gloucestershire County Council
  • Birmingham City Council
  • North Yorkshire County Council
  • Wolverhampton City Council
  • Brighton and Hove City Council
  • Nottinghamshire County Council
  • Hampshire County Council
  • Warwickshire County Council
  • London Borough of Barnet
  • North Lincolnshire Council
  • Wirral Metropolitan Borough Council
  • York City Council
  • Doncaster Council
  • UK Biobank
  • Calderdale Metropolitan Borough Council
  • London Borough of Waltham Forest Council
  • Portsmouth City Council
  • Hmrc
  • Northamptonshire County Council
  • Devon County Council
  • Medway Council
  • Halton Borough Council (Unitary)
  • Thurrock Council
  • London Borough of Greenwich
  • Sandwell Metropolitan Borough Council
  • Dudley Metropolitan Borough Council
  • Leicestershire County Council
  • Trafford Metropolitan Borough Council
  • South Tyneside Metropolitan Borough Council
  • West Sussex County Council
  • East Riding of Yorkshire Council
  • Staffordshire County Council
  • Leeds City Council
  • Bury Metropolitan Borough Council
  • Sefton Council
  • Buckinghamshire County Council
  • Peterborough City Council
  • London Borough of Merton Council
  • Worcestershire County Council
  • London Borough of Lewisham Council
  • London Borough of Islington
  • City of Bradford Metropolitan District Council
  • North East Lincolnshire Council
  • London Borough of Redbridge Council
  • London Borough of Ealing
  • Cheshire West and Chester Council
  • Leicester City Council
  • Lancashire County Council
  • Liverpool City Council
  • Kirklees Metropolitan Council
  • South Gloucestershire Council
  • Norfolk County Council
  • Royal Borough of Kingston-Upon-Thames Council
  • Isle of Wight Council
  • Suffolk County Council
  • Rochdale Metropolitan Borough Council
  • Sheffield City Council
  • Kent County Council
  • Newcastle Upon Tyne City Council
  • Solihull Metropolitan Borough Council
  • Cumbria County Council
  • Hertfordshire County Council
  • Knowsley Metropolitan Borough Council
  • Health & Social Care Information Centre
  • St Helens Metropolitan Borough Council
  • East Sussex County Council
  • Oldham Metropolitan Borough Council
  • London Borough Of Bromley
  • Northumberland County Council
  • Torbay Council
  • Wakefield Council
  • Southend on Sea Borough Council
  • Coventry City Council
  • King's College London
  • Bracknell Forest Borough Council
  • London Borough of Lambeth Council
  • Dorset County Council
  • London Borough of Southwark Council
  • Bath and North East Somerset Council
  • Plymouth City Council
  • Havering London Borough Council
  • University Of Southampton
  • Hackney Council
  • Surrey County Council
  • National Centre For Social Research
  • University of East Anglia
  • Cambridge University Hospitals NHS Foundation Trust
  • Derby Teaching Hospitals NHS Foundation Trust
  • Sunderland City Council
  • Southampton General Hosptial
  • Society of Endocrinology
  • The Nuffield Trust
  • Projects above are ordered by volumes of data they receive (longer projects or more data appear higher).

    CSU/CCGs

    These are grouped in the release register, but audited (and fail) independently

  • NHS North East Hampshire and Farnham CCG
  • NHS Heywood, Middleton and Rochdale CCG
  • NHS Leeds CCG
  • NHS Hardwick CCG
  • NHS South Tyneside CCG
  • NHS South Warwickshire CCG
  • NHS Guildford and Waverley CCG
  • NHS Airedale, Wharfedale and Craven CCG
  • NHS East Lancashire CCG
  • NHS Crawley CCG
  • NHS East Surrey CCG
  • NHS Sunderland CCG
  • NHS Coventry and Rugby CCG
  • NHS Birmingham and Solihull CCG
  • NHS West Norfolk CCG
  • NHS Darlington CCG
  • NHS North Durham CCG
  • NHS Barking and Dagenham CCG
  • NHS Berkshire West CCG
  • NHS Bexley CCG
  • NHS Liverpool CCG
  • NHS Hambleton, Richmondshire and Whitby CCG
  • NHS Wakefield CCG
  • NHS North Derbyshire CCG
  • NHS Sandwell and West Birmingham CCG
  • NHS South Tees CCG
  • NHS Oxfordshire CCG
  • NHS Gloucestershire CCG
  • NHS Erewash CCG
  • NHS Sheffield CCG
  • NHS Ashford CCG
  • NHS Telford and Wrekin CCG
  • NHS Milton Keynes CCG
  • NHS Lincolnshire East CCG
  • NHS Dartford, Gravesham and Swanley CCG
  • NHS Corby CCG
  • NHS Calderdale CCG
  • NHS Surrey Heath CCG
  • NHS Barnet CCG
  • NHS Shropshire CCG
  • NHS Swindon CCG
  • NHS Eastern Cheshire CCG
  • NHS Canterbury and Coastal CCG
  • NHS Bristol, North Somerset and South Gloucestershire CCG
  • NHS Southport and Formby CCG
  • NHS Stockport CCG
  • NHS Bolton CCG
  • NHS South Kent Coast CCG
  • NHS Dudley CCG
  • NHS Southern Derbyshire CCG
  • NHS Walsall CCG
  • NHS Buckinghamshire CCG
  • NHS Manchester CCG
  • NHS Thanet CCG
  • NHS East Berkshire CCG
  • NHS Greater Preston CCG
  • NHS Croydon CCG
  • NHS Brent CCG
  • NHS South Norfolk CCG
  • NHS Trafford CCG
  • NHS Islington CCG
  • NHS Tameside and Glossop CCG
  • NHS Kernow CCG
  • NHS Bradford City CCG
  • NHS Bradford Districts CCG
  • NHS Vale of York CCG
  • NHS Bedfordshire CCG
  • NHS Fylde and Wyre CCG
  • NHS East and North Hertfordshire CCG
  • NHS Hartlepool and Stockton-on-Tees CCG
  • NHS Bury CCG
  • NHS North Norfolk CCG
  • NHS Doncaster CCG
  • NHS East Leicestershire and Rutland CCG
  • NHS Rotherham CCG
  • NHS Swale CCG
  • NHS Luton CCG
  • NHS West Kent CCG
  • NHS Somerset CCG
  • NHS Oldham CCG
  • NHS Medway CCG
  • NHS Ipswich and East Suffolk CCG
  • NHS Northumberland CCG
  • NHS North East Lincolnshire CCG
  • NHS North Tyneside CCG
  • NHS Salford CCG
  • NHS Wolverhampton CCG
  • NHS West Lancashire CCG
  • NHS Durham Dales, Easington and Sedgefield CCG
  • NHS Chorley and South Ribble CCG
  • NHS Norwich CCG
  • NHS Enfield CCG
  • NHS Southwark CCG
  • NHS Greenwich CCG
  • NHS St Helens Ccg
  • NHS Warwickshire North CCG
  • NHS Richmond CCG
  • NHS Brighton and Hove CCG
  • NHS Blackburn with Darwen CCG
  • NHS East Riding of Yorkshire CCG
  • NHS Waltham Forest CCG
  • NHS Hull CCG
  • NHS Blackpool CCG
  • NHS Fareham and Gosport CCG
  • NHS Warrington CCG
  • NHS Kingston CCG
  • NHS Redbridge CCG
  • NHS Basildon and Brentwood CCG
  • NHS North Lincolnshire CCG
  • NHS West Cheshire CCG
  • NHS Thurrock CCG
  • NHS Bath and North East Somerset CCG
  • NHS Havering CCG
  • NHS Wirral CCG
  • NHS West Suffolk CCG
  • NHS Scarborough and Ryedale CCG
  • NHS Lincolnshire West CCG
  • NHS Newcastle Gateshead CCG
  • NHS South West Lincolnshire CCG
  • NHS Knowsley CCG
  • NHS Lewisham CCG
  • NHS Wiltshire CCG
  • NHS Haringey CCG
  • NHS Great Yarmouth and Waveney CCG
  • NHS South Sefton CCG
  • NHS Bromley CCG
  • NHS Surrey Downs CCG
  • NHS Harrow CCG
  • NHS North East Essex CCG
  • NHS South Lincolnshire CCG
  • NHS Halton CCG
  • NHS Rushcliffe CCG
  • NHS Barnsley CCG
  • NHS West Hampshire CCG
  • NHS Portsmouth CCG
  • NHS Greater Huddersfield CCG
  • NHS Mansfield and Ashfield CCG
  • NHS West Essex CCG
  • NHS Leicester City CCG
  • NHS Newark and Sherwood CCG
  • NHS North Hampshire CCG
  • NHS Harrogate and Rural District CCG
  • NHS Dorset CCG
  • NHS South Eastern Hampshire CCG
  • NHS Horsham and Mid Sussex CCG
  • NHS Nene CCG
  • NHS Vale Royal CCG
  • NHS East Staffordshire CCG
  • NHS Stafford and Surrounds CCG
  • NHS Herefordshire CCG
  • NHS North of England Commissioning Support Unit
  • NHS Stoke On Trent Ccg
  • NHS South Worcestershire CCG
  • NHS Southend CCG
  • NHS North Kirklees CCG
  • NHS Redditch and Bromsgrove CCG
  • NHS Cannock Chase CCG
  • NHS Bassetlaw CCG
  • NHS Lambeth CCG
  • NHS Wigan Borough CCG
  • NHS North Staffordshire CCG
  • NHS Eastbourne, Hailsham & Seaford Ccg
  • NHS Wyre Forest CCG
  • NHS Nottingham North and East CCG
  • NHS Nottingham West CCG
  • NHS Northern, Eastern and Western Devon CCG
  • NHS West Leicestershire CCG
  • NHS Nottingham City CCG
  • NHS Tower Hamlets CCG
  • NHS Mid Essex CCG
  • NHS Morecambe Bay CCG
  • NHS Herts Valleys CCG
  • NHS West London CCG
  • NHS Hammersmith and Fulham CCG
  • NHS Hounslow CCG
  • NHS Ealing CCG
  • NHS Hillingdon CCG
  • NHS Wandsworth CCG
  • NHS Central London (Westminster) CCG
  • NHS Leeds South And East Ccg
  • NHS Isle of Wight CCG
  • NHS North and East London Commissioning Support Unit
  • NHS Merton CCG
  • NHS Cambridgeshire and Peterborough CCG
  • NHS North Cumbria CCG
  • NHS South East Staffordshire and Seisdon Peninsula CCG
  • NHS Hastings and Rother CCG
  • NHS Sutton CCG
  • NHS South Cheshire CCG
  • NHS North West Surrey Ccg
  • NHS Slough Ccg
  • NHS High Weald Lewes Havens CCG
  • NHS Chiltern Ccg
  • NHS South Devon and Torbay CCG
  • NHS Newham CCG
  • NHS South Reading Ccg
  • NHS Southampton Ccg
  • NHS Herts Valley Ccg
  • NHS Camden CCG
  • NHS Windsor Ascot And Maidenhead Ccg
  • NHS Leeds West Ccg
  • NHS Leeds North Ccg
  • NHS Bracknell And Ascot Ccg
  • NHS Coastal West Sussex CCG
  • NHS Castlepoint And Rochford Ccg
  • NHS Cumbria Ccg
  • NHS North And West Reading Ccg
  • NHS Wokingham Ccg
  • NHS Central Manchester Ccg
  • NHS Midlands And Lancashire Commissioning Support Unit
  • NHS Central Midlands Commissioning Support Unit
  • NHS Bristol Ccg
  • NHS Northern Eastern Western Devon Ccg
  • NHS Aylesbury Ccg
  • NHS Newbury And District Ccg
  • NHS City & Hackney Ccg
  • NHS Cambridge And Peterborough Ccg
  • NHS Solihull Ccg
  • NHS North Somerset Ccg
  • NHS South Gloucestershire Ccg
  • NHS North Manchester Ccg
  • NHS South Manchester Ccg
  • NHS Castle Point and Rochford CCG
  • NHS Birmingham South And Central Ccg
  • NHS Durham Dales, Easington & Sedgefield Ccg
  • NHS City and Hackney CCG
  • NHS Lancashire North Ccg
  • NHS South East Staffs And Seisdon Peninsular Ccg
  • NHS Southampton City CCG
  • NHS Birmingham Cross City Ccg
  • NHS South, Central and West Commissioning Support Unit
  • NHS Aylesbury Vale Ccg
  • NHS Birmingham Crosscity Ccg
  • Csus, Ccgs
  • NHS Newbury And District Ccg
  • NHS Bracknell And Ascot Ccg
  • NHS Windsor, Ascot And Maidenhead Ccg
  • NHS Fylde & Wyre Ccg
  • NHS Eastbourne, Hailsham and Seaford CCG
  • Central Southern Commissioning Support Unit
  • NHS South Commissioning Support Unit