NHS Digital Data Release Register - reformatted

This is a readable version of NHS Digital's Data Release Registers since April 2016 - the "complete" list of where NHS Digital sends data on hospital patients after being paid a fee, and whether that release respected opt outs or not. For how to express that choice, medConfidential has more details.

This page is updated when NHS Digital publish more data. This page doesn't currently include anything from the cancer registry, whose release register is incomplete and wrong (e.g. when NDRS says 'You can find out more about these research projects here' many organisations simply aren't listed). PHE started respecting the National Data Opt Out in September 2018, and releases made after this date will be included (register publication lags release by at least 3 months).

Organisations that breached the rules:

Organisations with projects that ignored opt outs:

  • Monitor
  • Methods Analytics Ltd
  • National Audit Office
  • Harvey Walsh Ltd
  • The Health Foundation
  • Wilmington Healthcare
  • Kpmg Llp
  • Optum Health Solutions UK Limited
  • Ernst And Young Llp
  • i5 Health
  • CHKS Limited
  • London Borough of Newham Council
  • Oliver Wyman
  • Device Access UK Ltd
  • Health IQ Ltd
  • Lightfoot Solutions UK Ltd
  • Southend-on-sea Borough Council (unitary)
  • Gateshead Council
  • NHS National Services Scotland
  • Kingston Hospital NHS Foundation Trust
  • MedeAnalytics International Limited
  • London Borough of Enfield
  • Northumberland, Tyne and Wear NHS Foundation Trust
  • NHS Central Register Scotland
  • Bradford Metropolitan District Council
  • Calderdale Council
  • Compufile Systems Limited
  • Office for National Statistics (ONS)
  • Royal Liverpool And Broadgreen University Hospitals NHS Trust
  • Nottingham City Council (unitary)
  • NHS England (quarry House)
  • Harrow Council
  • CRAB Clinical Informatics
  • Telford And Wrekin Council
  • Nhis
  • Regional Drug & Therapeutic Centre
  • Addenbrooke's Hospital
  • Derby City Council
  • Oxford University Hospitals NHS Trust
  • London Borough Of Newham Council
  • Telford and Wrekin Council (Unitary)
  • London Borough of Tower Hamlets Council
  • Royal Brompton and Harefield NHS Trust
  • Durham County Council
  • Westminster City Council
  • Brighton & Hove City Council
  • Sefton Metropolitan Borough Council
  • University Of Surrey
  • Private Healthcare Information Network (PHIN)
  • The Newcastle upon Tyne Hospitals NHS Foundation Trust
  • The Brain Tumour Charity
  • Kent County Council
  • University Of Hull
  • Newcastle City Council
  • London Borough Of Wandsworth
  • Birmingham Women's and Children's NHS Foundation Trust
  • Redcar & Cleveland Council (unitary)
  • Islington Council
  • NHS England
  • NHS England Direct Commissioning
  • Wiltshire Council
  • British Society Of Gastroenterology
  • Oliver Wyman Ltd
  • NHS England
  • Meditrends Ltd
  • Nottingham University Hospitals NHS Trust
  • London Borough of Hackney
  • University Of Essex
  • Mckinsey & Company
  • RAND Europe
  • Plymouth City Council
  • Capita
  • The Nuffield Trust For Research And Policy Studies In Health Services
  • Gateshead Metropolitan Borough Council
  • National Institute for Health and Care Excellence (NICE)
  • Northamptonshire County Council
  • Oxfordshire County Council
  • University Of Exeter
  • University Of Edinburgh
  • Redcar and Cleveland Borough Council
  • The Clatterbridge Cancer Centre NHS Foundation Trust
  • University Hospitals of Derby and Burton NHS Foundation Trust
  • Department of Health and Social Care
  • Health Innovation Network - South London
  • Leeds Teaching Hospitals NHS Trust
  • Western General Hospital
  • Imperial College London Business School
  • Pharmerit International
  • Competition & Markets Authority
  • Halton Borough Council
  • London Borough Of Southwark
  • London School Of Economics And Political Science (lse)
  • St James University Hospital NHS Trust
  • Cheshire East Borough Council
  • The Institute For Fiscal Studies (ifs)
  • 3m United Kingdom Plc
  • Non-specialist Acute Trusts In England
  • University Hospitals Coventry And Warwickshire NHS Trust
  • Saving Faces
  • University Hospitals Bristol NHS Foundation Trust
  • Dr. Foster Limited
  • Plymouth University
  • CSL-UK (CompuFile System Limited)
  • Civil Eyes Research Ltd
  • Department For Transport
  • Poole Hospital NHS Foundation Trust
  • Manchester University NHS Foundation Trust
  • Royal Free London NHS Foundation Trust
  • Oxford University Hospitals NHS Foundation Trust
  • Vanguard - Moorfields Eye Hospital NHS Foundation Trust
  • University Hospital Of South Manchester NHS Foundation Trust
  • Pathway Communications Ltd
  • Local Authorities: Data Has Been Made Available To The Public Health Sections Of 91 Councils
  • Bradford Teaching Hospitals NHS Foundation Trust
  • The King's Fund
  • London Borough Of Hillingdon
  • Wilmington Healthcare
  • Department Of Health (dh)
  • University Of London (uol)
  • Rod Gibson Associates Ltd
  • Breast Test Wales
  • Neil Wilson Associates Llp
  • University Hospitals Of North Midlands NHS Trust
  • FTI Consulting
  • London Borough of Harrow
  • Competition and Markets Authority
  • Trafford Council
  • Beacon Consulting
  • NHS England (temporary National Repository)
  • Central Manchester University Hospitals NHS Foundation Trust
  • NHS Trust Development Authority (ntda)
  • Royal National Orthopaedic Hospital NHS Trust
  • The Dudley Group NHS Foundation Trust
  • London Borough Of Tower Hamlets
  • Lambeth London Borough Council
  • Hull And East Yorkshire Hospitals NHS Trust
  • City Of York Council
  • St George's Hospital Medical School
  • The Nuffield Department Of Surgical Sciences - Nds
  • Royal Derby Hospitals
  • University Of Newcastle Upon Tyne
  • Dr. Foster
  • Birmingham Children's Hospital NHS Foundation Trust
  • NHS Trust Development Authority
  • The Royal Marsden NHS Foundation Trust
  • Kingston Hospital NHS Trust
  • Centre for Health Service Economics and Organisation
  • Met Office
  • Royal Borough of Greenwich
  • Cedar, Cardiff and Vale UHB
  • Lancashire Care NHS Foundation Trust
  • Children's Commissioner's Office
  • University Hospital of North Staffordshire
  • Experian Marketing Services
  • Birmingham Children’s Hospital
  • Health Education East Midlands
  • Northern Lincolnshire and Goole Hospitals NHS Foundation Trust
  • Newcastle upon Tyne Hospitals NHS Foundation Trust
  • St Helens & Knowsley Teaching Hospitals NHS Trust
  • NHS Improving Quality
  • Beyond Compliance
  • Nice
  • Organisations with projects that honoured opt outs:

  • Medicines and Healthcare Products Regulatory Agency (MHRA)
  • University of Oxford
  • University College London (UCL)
  • Public Health England (phe)
  • University of Cambridge
  • University Hospitals Birmingham NHS Foundation Trust
  • University of Bristol
  • University of Birmingham
  • University of York
  • Royal College of Physicians of London
  • South London and Maudsley NHS Foundation Trust
  • Royal College of Obstetricians and Gynaecologists (RCOG)
  • Queen Mary University of London
  • London School of Hygiene and Tropical Medicine
  • NHS Wales Informatics Service (nwis)
  • NHS Blood And Transplant (nhsbt)
  • UK Biobank
  • Imperial College London
  • The University of Manchester
  • The Royal College of Surgeons of England
  • University of Sheffield
  • University of Nottingham
  • Intensive Care National Audit & Research Centre (ICNARC)
  • Nuvia Ltd
  • University of Leeds
  • Health & Social Care Information Centre
  • Wolfson Institute of Preventive Medicine
  • Care Quality Commission (CQC)
  • University Of Aberdeen
  • Newcastle University
  • National Institute for Cardiovascular Outcomes Research
  • Ims Health Ltd
  • Cardiff University
  • Royal College of Anaesthetists
  • Ministry Of Defence (mod)
  • Genomics England
  • West Hertfordshire Hospitals NHS Trust (WHHT)
  • North Bristol NHS Trust
  • Institute of Cancer Research
  • Gloucestershire Hospitals NHS Foundation Trust
  • Royal Free & University College Medical School
  • Chelsea And Westminster Hospital NHS Foundation Trust
  • Northgate Public Services (UK) Limited
  • London North West Healthcare NHS Trust
  • London North West University Healthcare NHS Trust
  • Barts Health NHS Trust
  • Ucl Institute Of Education (ioe)
  • The Medical School - Newcastle Upon Tyne
  • National Cjd Surveillance Unit
  • Health and Safety Executive
  • Sheffield Teaching Hospitals NHS Foundation Trust
  • Informatica Systems Ltd
  • University Hospital Southampton NHS Foundation Trust
  • Health & Safety Laboratory (hsl)
  • University of Glasgow
  • IQVIA Solutions UK Limited
  • University of Dundee
  • University College London Hospitals NHS Foundation Trust
  • Nottinghamshire Healthcare NHS Foundation Trust
  • McKinsey & Company, Inc. United Kingdom
  • Institute Of Child Health
  • Guy's And St Thomas' NHS Foundation Trust
  • Royal Devon and Exeter NHS Foundation Trust
  • Salford Royal NHS Foundation Trust
  • Cancer Research Uk
  • Royal Liverpool University Hospital
  • Leicestershire County Council
  • Derbyshire Health NHS Foundation Trust
  • Gateshead Health NHS Foundation Trust
  • London Borough of Barking and Dagenham
  • Blackburn with Darwen Borough Council
  • London Borough of Richmond Upon Thames Council
  • London Borough of Bexley
  • Cheshire East Council
  • Nottingham City Council
  • London Borough of Hounslow
  • King's College Hospital NHS Foundation Trust
  • Worcestershire County Council
  • Surrey County Council
  • Tameside Metropolitan Borough Council
  • Barnsley Metropolitan Borough Council
  • Northumberland County Council
  • Leeds City Council
  • Cheshire West and Chester Council
  • Derbyshire County Council
  • London Borough of Islington
  • Thurrock Council
  • Suffolk County Council
  • Trafford Metropolitan Borough Council
  • Southampton City Council
  • Doncaster Council
  • Picker Institute Europe
  • City of Bradford Metropolitan District Council
  • Bracknell Forest Borough Council
  • Kent County Council
  • Herefordshire Council
  • Cambridgeshire County Council
  • North Yorkshire County Council
  • Bristol City Council
  • York City Council
  • Institute Of Occupational Medicine (iom)
  • Sandwell Metropolitan Borough Council
  • Cornwall Council
  • Southend on Sea Borough Council
  • London Borough of Southwark Council
  • East Sussex County Council
  • Halton Borough Council (Unitary)
  • Blackpool Borough Council
  • Bury Metropolitan Borough Council
  • Wiltshire Council
  • London Borough of Barnet
  • Sheffield City Council
  • Coventry City Council
  • Wakefield Council
  • Wolverhampton City Council
  • Newcastle Upon Tyne City Council
  • Norfolk County Council
  • London Borough of Lewisham Council
  • Nottinghamshire County Council
  • North Lincolnshire Council
  • Leicester City Council
  • Warrington Borough Council (Unitary)
  • Dudley Metropolitan Borough Council
  • London Borough of Ealing
  • Portsmouth City Council
  • Essex County Council
  • Sefton Council
  • South Gloucestershire Council
  • London Borough of Sutton Council
  • London Borough of Lambeth Council
  • Wirral Metropolitan Borough Council
  • Royal Borough of Kingston-Upon-Thames Council
  • Bath and North East Somerset Council
  • Knowsley Metropolitan Borough Council
  • Warwickshire County Council
  • Salford City Council
  • South Tyneside Metropolitan Borough Council
  • Hertfordshire County Council
  • Somerset County Council
  • Medway Council
  • Sunderland City Council
  • Peterborough City Council
  • London Borough of Havering
  • Plymouth City Council
  • Luton Borough Council
  • Lancashire County Council
  • Staffordshire County Council
  • Stockport Metropolitan Borough Council
  • Isle of Wight Council
  • Buckinghamshire County Council
  • London Borough of Waltham Forest Council
  • Gloucestershire County Council
  • Liverpool City Council
  • Northamptonshire County Council
  • London Borough Of Bromley
  • Brighton and Hove City Council
  • Devon County Council
  • Manchester City Council
  • St Helens Metropolitan Borough Council
  • Rochdale Metropolitan Borough Council
  • London Borough of Redbridge Council
  • Kirklees Metropolitan Council
  • Lincolnshire County Council
  • Saving Faces - The Facial Surgery Research Foundation
  • Birmingham City Council
  • Cumbria County Council
  • Hampshire County Council
  • North East Lincolnshire Council
  • Wigan Metropolitan Borough Council
  • Torbay Council
  • Solihull Metropolitan Borough Council
  • West Sussex County Council
  • East Riding of Yorkshire Council
  • London Borough of Greenwich
  • Oldham Metropolitan Borough Council
  • Calderdale Metropolitan Borough Council
  • Cause Action Ltd
  • University of Leicester
  • Medical Research Council Clinical Trials Unit
  • Hmrc
  • London Borough of Merton Council
  • University of Liverpool
  • Dorset Council
  • Royal College Of Paediatrics & Child Health (rcpch)
  • Kings College Medical School
  • Dorset County Council
  • University of Warwick
  • Kings College Medical School
  • King's College London
  • St George's, University of London
  • University of East Anglia
  • University Of Southampton
  • Hackney Council
  • Southampton General Hosptial
  • The Nuffield Trust
  • Cambridge University Hospitals NHS Foundation Trust
  • Society of Endocrinology
  • Clinical Practice Research Datalink (CPRD)
  • Havering London Borough Council
  • Derby Teaching Hospitals NHS Foundation Trust
  • National Centre For Social Research
  • Projects above are ordered by volumes of data they receive (longer projects or more data appear higher).

    CSU/CCGs

    These are grouped in the release register, but audited (and fail) independently

  • NHS Heywood, Middleton and Rochdale CCG
  • NHS East Lancashire CCG
  • NHS Leeds CCG
  • NHS Birmingham and Solihull CCG
  • NHS North East Hampshire and Farnham CCG
  • NHS West Norfolk CCG
  • NHS South Tyneside CCG
  • NHS East Surrey CCG
  • NHS South Warwickshire CCG
  • NHS Guildford and Waverley CCG
  • NHS Hardwick CCG
  • NHS Airedale, Wharfedale and Craven CCG
  • NHS Berkshire West CCG
  • NHS Swindon CCG
  • NHS North Durham CCG
  • NHS Liverpool CCG
  • NHS Coventry and Rugby CCG
  • NHS Barking and Dagenham CCG
  • NHS Erewash CCG
  • NHS Bexley CCG
  • NHS Buckinghamshire CCG
  • NHS Sandwell and West Birmingham CCG
  • NHS Gloucestershire CCG
  • NHS Hambleton, Richmondshire and Whitby CCG
  • NHS Sheffield CCG
  • NHS Lincolnshire East CCG
  • NHS Bedfordshire CCG
  • NHS Telford and Wrekin CCG
  • NHS Sunderland CCG
  • NHS Crawley CCG
  • NHS Bolton CCG
  • NHS Wakefield CCG
  • NHS Dudley CCG
  • NHS Bristol, North Somerset and South Gloucestershire CCG
  • NHS Manchester CCG
  • NHS Shropshire CCG
  • NHS Darlington CCG
  • NHS Greater Preston CCG
  • NHS Ashford CCG
  • NHS East Berkshire CCG
  • NHS Fylde and Wyre CCG
  • NHS Wolverhampton CCG
  • NHS Oxfordshire CCG
  • NHS Doncaster CCG
  • NHS North Derbyshire CCG
  • NHS Luton CCG
  • NHS Walsall CCG
  • NHS East Riding of Yorkshire CCG
  • NHS Milton Keynes CCG
  • NHS Calderdale CCG
  • NHS Canterbury and Coastal CCG
  • NHS South Kent Coast CCG
  • NHS Dartford, Gravesham and Swanley CCG
  • NHS Barnet CCG
  • NHS Eastern Cheshire CCG
  • NHS Corby CCG
  • NHS Thanet CCG
  • NHS Bury CCG
  • NHS Southport and Formby CCG
  • NHS Surrey Heath CCG
  • NHS Southern Derbyshire CCG
  • NHS Trafford CCG
  • NHS Croydon CCG
  • NHS Kernow CCG
  • NHS Tameside and Glossop CCG
  • NHS Brent CCG
  • NHS Blackpool CCG
  • NHS Rotherham CCG
  • NHS East and North Hertfordshire CCG
  • NHS Stockport CCG
  • NHS Somerset CCG
  • NHS Islington CCG
  • NHS North East Lincolnshire CCG
  • NHS East Leicestershire and Rutland CCG
  • NHS Northumberland CCG
  • NHS Swale CCG
  • NHS Salford CCG
  • NHS North Tyneside CCG
  • NHS Enfield CCG
  • NHS West Lancashire CCG
  • NHS Fareham and Gosport CCG
  • NHS Chorley and South Ribble CCG
  • NHS South Tees CCG
  • NHS Blackburn with Darwen CCG
  • NHS Newcastle Gateshead CCG
  • NHS West Kent CCG
  • NHS Brighton and Hove CCG
  • NHS Durham Dales, Easington and Sedgefield CCG
  • NHS Dorset CCG
  • NHS Hull CCG
  • NHS Bath and North East Somerset CCG
  • NHS North Cumbria CCG
  • NHS North Lincolnshire CCG
  • NHS South Norfolk CCG
  • NHS Oldham CCG
  • NHS Bradford Districts CCG
  • NHS Bradford City CCG
  • NHS Barnsley CCG
  • NHS Hartlepool and Stockton-on-Tees CCG
  • NHS Scarborough and Ryedale CCG
  • NHS North Norfolk CCG
  • NHS Vale of York CCG
  • NHS Norwich CCG
  • NHS Ipswich and East Suffolk CCG
  • NHS Medway CCG
  • NHS Herts Valleys CCG
  • NHS Bassetlaw CCG
  • NHS Southwark CCG
  • NHS Greenwich CCG
  • NHS Morecambe Bay CCG
  • NHS St Helens Ccg
  • NHS Warwickshire North CCG
  • NHS Richmond CCG
  • NHS Wirral CCG
  • NHS Basildon and Brentwood CCG
  • NHS Kingston CCG
  • NHS Waltham Forest CCG
  • NHS Lincolnshire West CCG
  • NHS Warrington CCG
  • NHS Havering CCG
  • NHS Knowsley CCG
  • NHS West Cheshire CCG
  • NHS South West Lincolnshire CCG
  • NHS Surrey Downs CCG
  • NHS South Sefton CCG
  • NHS Great Yarmouth and Waveney CCG
  • NHS Lewisham CCG
  • NHS Bromley CCG
  • NHS North Kirklees CCG
  • NHS Wiltshire CCG
  • NHS Halton CCG
  • NHS South Lincolnshire CCG
  • NHS Haringey CCG
  • NHS Greater Huddersfield CCG
  • NHS Harrow CCG
  • NHS North East Essex CCG
  • NHS Rushcliffe CCG
  • NHS Leicester City CCG
  • NHS Harrogate and Rural District CCG
  • NHS West Essex CCG
  • NHS Newark and Sherwood CCG
  • NHS Mansfield and Ashfield CCG
  • NHS Stafford and Surrounds CCG
  • NHS West Hampshire CCG
  • NHS East Staffordshire CCG
  • NHS Herefordshire CCG
  • NHS Portsmouth CCG
  • NHS Stoke On Trent Ccg
  • NHS South Eastern Hampshire CCG
  • NHS North Hampshire CCG
  • NHS Lambeth CCG
  • NHS Wigan Borough CCG
  • NHS South Worcestershire CCG
  • NHS Nene CCG
  • NHS Redditch and Bromsgrove CCG
  • NHS Northern, Eastern and Western Devon CCG
  • NHS Cannock Chase CCG
  • NHS North Staffordshire CCG
  • NHS West Leicestershire CCG
  • NHS Wyre Forest CCG
  • NHS Nottingham North and East CCG
  • NHS Nottingham West CCG
  • NHS Redbridge CCG
  • NHS Nottingham City CCG
  • NHS Thurrock CCG
  • NHS Cambridgeshire and Peterborough CCG
  • NHS West Suffolk CCG
  • NHS South East Staffordshire and Seisdon Peninsula CCG
  • NHS Vale Royal CCG
  • NHS Southend CCG
  • NHS Horsham and Mid Sussex CCG
  • NHS North of England Commissioning Support Unit
  • NHS Mid Essex CCG
  • NHS Eastbourne, Hailsham & Seaford Ccg
  • NHS Tower Hamlets CCG
  • NHS North and East London Commissioning Support Unit
  • NHS West London CCG
  • NHS Hammersmith and Fulham CCG
  • NHS Hounslow CCG
  • NHS Ealing CCG
  • NHS Hillingdon CCG
  • NHS Wandsworth CCG
  • NHS Central London (Westminster) CCG
  • NHS Isle of Wight CCG
  • NHS Merton CCG
  • NHS Leeds South And East Ccg
  • NHS Hastings and Rother CCG
  • NHS High Weald Lewes Havens CCG
  • NHS South Devon and Torbay CCG
  • NHS Sutton CCG
  • NHS South Cheshire CCG
  • NHS Slough Ccg
  • NHS North West Surrey Ccg
  • NHS Newham CCG
  • NHS Camden CCG
  • NHS Chiltern Ccg
  • NHS South Reading Ccg
  • NHS Coastal West Sussex CCG
  • NHS Southampton Ccg
  • NHS Windsor Ascot And Maidenhead Ccg
  • NHS Herts Valley Ccg
  • NHS Leeds West Ccg
  • NHS Leeds North Ccg
  • NHS Bracknell And Ascot Ccg
  • NHS Castlepoint And Rochford Ccg
  • NHS Cumbria Ccg
  • NHS North And West Reading Ccg
  • NHS Wokingham Ccg
  • NHS Central Manchester Ccg
  • NHS Midlands And Lancashire Commissioning Support Unit
  • NHS Central Midlands Commissioning Support Unit
  • NHS Bristol Ccg
  • NHS Newbury And District Ccg
  • NHS Northern Eastern Western Devon Ccg
  • NHS Aylesbury Ccg
  • NHS City & Hackney Ccg
  • NHS Cambridge And Peterborough Ccg
  • NHS Castle Point and Rochford CCG
  • NHS Solihull Ccg
  • NHS South Gloucestershire Ccg
  • NHS North Somerset Ccg
  • NHS South Manchester Ccg
  • NHS North Manchester Ccg
  • NHS Devon CCG
  • NHS Birmingham South And Central Ccg
  • NHS Southampton City CCG
  • NHS Durham Dales, Easington & Sedgefield Ccg
  • NHS City and Hackney CCG
  • NHS Lancashire North Ccg
  • NHS South, Central and West Commissioning Support Unit
  • NHS South East Staffs And Seisdon Peninsular Ccg
  • NHS Birmingham Cross City Ccg
  • NHS Aylesbury Vale Ccg
  • NHS Birmingham Crosscity Ccg
  • NHS Eastbourne, Hailsham and Seaford CCG
  • Csus, Ccgs
  • NHS Bracknell And Ascot Ccg
  • NHS Windsor, Ascot And Maidenhead Ccg
  • NHS Newbury And District Ccg
  • NHS Fylde & Wyre Ccg
  • Central Southern Commissioning Support Unit
  • NHS South Commissioning Support Unit