NHS Digital Data Release Register - reformatted
This is a readable version of NHS Digital's Data
Release Registers since April 2016 - the "complete" list of where NHS Digital sends data on hospital patients after being paid a fee, and whether that release respected opt outs or not. For how to express that choice, medConfidential has more details.
This page is updated roughly monthly when NHS Digital publish more data. This page doesn't currently include anything from the
cancer registry,
whose release register is incomplete
and wrong
(e.g. when NDRS
says 'You can find out more about these research projects here' many
organisations simply weren't listed).
Organisations that breached the rules:
- University College London (UCL) [Opt outs honoured: N, SMLS reported a DPA serious incident; breached contract — audit report]
- Methods Analytics Ltd [Opt outs honoured: N, breached contract — audit report]
- University of Bristol [Opt outs honoured: N, breached contract — audit report]
- Harvey Walsh Ltd [Opt outs honoured: N, unreported DPA breaches; breached contract — audit report]
- Wakefield Council [Opt outs honoured: N, breached contract (access/storage breaches) — audit report]
- University of Nottingham [Opt outs honoured: partially, breached contract (and anonymisation code) — audit report]
- London Borough of Enfield [Opt outs honoured: N, unreported DPA serious incident — audit report]
- Health IQ Ltd [Opt outs honoured: N, breached contract — audit report]
- Device Access UK Ltd [Opt outs honoured: N, breached contract with "high risk" — audit report]
- Gateshead Metropolitan Borough Council [Opt outs honoured: N, breached contract (retained 'deleted' data) — audit report]
- Moorfields Eye Hospital NHS Foundation Trust [Opt outs honoured: N, breached contract — audit report]
- Leeds Teaching Hospitals NHS Trust [Opt outs honoured: N, breached contract — audit report]
- Neil Wilson Associates LLP [Opt outs honoured: N, breached contract (remote access failures) — audit report]
- Pathway Communications Ltd [Opt outs honoured: N, breached contract — audit report]
- Rod Gibson Associates Ltd [Opt outs honoured: N, breached contract (used DropBox) — audit report]
Projects above are ordered by volumes of data they receive (longer projects or more data appear higher).
CSU/CCGs
These are grouped in the release register, but audited (and fail) independently
NHS Liverpool CCG
NHS Wakefield CCG
NHS Bedfordshire CCG
NHS Heywood, Middleton and Rochdale CCG
NHS East Lancashire CCG
NHS Calderdale CCG
NHS Guildford and Waverley CCG
NHS East Berkshire CCG
NHS Leeds CCG
NHS Eastern Cheshire CCG
NHS Milton Keynes CCG
NHS Fareham and Gosport CCG
NHS Gloucestershire CCG
NHS East Surrey CCG
NHS Birmingham and Solihull CCG
NHS Airedale, Wharfedale and Craven CCG
NHS Hambleton, Richmondshire and Whitby CCG
NHS Bolton CCG
NHS South Warwickshire CCG
NHS Berkshire West CCG
NHS South Tyneside CCG
NHS Sunderland CCG
NHS Swindon CCG
NHS Buckinghamshire CCG
NHS Coventry and Rugby CCG
NHS Sandwell and West Birmingham CCG
NHS Telford and Wrekin CCG
NHS East Riding of Yorkshire CCG
NHS Bristol, North Somerset and South Gloucestershire CCG
NHS Manchester CCG
NHS Barking and Dagenham CCG
NHS Greater Preston CCG
NHS North East Hampshire and Farnham CCG
NHS Dudley CCG
NHS Fylde and Wyre CCG
NHS West Norfolk CCG
NHS Wolverhampton CCG
NHS Doncaster CCG
NHS Luton CCG
NHS Sheffield CCG
NHS Southport and Formby CCG
NHS Kernow CCG
NHS Walsall CCG
NHS Lincolnshire East CCG
NHS Bexley CCG
NHS Tameside and Glossop CCG
NHS East and North Hertfordshire CCG
NHS Surrey Heath CCG
NHS Stockport CCG
NHS Brent CCG
NHS North East Lincolnshire CCG
NHS Trafford CCG
NHS North Durham CCG
NHS Somerset CCG
NHS Blackpool CCG
NHS Rotherham CCG
NHS Chorley and South Ribble CCG
NHS East Leicestershire and Rutland CCG
NHS Oxfordshire CCG
NHS Blackburn with Darwen CCG
NHS Brighton and Hove CCG
NHS Derby and Derbyshire CCG
NHS West Lancashire CCG
NHS North Lincolnshire CCG
NHS Hull CCG
NHS Northumberland CCG
NHS North Cumbria CCG
NHS Dorset CCG
NHS Bassetlaw CCG
NHS Barnsley CCG
NHS North Kirklees CCG
NHS Scarborough and Ryedale CCG
NHS Ashford CCG
NHS North Tyneside CCG
NHS Morecambe Bay CCG
NHS Vale of York CCG
NHS Newcastle Gateshead CCG
NHS Herts Valleys CCG
NHS Basildon and Brentwood CCG
NHS Corby CCG
NHS Warrington CCG
NHS Barnet CCG
NHS South Kent Coast CCG
NHS Croydon CCG
NHS Darlington CCG
NHS Bury CCG
NHS Ipswich and East Suffolk CCG
NHS Greater Huddersfield CCG
NHS South Sefton CCG
NHS Islington CCG
NHS Dartford, Gravesham and Swanley CCG
NHS West Essex CCG
NHS Rushcliffe CCG
NHS Thanet CCG
NHS Durham Dales, Easington and Sedgefield CCG
NHS Canterbury and Coastal CCG
NHS Halton CCG
NHS Bath and North East Somerset CCG
NHS Devon CCG
NHS West Kent CCG
NHS Harrogate and Rural District CCG
NHS St Helens Ccg
NHS Knowsley CCG
NHS Swale CCG
NHS Erewash CCG
NHS Haringey CCG
NHS Vale Royal CCG
NHS Herefordshire CCG
NHS Cambridgeshire and Peterborough CCG
NHS Hardwick CCG
NHS South Worcestershire CCG
NHS Medway CCG
NHS Redditch and Bromsgrove CCG
NHS Crawley CCG
NHS Wyre Forest CCG
NHS Shropshire CCG
NHS Hartlepool and Stockton-on-Tees CCG
NHS South Tees CCG
NHS Midlands and Lancashire Commissioning Support Unit
NHS Enfield CCG
NHS West Hampshire CCG
NHS Portsmouth CCG
NHS South Eastern Hampshire CCG
NHS North Hampshire CCG
NHS South Cheshire CCG
NHS North Derbyshire CCG
NHS Southern Derbyshire CCG
NHS Salford CCG
NHS Oldham CCG
NHS Wirral CCG
NHS Southwark CCG
NHS Greenwich CCG
NHS Lincolnshire West CCG
NHS South West Lincolnshire CCG
NHS South Norfolk CCG
NHS North Norfolk CCG
NHS Bradford Districts CCG
NHS Bradford City CCG
NHS Wigan Borough CCG
NHS West Cheshire CCG
NHS Wiltshire CCG
NHS South Lincolnshire CCG
NHS Norwich CCG
NHS Warwickshire North CCG
NHS East Staffordshire CCG
NHS Stafford and Surrounds CCG
NHS Richmond CCG
NHS Stoke On Trent Ccg
NHS Lewisham CCG
NHS Kingston CCG
NHS Waltham Forest CCG
NHS Bromley CCG
NHS Cannock Chase CCG
NHS North Staffordshire CCG
NHS Surrey Downs CCG
NHS Havering CCG
NHS Great Yarmouth and Waveney CCG
NHS Redbridge CCG
NHS Harrow CCG
NHS North East Essex CCG
NHS Leicester City CCG
NHS Newark and Sherwood CCG
NHS Mansfield and Ashfield CCG
NHS Nottingham North and East CCG
NHS Southampton CCG
NHS Nene CCG
NHS West Leicestershire CCG
NHS South East Staffordshire and Seisdon Peninsula CCG
NHS North and East London Commissioning Support Unit
NHS Lambeth CCG
NHS Northern, Eastern and Western Devon CCG
NHS Nottingham West CCG
NHS Nottingham City CCG
NHS North of England Commissioning Support Unit
NHS Thurrock CCG
NHS Hambleton, Richmond and Whitby CCG
NHS West Suffolk CCG
NHS Cheshire CCG
NHS Horsham and Mid Sussex CCG
NHS Southend CCG
NHS Mid Essex CCG
NHS Northamptonshire CCG
NHS Tees Valley Ccg
NHS Herefordshire And Worcestershire Ccg
NHS Bradford District and Craven CCG
NHS Surrey Heartlands Ccg
NHS Kent And Medway Ccg
NHS North Yorkshire Ccg
NHS West London CCG
NHS Hammersmith and Fulham CCG
NHS Ealing CCG
NHS Hounslow CCG
NHS Hillingdon CCG
NHS Eastbourne, Hailsham & Seaford Ccg
NHS Central London (Westminster) CCG
NHS Tower Hamlets CCG
NHS Arden and Greater East Midlands Commissioning Support Unit
NHS Isle of Wight CCG
NHS Hastings and Rother CCG
NHS Wandsworth CCG
NHS South East London Ccg
NHS North Central London Ccg
NHS Norfolk And Waveney Ccg
NHS Bath and North East Somerset, Swindon and Wiltshire CCG
NHS County Durham Ccg
NHS South West London Ccg
NHS Lincolnshire Ccg
NHS Merton CCG
NHS High Weald Lewes Havens CCG
NHS Leeds South And East Ccg
NHS South Devon and Torbay CCG
NHS Camden CCG
NHS Sutton CCG
NHS North West Surrey Ccg
NHS Coastal West Sussex CCG
NHS Slough Ccg
NHS Chiltern Ccg
NHS Newham CCG
NHS West Sussex Ccg
NHS South Reading Ccg
NHS Herts Valley Ccg
NHS Windsor Ascot And Maidenhead Ccg
NHS Leeds West Ccg
NHS Leeds North Ccg
NHS Bracknell And Ascot Ccg
NHS Castlepoint And Rochford Ccg
NHS Castle Point and Rochford CCG
NHS Cumbria Ccg
NHS Southampton City CCG
NHS Wokingham Ccg
NHS North And West Reading Ccg
NHS Central Manchester Ccg
NHS Central Midlands Commissioning Support Unit
NHS Bristol Ccg
NHS Newbury And District Ccg
NHS Northern Eastern Western Devon Ccg
NHS Aylesbury Ccg
NHS City & Hackney Ccg
NHS Cambridge And Peterborough Ccg
NHS Solihull Ccg
NHS North Somerset Ccg
NHS South Gloucestershire Ccg
NHS South Manchester Ccg
NHS North Manchester Ccg
NHS City and Hackney CCG
NHS Birmingham South And Central Ccg
NHS Durham Dales, Easington & Sedgefield Ccg
NHS South, Central and West Commissioning Support Unit
NHS Lancashire North Ccg
NHS South East Staffs And Seisdon Peninsular Ccg
NHS Birmingham Cross City Ccg
NHS Eastbourne, Hailsham and Seaford CCG
NHS Aylesbury Vale Ccg
NHS Birmingham Crosscity Ccg
Csus, Ccgs
NHS Newbury And District Ccg
NHS Bracknell And Ascot Ccg
NHS Windsor, Ascot And Maidenhead Ccg
NHS Fylde & Wyre Ccg
NHS Nottingham And Nottinghamshire Ccg
NHS East Sussex Ccg
NHS Central London CCG
NHS South Commissioning Support Unit
Central Southern Commissioning Support Unit