NHS Digital Data Release Register - reformatted
This is a readable version of NHS Digital's Data Release Registers since April 2016 - the "complete" list of where NHS Digital sends data on hospital patients after being paid a processing fee, and whether that release respected opt outs or not. To make that choice for you and your family, medConfidential has details on how.
A small number of other data uses in COVID-19 is available from NHS Digital, in addition to an incomplete spreadsheet from NHS England withholding most data uses.
This page is updated roughly monthly when NHS England publish more data.
Did they respect the opt out (or sell your data anyway)?
For the last month we know about (2025/01), NHSD chose to respect optouts in 30% of 2039 data releases of personal data.
Was the National Data Opt Out respected:
- 1441: No - "Does not include the flow of confidential data"
- 314: Consent (Reasonable Expectation)
- 150: Statutory exemption to flow confidential data without consent
- 59: Yes
- 44: Mixture of confidential data flow(s) with support under section 251 NHS Act 2006 and "non-confidential" data flow(s)
- 28: Section 251 NHS Act 2006
- 3: No -
Organisations with projects that fully ignored opt outs since 2018:
239 organisations since 2018.
- Monitor
- Carnall Farrar Limited
- Harvey Walsh Ltd
- Methods Analytics Ltd
- The Health Foundation
- National Audit Office
- Wilmington Healthcare
- London School Of Economics And Political Science (lse)
- The Nuffield Trust For Research And Policy Studies In Health Services
- Telstra Health Uk Limited
- Chks Limited
- Barts And The London School Of Medicine And Dentistry
- Health Iq Ltd
- I5 Health Limited
- Compufile Systems Limited
- The Newcastle Upon Tyne Hospitals NHS Foundation Trust
- Lightfoot Solutions Uk Ltd
- Rand Europe Community Interest Company
- Civil Eyes Research Ltd
- Novavax, Inc.
- NHS National Services Scotland
- Astrazeneca Uk Limited
- Meditrends Ltd
- Derby City Council
- Cegedim Rx Ltd
- London Borough Of Hackney
- London Borough Of Newham
- Walsall Metropolitan Borough Council
- The Boston Consulting Group Uk Llp
- Grail Bio Uk Ltd
- Our Future Health
- London Borough Of Enfield
- Optum Health Solutions Uk Limited
- Durham County Council
- City Of Westminster
- London Borough Of Hillingdon
- Oxfordshire County Council
- London Borough Of Tower Hamlets
- Bolton Metropolitan Borough Council
- Hull City Council
- Harrow Council
- London Borough Of Haringey
- Stoke-on-trent City Council
- Prescqipp Cic
- Met Office
- Cambridge Centre For Health Services Research
- GLAXOSMITHKLINE RESEARCH & DEVELOPMENT LIMITED
- Gateshead Metropolitan Borough Council
- Epsom And St Helier University Hospitals NHS Trust
- The King's Fund
- La-ser Europe Limited (a Certara Company)
- Bangor University
- Home Office
- Public Health Scotland
- Medeanalytics International Limited
- Private Healthcare Information Network (phin)
- University Of Bath
- Nec Software Solutions
- Device Access Uk Ltd
- University Hospitals Of Derby And Burton NHS Foundation Trust
- Office For Health Improvement And Disparities
- NHS Coventry And Warwickshire Integrated Care Board
- Crab Clinical Informatics
- Bedford Borough Council
- Department For Transport
- Stockton-on-tees Borough Council
- Renal Registry
- Market And Opinion Research International Limited
- London Borough Of Croydon
- NHS Norfolk And Waveney Integrated Care Board
- Archus Limited
- Nuffield Department Of Primary Health Sciences
- Northern Care Alliance NHS Foundation Trust
- Healthcare Quality Improvement Partnership (hqip)
- I5 Health
- Department Of Health And Social Care
- Kpmg Llp
- London Borough of Newham Council
- University Hospitals Dorset NHS Foundation Trust
- Roehampton University
- Royal Papworth Hospital NHS Foundation Trust
- Ernst And Young Llp
- University Of Hull
- Dr. Foster Limited
- Ignite Data Limited
- London Borough of Tower Hamlets Council
- Westminster City Council
- North Tyneside Council
- Rand Europe
- Oliver Wyman
- Regional Drug & Therapeutic Centre
- Ipsos
- Royal National Orthopaedic Hospital NHS Trust
- National Institute For Health And Care Excellence (nice)
- Kingston Hospital NHS Foundation Trust
- Health Data Research Uk
- Northumberland, Tyne And Wear NHS Foundation Trust
- Southend-on-sea Borough Council (unitary)
- 2020 Delivery Ltd
- Gateshead Council
- Leeds Teaching Hospitals NHS Trust
- 3m United Kingdom Plc
- Medway NHS Foundation Trust
- Telford and Wrekin Council (Unitary)
- NHS Central Register Scotland
- Birmingham Women's And Children's NHS Foundation Trust
- Adelphi Real World
- Neil Wilson Associates Llp
- Calderdale Council
- Bradford Metropolitan District Council
- La-ser Europe Ltd
- Hartlepool Borough Council
- Redcar And Cleveland Borough Council
- Natcen Social Research
- Cumbria, Northumberland, Tyne And Wear NHS Foundation Trust
- Royal Liverpool And Broadgreen University Hospitals NHS Trust
- York And Scarborough Teaching Hospitals NHS Foundation Trust
- Health Innovation Network - South London
- Nottingham City Council (unitary)
- Telford And Wrekin Council
- Nhis
- University Of Exeter
- Adelphi Group Limited
- Oxford University Hospitals NHS Trust
- NHS Birmingham and Solihull Clinical Commissioning Group
- Sandwell And West Birmingham Hospitals NHS Trust
- University Of Kent
- The Royal Marsden NHS Foundation Trust
- London Borough Of Newham Council
- Erasmus University Medical Centre
- Royal Brompton And Harefield NHS Trust
- Middlesbrough Borough Council
- Brighton & Hove City Council
- Hampshire Hospitals NHS Foundation Trust
- Kent County Council
- University Of Northumbria At Newcastle
- London Borough Of Camden
- Non-specialist Acute Trusts In England
- Swindon Borough Council
- London Borough Of Harrow
- London Borough Of Wandsworth
- Redcar & Cleveland Council (unitary)
- Islington Council
- NHS England
- Wiltshire Council
- Young Epilepsy
- NHS England Direct Commissioning
- Oliver Wyman Ltd
- British Society Of Gastroenterology
- NHS England
- Mckinsey & Company
- University Of Essex
- Plymouth City Council
- The Public Service Consultants Limited
- Capita
- Rm Partners
- NHS Improvement
- Northamptonshire County Council
- Westmorland And Furness Council
- Department For Business And Trade
- Western General Hospital
- Digital Health And Care Wales
- Competition & Markets Authority
- Pharmerit International
- Imperial College London Business School
- St James University Hospital NHS Trust
- Cheshire East Borough Council
- NHS England Midlands And East
- University Hospitals Coventry And Warwickshire NHS Trust
- Stoke on Trent City Council
- NHS England North (cumbria And North East)
- Isle of Man Department of Health & Social Care
- Plymouth University
- Poole Hospital NHS Foundation Trust
- Redcar & Cleveland Borough Council
- CSL-UK (CompuFile System Limited)
- University Hospital Of South Manchester NHS Foundation Trust
- Pathway Communications Ltd
- Local Authorities: Data Has Been Made Available To The Public Health Sections Of 91 Councils
- Vanguard - Moorfields Eye Hospital NHS Foundation Trust
- University Of Oxford, Department Of Paediatrics
- Gstt @ Royal Brompton Hospital
- Corevitas
- Bradford Teaching Hospitals NHS Foundation Trust
- Ipsos Mori
- Wilmington Healthcare
- Lancashire & South Cumbria Cancer Alliance
- Kent And Medway Cancer Alliance
- South Yorkshire & Bassetlaw Cancer Alliance
- University Of London (uol)
- Department of Health (DH)
- Northern Cancer Alliance
- Rod Gibson Associates Ltd
- Breast Test Wales
- West Midlands Cancer Alliance
- Wessex Cancer Alliance
- Thames Valley Cancer Alliance
- North Central London Cancer Alliance
- West Yorkshire And Harrogate Cancer Alliance
- 2020 Delivery
- Beacon Consulting
- Competition and Markets Authority
- FTI Consulting
- University Hospitals Of North Midlands NHS Trust
- Greater Manchester Cancer Alliance
- Powys Teaching Lhb
- NHS England (Skipton House)
- Trafford Council
- South East London Cancer Alliance
- Slough Borough Council
- NHS England (temporary National Repository)
- The Dudley Group NHS Foundation Trust
- NHS Trust Development Authority (ntda)
- Cheshire And Merseyside Cancer Alliance
- East Of England - North Cancer Alliance
- Central Manchester University Hospitals NHS Foundation Trust
- The Nuffield Department Of Surgical Sciences - Nds
- The Christie NHS Foundation Trust
- Royal Derby Hospitals
- Lambeth London Borough Council
- Hull And East Yorkshire Hospitals NHS Trust
- Birmingham Children's Hospital NHS Foundation Trust
- Dr. Foster
- St Helens & Knowsley Teaching Hospitals NHS Trust
- University Hospital of North Staffordshire
- Kingston Hospital NHS Trust
- NHS Trust Development Authority
- Beyond Compliance
- Centre for Health Service Economics and Organisation
- Health Education East Midlands
- Experian Marketing Services
- Northern Lincolnshire and Goole Hospitals NHS Foundation Trust
- Birmingham Children’s Hospital
- NHS Improving Quality
- Lancashire Care NHS Foundation Trust
- Children's Commissioner's Office
- Nice
- Cedar, Cardiff and Vale UHB
- Newcastle upon Tyne Hospitals NHS Foundation Trust
Organisations with projects that (partially or fully) honoured opt outs:
293 organisations (61 possibly dangerously if outside the TRE).
- Genomics England 🚩
- Public Health England (phe) 🚩
- University Of Oxford 🚩
- Medicines And Healthcare Products Regulatory Agency (mhra) 🚩
- University College London (ucl) 🚩
- Care Quality Commission (cqc)
- University Of Cambridge 🚩
- Royal College Of Obstetricians And Gynaecologists (rcog) 🚩
- University Of Birmingham 🚩
- University Hospitals Birmingham NHS Foundation Trust 🚩
- King's College London 🚩
- University Of Bristol 🚩
- South London And Maudsley NHS Foundation Trust 🚩
- University Of York 🚩
- North Bristol NHS Trust
- Uk Biobank
- University Of Leeds 🚩
- NHS England - X26
- Imperial College London 🚩
- University Of Surrey
- University Of Sheffield 🚩
- University Of Nottingham 🚩
- Royal College Of Psychiatrists
- Queen Mary University Of London 🚩
- Royal Liverpool University Hospital
- The Brain Tumour Charity
- Nottingham University Hospitals NHS Trust
- Institute Of Cancer Research 🚩
- University Of Newcastle Upon Tyne 🚩
- Cambridge University Hospitals NHS Foundation Trust
- Nec Software Solutions Uk Limited 🚩
- The Royal College Of Surgeons Of England
- St. Georges Hospital Medical School
- Health And Safety Executive 🚩
- Suffolk County Council
- University Of Aberdeen 🚩
- HEALTH & SOCIAL CARE INFORMATION CENTRE
- North Lincolnshire Council
- Brighton And Hove City Council
- Lincolnshire County Council
- National Institute For Cardiovascular Outcomes Research 🚩
- City Of Bradford Metropolitan District Council
- Plymouth City Council
- Birmingham City Council
- Peterborough City Council
- Wigan Metropolitan Borough Council
- Hampshire County Council
- Cornwall Council
- Cambridgeshire County Council
- Blackpool Borough Council
- Cheshire West And Chester Council
- King's College Hospital NHS Foundation Trust
- Devon County Council
- Bury Metropolitan Borough Council
- Sandwell Metropolitan Borough Council
- Derbyshire County Council
- Nottinghamshire County Council
- Essex County Council
- Sefton Metropolitan Borough Council
- Manchester University NHS Foundation Trust 🚩
- Southampton City Council
- Liverpool City Council
- Cheshire East Council
- London Borough Of Havering
- Stockport Metropolitan Borough Council
- West Sussex County Council
- East Sussex County Council
- Staffordshire County Council
- Salford City Council
- Calderdale Metropolitan Borough Council
- Portsmouth City Council
- Leicestershire County Council
- East Riding Of Yorkshire Council
- Northumberland County Council
- Hertfordshire County Council
- Tameside Metropolitan Borough Council
- Blackburn With Darwen Borough Council
- Kirklees Council
- Solihull Metropolitan Borough Council
- North East Lincolnshire Council
- Torbay Council
- Sunderland City Council
- Kent County Council
- London Borough Of Islington
- London Borough Of Bromley
- Barnsley Metropolitan Borough Council
- Wakefield Metropolitan District Council
- London Borough Of Sutton
- Buckinghamshire Council
- Dorset Council
- London Borough Of Redbridge
- Gloucestershire County Council
- Warwickshire County Council
- Thurrock Council
- London Borough Of Barking And Dagenham
- Rochdale Metropolitan Borough Council
- Coventry City Council
- Leicester City Council
- Oldham Metropolitan Borough Council
- Leeds City Council
- Dudley Metropolitan Borough Council
- South Gloucestershire Council
- Surrey County Council
- Halton Borough Council
- Warrington Borough Council
- Bracknell Forest Council
- Newcastle City Council
- Wirral Borough Council
- London Borough Of Barnet
- Trafford Metropolitan Borough Council
- Royal Borough Of Kingston Upon Thames
- Norfolk County Council
- Isle Of Wight Council
- Doncaster Metropolitan Borough Council
- London Borough Of Merton
- Northwest Ehealth Limited
- London Borough Of Southwark
- South Tyneside Council
- Knowsley Metropolitan Borough Council
- Lancashire County Council
- Wiltshire Council
- St Helens Council
- Medway Council
- Bath And North East Somerset Council
- London Borough Of Hounslow
- Bristol City Council
- London Borough Of Ealing
- North Northamptonshire Council
- City Of York Council
- London Borough Of Richmond Upon Thames
- Worcestershire County Council
- London Borough Of Lewisham
- City Of Wolverhampton Council
- Royal Borough Of Greenwich
- Sheffield City Council
- Southend-on-sea Borough Council
- Nottingham City Council
- London School Of Hygiene And Tropical Medicine 🚩
- Royal College Of Anaesthetists 🚩
- Manchester City Council
- Herefordshire Council
- London Borough Of Bexley
- Cumberland Council
- NHS England (quarry House) 🚩
- London Borough Of Waltham Forest
- Royal College Of Physicians Of London 🚩
- The University Of Manchester 🚩
- National Institute For Health Research (nihr) Bioresource
- Gloucestershire Hospitals NHS Foundation Trust 🚩
- Somerset Council
- London Borough Of Lambeth
- University Of Edinburgh
- Cambridgeshire And Peterborough NHS Foundation Trust
- Liverpool Heart And Chest Hospital NHS Foundation Trust
- Newcastle University 🚩
- University Of East Anglia 🚩
- London North West University Healthcare NHS Trust 🚩
- University Of Dundee
- University Of Southampton
- Iqvia Ltd 🚩
- University Hospital Southampton NHS Foundation Trust 🚩
- Barts Health NHS Trust 🚩
- West Hertfordshire Teaching Hospitals NHS Trust
- Royal Devon University Healthcare NHS Foundation Trust
- Moorfields Eye Hospital NHS Foundation Trust
- University Of Glasgow
- University Of Liverpool
- Norfolk And Norwich University Hospitals NHS Foundation Trust
- Somerset County Council
- The Royal Wolverhampton NHS Trust
- Cardiff University 🚩
- National Cjd Surveillance Unit
- MCKINSEY & COMPANY, INC. UNITED KINGDOM
- Keele University
- University Of Leicester
- Swansea University
- North Yorkshire Council
- INTENSIVE CARE NATIONAL AUDIT & RESEARCH CENTRE (ICNARC) 🚩
- NHS Blood And Transplant (nhsbt) 🚩
- National Institute For Health Research
- NHS Wales Informatics Service (nwis)
- Nuvia Ltd
- North Yorkshire County Council
- Northumbria Healthcare NHS Foundation Trust
- Cumbria County Council
- Milton Keynes University Hospital NHS Foundation Trust
- Oxford University Hospitals NHS Foundation Trust
- Great Ormond Street Hospital For Children NHS Foundation Trust
- St George's, University Of London
- Royal Free London NHS Foundation Trust 🚩
- Uk Haemophilia Centre Doctors' Organisation
- Health & Social Care Information Centre
- Northgate Public Services (uk) Limited 🚩
- University Of Warwick 🚩
- Institute For Fiscal Studies
- Derbyshire Healthcare NHS Foundation Trust
- Astrazeneca Ab
- Uk Health Security Agency
- ROYAL COLLEGE OF PAEDIATRICS & CHILD HEALTH (RCPCH)
- University Hospitals Bristol And Weston NHS Foundation Trust
- Society Of Endocrinology
- West Hertfordshire Hospitals NHS Trust (whht) 🚩
- Intensive Care National Audit & Research Centre (ICNARC)
- London Ambulance Service NHS Trust
- British Thoracic Society
- Institute Of Occupational Medicine (iom) 🚩
- Saving Faces - The Facial Surgery Research Foundation
- Ims Health Ltd 🚩
- Sefton Council
- Ministry Of Defence (mod) 🚩
- London Borough of Sutton Council
- Wakefield Council
- London Borough of Redbridge Council
- Wirral Metropolitan Borough Council
- Newcastle Upon Tyne City Council
- Bracknell Forest Borough Council
- West Hertfordshire Hospitals NHS Trust
- London Borough of Waltham Forest Council
- Doncaster Council
- South Tyneside Metropolitan Borough Council
- Wolfson Institute Of Preventive Medicine 🚩
- London Borough of Southwark Council
- St Helens Metropolitan Borough Council
- Royal Devon And Exeter NHS Foundation Trust
- London Borough Of Richmond Upon Thames Council
- York City Council
- Northamptonshire County Council
- Liverpool University Hospitals NHS Foundation Trust
- London Borough Of Merton Council
- Wolverhampton City Council
- London Borough of Lewisham Council
- Southend on Sea Borough Council
- East Anglian Air Ambulance
- Royal Borough Of Kingston-upon-thames Council
- Hmrc
- The Medical School - Newcastle Upon Tyne 🚩
- McKinsey & Company, Inc. United Kingdom 🚩
- Kingston University
- Addenbrooke's Hospital 🚩
- Luton Borough Council
- Royal Free & University College Medical School
- Cancer Research Uk
- The Clatterbridge Cancer Centre NHS Foundation Trust 🚩
- Chelsea And Westminster Hospital NHS Foundation Trust
- Buckinghamshire County Council
- Warrington Borough Council (Unitary)
- Halton Borough Council (Unitary)
- Ucl Institute Of Education (ioe) 🚩
- University Hospitals Bristol NHS Foundation Trust
- London Borough of Barnet Council
- Erasmus University Rotterdam
- London Borough of Lambeth Council
- Glasgow Caledonian University
- London North West Healthcare NHS Trust
- London Borough of Greenwich
- London Borough of Bexley Council
- Royal Surrey County Hospital NHS Foundation Trust
- Kirklees Metropolitan Council
- Sheffield Teaching Hospitals NHS Foundation Trust 🚩
- Office For National Statistics (ons) 🚩
- Informatica Systems Ltd
- Salford Royal NHS Foundation Trust 🚩
- Health & Safety Laboratory (hsl)
- Bradford City Metropolitan District Council
- The Institute for Fiscal Studies (IFS)
- Iqvia Solutions Uk Limited 🚩
- Nottinghamshire Healthcare NHS Foundation Trust
- University College London Hospitals NHS Foundation Trust
- Guy's And St Thomas' NHS Foundation Trust 🚩
- Institute Of Child Health
- Royal Borough of Kingston-Upon-Thames
- Derbyshire Health NHS Foundation Trust
- Gateshead Health NHS Foundation Trust
- Kingston University London
- Saving Faces
- National Centre For Social Research
- Picker Institute Europe 🚩
- Cause Action Ltd
- Medical Research Council Clinical Trials Unit
- Dorset County Council
- Clinical Practice Research Datalink (cprd)
- St George's Hospital Medical School
- Office For National Statistics
- Royal College Of Paediatrics & Child Health (rcpch)
- Kings College Medical School
- Kings College Medical School
- Valneva Austria Gmbh
- Derby Teaching Hospitals NHS Foundation Trust 🚩
- Havering London Borough Council
- Hackney Council
- The Nuffield Trust 🚩
- Royal Surrey NHS Foundation Trust
- Southampton General Hosptial
Projects above are ordered by volumes of data they receive (longer projects or more data appear higher).
CSU/ICBs/CCGs
These are grouped in the release register, but audited (and fail) independently